erythema nodosum

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newbie2
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/15/2009 7:09 PM (GMT -7)   
Have any of you also be diagnosed with erythema nodosum?  Just curious...i had just gotten rid of it right before i was diagnosed with crohns.  It was quite the summer!!

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 12/15/2009 7:15 PM (GMT -7)   
Yup! When I get really bad, I get some pretty bad on my knees/shins. I just went on prednisone two weeks ago and the EN cleared up within a week! (The pain I mean. The marks are still there they last SO long!)
Anyways when I'm on steroids it goes away, and when I'm not it comes back.
Also I remember getting what I now recognize as EN when I was 14 but I thought it was just really bad bruises from soccer
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin


tamsprote96
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 12/17/2009 8:36 AM (GMT -7)   
I've had it on both legs and it started on my arms (between wrist and elbow) before I got the Crohn's under control.  I have heard that it won't repeat a spot, which I hope is true because then I know my legs are now safe  lol

Rzrbckfan
New Member


Date Joined May 2009
Total Posts : 10
   Posted 12/17/2009 10:04 PM (GMT -7)   
Yep - diagnosed almost two years ago now.  I go on Potassium Iodide for my flares - few and far between now.  I had it so bad my ankles were swollen for two months and it was very painful/difficult to walk.  Because of all my prednisone usage, my doctors didn't want to add more predinsone to it to try and get it under control, plus it takes me FOREVER to get off prednisone - so they did the SSKI.  It works wonders! Now, when I notice a flare coming on, I simply take a weeks worth - and the bumps are gone (marks still present - bruised!) - The dosage is 0.9ml daily - normally done in either two or three divided doses in 4-6 ounces of juice or water.  It's not pleasant tasting, but it's worth it.
Good luck with it. I hope you get it under control soon.
27-yr old female, happily married for 5 yrs, 2 dogs...
Dx with UC May 2004; Total Colectomy, J-Pouch May 2005-April 2006; Abcess - April 2008, loop-ileostomy - change DX to Crohn's; Struggling with hemoglobin and iron counts since October 2008...
Current meds: Prednisone (BLAH!) 2 mg, Humira, Calcium 600 mg + D twice daily, Multivitamin, Prilosec OTC
Failed Meds: Asacol, Colazol, Pentasa, Imuran, Remicaide


carpediem389
New Member


Date Joined Nov 2009
Total Posts : 10
   Posted 12/29/2009 4:28 PM (GMT -7)   
hi, i had my first experience with e. nodosum a couple weeks ago (i'm in the midst of a flare and a couple weeks ago i was taken off some of my usual meds and my flare got even worse, i'm getting better now though) and even though it's gone down a LOT, there are still bruise-looking marks on my legs. how long do those take to go away?? they really aren't very nice looking, and they're all over my legs and ankles!
Diagnosed with UC in 2005
Currently at the tail end of a flare that began in Summer '09
Meds: Remicade infusions (15 mg/kg) every 4-6 weeks... that's about it, but looking for some supplements that might make life easier for me!


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 12/29/2009 6:54 PM (GMT -7)   
They take a long awhile to go away, months at least for me. But the important thing is that they do go away eventually and you will have pretty legs again!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin

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