Vediolizumab - anyone on the trial?

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sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 12/22/2009 12:02 AM (GMT -7)   
My daughter, Jerica, who is now 20, is having another sericous flare and her Gastro said she was a good candidate for the study of Vedolizumab.

Any one here partake in any studies? Is this a good idea or what?

Thanks
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 18, Dx: Crohn's, amitriptyline 50mg, Forvia, AZA 150mgs
 
 Husband with treatment resistant depression:   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 12/22/2009 1:51 AM (GMT -7)   
Nope I'm not but would be if not on the Cimzia trial or if it doesn't work. I think my gastro clinic said they have two people on the Vedo trial but it's too soon to tell if it's working for them. If it's like the Cimzia trial it'll be great: free everything. Vedo is also safer than Tysabri because it apparently dosn't have the PML risk.
Cimzia, Asacol


x5800
New Member


Date Joined Mar 2010
Total Posts : 19
   Posted 3/16/2010 10:01 AM (GMT -7)   
@sweeterthanhoney - Did you end up trying it? How is your daughter doing?

sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 3/16/2010 1:57 PM (GMT -7)   
hi!
actually, after all the preliminary tests were done, she didn't qualify as her white blood cell count wasn't high enough. With her, you never could go by her blood work. So, she is now taking Humira. We are hoping and praying that this will work.

She has a bad cold with cough right now and I hope she won't get and infections!

Thanks for asking!

x5800
New Member


Date Joined Mar 2010
Total Posts : 19
   Posted 3/16/2010 2:10 PM (GMT -7)   
That's too bad she didn't qualify! I'm also 20 years old (male) and I'm just starting the initial screening tests to see if I'm eligible. I've tried the full gamut of medications and didn't have any luck with Remicade but some success with Azathioprine. Unfortunately I've been flaring since Christmas with quite a lot of bleeding.

We'll see if this research treatment does any good!
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