Haven't written off SCD yet.

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snappy
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Date Joined Sep 2005
Total Posts : 675
   Posted 12/17/2009 10:22 AM (GMT -7)   
I said something last week about SCD diet not working for me and that I was quitting but I'd like to take that back. No, it hasn't cured me yet but it has improved my condition greatly. And I just started the 3rd month.
Even if SCD doesn't heal me completely, I'm on it for life. I'm not going back to my sugar and pasta diet. Being a marathoner I was eating SO MUCH of the wrong foods and thinking I was eating healthy. But since I quit the highcarb lifestyle my energy is just incredible. I ran my first post-crohns diagnosis marathon saturday with no gatorade, no nasty energy gels and no pasta dinner and felt awesome.
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/17/2009 10:26 AM (GMT -7)   
I think it is LMills who does a modified version of the SCD and has success with that. Maybe you can do something like that without totally denying yourself a few treats. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 12/17/2009 10:31 AM (GMT -7)   
about a week ago I added a little bit of milk back into my diet which I add to my afternoon coffee with no ill effect. out of all the things I miss this is what I missed most! so I'm pacified for now. People have been bringing junk food in  the office all week and I'm not one bit tempted by sugary treats.

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 12/17/2009 12:30 PM (GMT -7)   
Hey Snappy,

Glad to hear the SCD is working for you. I just recently started it. I hope you don't mind my asking, but did you eat or drink (besides water) anything during your marathon? Also, have you felt any difference in your training after your diagnosis and being on Remicade?

I ran marathons before my diagnosis until I had to stop because of SI joint issues which turned out to be a symptoms of my Crohn's. Thankfully, the Remicade has helped me get back to pretty much normal, and I can run again, but I'm worried about being on an immunosuppressant while marathon training. I'm wondering if it would be too hard on my body. Do you mind sharing your experience?

Also, have you cut your carbs a ton, and has that affected your training?

Congrats on your last marathon. Hope you are recovering well!

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 12/17/2009 12:48 PM (GMT -7)   

Thanks Octobergirl.

During my training and my marathon I drank half apple cider/half water mixed in my camelbak (so I now have to wear a Camelback, naturally). I made the peanut butter brownies from the SCD book and carried those as well as some  slices of apple and cheddar cheese. I eat lots of fruit all the time and I find that oranges, apples and bananas make me feel even better on the run than gels and gatorade.

I haven't experienced any kind of immunosuppression with my training on Remicade. But I think I am lucky in that I never have the typical colds and infections some people get with Remicade. I really attribute this to eating right and getting enough sleep (and lots of hand washimng and avoiding sick people!).

 

Oh yeah..peanut butter is my best friend. Only the natural stuff with no sugar. I love to come home and slice up an apple and dip in it.

I actually feel like I'm a much better runner than before I was diagnosed. I think that is mainly because I know it's something that could easily be taken away from me so I better enjoy it now. I have two more marathons and a 50k coming up in the next two months! 

 

the weight loss from the diet really helped my joints a lot. I don't have crohns probs with my joints but they do ache sometimes.


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 12/17/2009 1:10 PM (GMT -7)   
Thanks for your input, Snappy. I have a Camelbak already, so the apple cider/water idea would work well. Plus I'm sure it's nice to not have to wade through all the people at the aide stations. (However I sweat a ton, so I guess I'd have to invest in one HUGE camelbak! Or I guess just fill it with apple cider and get water from the aide stations.)

I love peanut butter too- even before Crohn's. I think I'm addicted! But I like your idea to supplement with fruit and cheese.

Good luck with your next marathons and your ultra! I have a good friend who does ultras and admire anyone who can do those. I also admire anyone who can do more than 2 marathons in a year. More than that would burn me out. You must recover quickly. Best of luck and thanks again for your advice! :)

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/17/2009 2:00 PM (GMT -7)   
I'm an almond butter lover myself. Slap some of that on a banana, and yum! I love the brownies made from it too :-).

Snappy, I've also gotten over the desire for non-legal sweets. But SCD treats, man I have to be careful and not overdo it. There are some great recipes!

Octobergirl, to find some more tips on doing marathons on SCD, you can ask at the BTVC yahoo group. There are a few people who have posted what they eat to train.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 12/17/2009 2:11 PM (GMT -7)   
you know what?too many scd treats messes me up just like normal treats. i think i can't tolerate too much "junk" no matter if its safe or not. But I guess nobody ever said eating legal was an excuse to eat a whole pan of legal brownies, eh?

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/17/2009 2:22 PM (GMT -7)   
Hey Spooky I am not a SCD'er but I LOVE Peanut butter & Jelly. I haven't been able to eat them though becuz Peanut Butter is no longer my friend. Do you think the Almond Butter is easier to digest? I have been wanting to try it, but worry becuz its so expensive and I'd hate to waste it. Thanks for your thoughts!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/17/2009 2:49 PM (GMT -7)   
Having had both, I think the peanut butter is easier to digest. But I think almond butter is healthier. Apparently peanut butter is loaded with some type of amino acid which is very pro-inflammatory...
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/17/2009 3:01 PM (GMT -7)   
Funny, I had stopped eating peanut butter several years before I had a diagnosis - it just gave me heartburn. Almond butter is completely different. It gives me no trouble. This is probably one of those "it depends, everyone's different" things.

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 12/17/2009 3:47 PM (GMT -7)   
Thanks, for the advice, Spooky. I also adore almond butter. Pretty much any kind of nut butter, and I'm smitten.

I have heard that almond butter is actually easier to digest since peanuts are technically legumes. However I know nuts are hard to digest as well. For me, I think almond butter is easier to digest. Nanners, it's good stuff. Not the same as pb, but good, and slightly sweeter. I think you'd like an almond butter and jelly sandwich. Spoil yourself, you deserve it!

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/17/2009 5:01 PM (GMT -7)   
Snappy, a lot of people say a high amount of carbs are bad for our guts, and SCD treats with honey are certainly high carb! I think we all need to be careful with the "junk," even if it is SCD legal.

Nanners, I've read that peanut butter, being a legume, is starchier and harder to digest (same with cashew butter). Pecan butter is supposed to be easiest to digest, followed by blanched almond butter. I mostly eat unblanched almond butter (has the little specks of skins in it) since it's never bothered me. Trader Joe's carries it for a reasonable price too (just under $5 for a jar). I find it a pain to make pecan butter, so only do it for special treats. The SCD brownies made with pecan butter have a sweeter more decadent taste then it does with almond butter.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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