re-introducting myself

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kia c.
Regular Member


Date Joined Jun 2004
Total Posts : 111
   Posted 12/15/2009 2:25 PM (GMT -7)   
I've been lurking about the forum for the past month or so ... as I've been in a Crohns flair since mid-September.  I was diagnoised seven years ago with Crohns ... and have had it under control - for the most part - for the past couple of years.  Starting in August I was so fatiqued I could barely keep my eyes open ... then the canker sores started ... then the diahhrrea.  I had an appointment with my GI yesterday ... apparently I should have called him sooner and told him of my flair ... he wasn't pleased with me.  Opps!  I thought I could get it under control on my own.  Anyways ... I'm off for a CAT scan tomorrow and an X-ray for ankalosing spondalitis (?).  Then we reconsider changing my meds the following week. 
 
I was especially glad to see a posting about Humira.  My doctor recommended adding Remicade to my regime of meds ... but the nurse told me that as of 1/1/10, Remicade won't be covered by MVP Healthcare.  So, I decided if I HAVE to do this, I'll choose the Humira.  Then I see the post about pain and Humira.  shocked   Sometimes, I faint when I take a poop!  How am I going to handle the sting of Humira.
 
After all this rambling ... I do have a question; When you take Remicade or Humira or Cimzia ... is that in ADDITION to your other Crohns meds?  Between the prescribed drugs and the vitamins, I take 17 pills a day! 
 
Oh!  Also, the doctor said something about the Crohns maybe changing to Ulcerative Colitis.  I didn't quite understand that.  Does that happen?   
 
On another note; co-workers tell me how great I look!  Idiots!  Do they NOT see me running like a line-backer for the bathroom every 30 minutes? 
 
Thanks for letting me re-introduce myself and ramble!
 
kia
 
six Asacol ... two mercaptopurine ... and a fist full of vitamins
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/15/2009 2:48 PM (GMT -7)   
Welcome to healingwell!
I just wanted to let you know that humira injection just stings a bit. But if you do have problems with it then a fridge pack or a heating pad would help.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/15/2009 5:42 PM (GMT -7)   
I have been back and forth between Crohns's and UC.

Currently my new doc "thinks" I have UC but I don't believe him that much :)
but he is treating me like I have CD, I am totally lost in this but as long as I am fine it does not matter to me.

I would say that I have CD in the colon, But how know maybe it is just UC.

Don't worry about the dx just worry about getting better.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~

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