Surgery Monday

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pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/19/2009 1:28 PM (GMT -7)   
Had a consultation with the surgeon on Friday. Apparently I have a pretty nice obstruction from all the scar tissue in my small intestine. That would explain my inability to eat non-liquids for the last 3 weeks. It's going to suck spending Christmas in the hospital but oh well. I'm actually excited to get it over with so I can eat again.

Anyone have any words of wisdom, stories, etc?
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 12/19/2009 3:13 PM (GMT -7)   
Here's to you feeling better and 2010 being a healthier year for you!!!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/19/2009 3:13 PM (GMT -7)   
Good luck! I hope Santa brings you better health..
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/19/2009 4:01 PM (GMT -7)   
Sorry to hear that, but I hope you feel like raising a small smile Christmas day. Best of luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 12/20/2009 7:24 PM (GMT -7)   
I hope your surgery goes very smoothly and you are up and running around very soon! I haven;t had this surgery, but I hear they get you up walking very quickly afterwards and that it is all worth it in the end!

Take care, and let us know how it goes. Take your Christmas stocking with you and hang it up in your room.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 12/20/2009 8:39 PM (GMT -7)   
Hi Pimfram. I hope all goes well tomorrow. Remember to bring your own pillow. Ear plugs are good too. Hospitals (insurance companies actually) like to get you in and out - so maybe you'll even be home by Christmas. I hope you get the best gift of all for Christmas - good health. SB
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 12/21/2009 3:54 AM (GMT -7)   
Hope everything goes well for you, wishing you a speedy recovery and a happy and healthy new year Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/21/2009 7:11 AM (GMT -7)   
Will be praying your surgery brings you to a long long remission. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/22/2009 7:32 PM (GMT -7)   
Thanks for the kind words. Surgery was at 4pm and I was walking by 10am today. Honestly, it's not as bad as I imagined, but I do have a high pain tolerance. The hydromorphone does a nice job of taking the edge off the pain, just hurts when I get up out of bed. I'm hoping to get out of here before too much longer, nurses say I'm doing extremely well.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/22/2009 8:16 PM (GMT -7)   
Great to hear. The holiday spirits are with you it seems
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for two months and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
Your doctor will know nothing about this being for Crohn's, it is my observation.  Question is is it safe for you. I can't make money on this, it's already in your kitchen.  I just want to help.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.  Give it about ten days.  I am NOT a healthcare professional.   Ask your doctor if this is safe for you.  Same Blue dye that is in Gatorade etc.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/22/2009 11:00 PM (GMT -7)   
Pimfram, I just wanted to offer my support, and I wish you the best in getting better!! Keep us updated on how the results of the surgery, please. I know any abdominal surgery is a pain as far as getting up and down goes, but it doesn't take too long before you're up and about again.

Do you know what your plans are going from here?
Diagnosed with Crohn's in May of 2008.
Currently taking for Crohn's: Pentasa, omeprazole, Loestrin birth control, and Align probiotics.
Also taking Elmiron and RE Methylphen for Interstitial Cystitis.
bonniegriffith.blogspot.com/
"He who has a why to live for can bear with almost any how."


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/23/2009 7:07 AM (GMT -7)   
They said if I tolerate full liquids well, I'll rapidly move on to real food and could be out as soon as Christmas day. I kind of doubt I'd be out that quickly but I sure wouldn't mind being able to get together with the family for Christmas, especially since prime rib is what's going to be served.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/23/2009 7:13 AM (GMT -7)   
Did you have your surgery done by laproscopy? I am guessing so, since your recovery is going so well and fast. Here's to a long remission for you! Be sure you get back on maintainence meds, you don't want to have a repeat of Crohns or another surgery anytime soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/23/2009 7:26 AM (GMT -7)   
It was an open surgery, but the incision isn't very long, 4-6 inches in length.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/23/2009 7:36 AM (GMT -7)   
Wow I am impressed then. I have had two open resections (although I did get an infection in the incision both times) and I wasn't feeling as well as you describe for a few weeks afterwards. I happen to have a strong pain tolerance myself, but not as good as you I guess:) Good for you!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 12/23/2009 7:40 AM (GMT -7)   
Hey pimfram, I just wanted to let you know I'm so glad you are doing so well after your surgery. It seems like an amazing thing that you were up walking so soon! I hope you continue on that route and are out by Christmas. I may be on the same boat soon and I'm so scared, it's good to hear a positive response to the surgery. Happy holidays to you and yours and here's to a much brighter 2010!!

*hugs*

Dana
35 year old Female

Entocort EC 9mg per day and Remicade

Tried Remicade 2 yrs ago for about a year and a half and loved it, got off it due to costs, tried Humira and it just didn't work for me so now back on Remicade.


~Trying to avoid surgery as long as possible~


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/23/2009 7:43 AM (GMT -7)   
Thanks Nanners and Dana. I do attribute a little of my success to the Dilaudid, but I'm not the type of person who lets anything beat me, especially CD.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/23/2009 8:43 AM (GMT -7)   
Oh yeah Dialaudid and I were great friends after my resections:) Then went home on Percosets.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/23/2009 9:55 AM (GMT -7)   
Yeah, I'm going to be switched over to perc before I'm shipped out.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


mj1966
Regular Member


Date Joined Nov 2009
Total Posts : 46
   Posted 12/23/2009 12:26 PM (GMT -7)   
Pimfram glad everything went ok for you! I hope you get home for Christmas, alwasy better to heal at home than in the hospital, especially on a special holiday! Take care!

Sir WipesALot
Regular Member


Date Joined Nov 2009
Total Posts : 42
   Posted 12/23/2009 12:32 PM (GMT -7)   
Pimfram... just logged on to wish you the best. I'm glad to hear everything went so well. Best of luck and prayers to you for 2010 and beyond!
20 mg Prednisone, 3000 mg Pentasa, 75 mg 6MP, Bactrim, Flagyl, Fosamax, Prilosec... probiotics......

DX May 2004
34 YO M


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 12/23/2009 4:18 PM (GMT -7)   
Same here,logged in to say great job!!!
What a trooper!!! Hope you handle solids
soon, and head home to your family.
WAY-TO-GO!!
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/23/2009 4:31 PM (GMT -7)   
Thanks a lot, guys and girls. Only setback so far is that it isn't much fun to take percocet on an empty stomach. I wish the nurse would have said something before I took it.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 12/23/2009 4:59 PM (GMT -7)   
Ooh! You got that right. Even Dilaudid did that to me on an empty stomach. Congrats on a great result and recovery. Wishing you home for christmas.
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 12/23/2009 7:17 PM (GMT -7)   
Dilaudid made me really doped up, but it worked very well. Perc doesn't seem to help nearly as much, will probably as for Dilaudid so I can sleep tonight. Abs hurt on either side, but my incision hardly hurts anymore.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche

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