I am really sorry to hear this Wolfie. Hopefully others will be more helpful towards you making a decision. It's tough to have to do this so soon but the surgery might have been necessary at the time.
What about all of the bad things that you hear about with these drugs (TB,MS,Lupas,Lymphoma,death, etc) Is this something that happens often or are they required to put the warning labels on the product.
I'm not sure how expensive these drugs are and what my insurance will charge me.
Do you use the Humira pens, and how often to you take them? Do you have to get regular blood checks?
Post Edited (Wolfie40) : 12/17/2009 4:44:30 AM (GMT-7)
Your welcome! Life does throw you curves as I sit sit here and wonder "Why me" what have I done. I'm a good person, I help people, eat right, exercise, etc.
I really thought that the surgery was going to do it for me along with taking my meds and eating right. Now I need to make a decision on which of the Big gun drugs do i take which i thought that i would never need. Oh well!
I really hope and pray that you and your family can come together during the holiday season and enjoy possibly your fathers last Christmas together.
Im sorry that your CD has come back too.
I had a resection in Sept. 07 and only had a few months relief till it grew right back - although unlike yourself, I plodded along, just kept upping the pred.
Then I had the flare from hell where even upping the pred didnt help, so although I felt the same way about the biologics as you, I knew I needed something else
I was really scared to take Humira, but then after the flare from hell I became scared not to take it.
I have just completed my second maintenance dose and I have to say I think it is working really well. I do have urgency issues, but no more pain and less frequent bm's - and that for me is a godsend
I have even dropped my pred down to 10mg which I havent been down to in years, so I am hoping this is the med that gets me pred free.
I worry what these meds are doing to my body, but uncontrolled Crohn's would be doing much worse.
Good luck with your decision and let us know what you do decide
Oh and one day I must get some tips from you on Labradors - I have a very naughty one year old golden Lab, who is too loved and spoilt by all
Wolfie - Im glad you got approval for Humira
I hope it is the med that works for you.
It sucks that neither you, Skibum or myself got much relief from having had surgery. After surgery I was on MTX and pred and still the CD grew back, so dont beat yourself up about not having taken the big gun meds after surgery.
As for blood works, I have been having them done every four weeks since starting the Humira and I visit the Gastro this Wednesday for the results of the last blood tests - she is really keeping an eye on these at the moment.
My Lab is a male and I have been told it can take up to 3 years before they are 'sensible'. He actually makes Marley look well behaved He has cost me a fortune in Vet bills due to hurting himself out on the farm I take him too and has two nasty scars to prove it. He so loves to go there that I cant not take him - just wish he was less excited and a little more cautious
Again its great news about the Humira - let us know how you progress with it and dont hesitate to ask questions, as I picked a few brains on the forum myself and found them very helpful.
I havent been OS while taking all these meds, so not sure about that.
As for cutting yourself - I had a double staph infection on my foot last year (before Humira) it started out as a small cut and bandaids wouldnt stay on it and being summer and sandal season I guess I wasnt careful enough. What Im trying to say is I guess I was more susceptible to infection due to the pred and MTX and just having a weak immune system from CD anyway.
And I agree about the Alpha male - with Buster, he knows my husband is the Alpha male, then Im second. its the rest of the family that he disobeys and as we cant be around all the time he will run amok for them - smart animals arent they