Which Probiotic is best?

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80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 12/24/2009 5:18 AM (GMT -7)   
I'm using Align right now, becuase my GI gave me a bunch of samples. I have about 2 weeks' worth left and I am going to probably switch to something else. I don't feel like Align is doing nothing, but I also feel like it could be doing more. I know I've heard people say there has to be a certain number of bacteria or something, but I don't remember what it was.
 
Anyone want to recommend one? I don't want to have to spend lots of money...I don't mind ordering it online. Diarrhea is my predominant problem, if that makes any difference at all.
 
Thanks in advance, guys!
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 30mg Prednisone (Tapering from 60), 100mg Imuran, Align, Psyllium Seed Powder, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention). 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/24/2009 7:32 AM (GMT -7)   
I take Primadolphilis Reuteri by Nature's Way. It was recommended by another member PB4. She has had better luck with it than I have with things such as helping lactose intolerance and vaginal health, but other than that I do like it. It does have to be refrigerated and has 5 billion CFU in it. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 12/24/2009 10:16 AM (GMT -7)   
SCD yogurt (if you can tolerate it), is a great probiotic. It is fermented 24 hours to convert all the lactose into galactose, which usually even lactose intolerant folks can take. My husband has 2 helpings of SCD yogurt every day + VSL3 along with the yogurt. VSL3 has 450 billion cfu, and is probably the most potent probiotic supplement on the market (but it is expensive, for 2 packets a day, it costs around $150 a month).

I put a lot of stock in fermented foods like yogurt, so I highly recommend taking the time to make the yogurt, if you can tolerate it. It also has the added benefit of being pretty cheap.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 12/24/2009 1:50 PM (GMT -7)   
*listens in* I've been wondering this too.
30/f
chronic active colitis/possible Crohn's - unspecified IBD
Lialda 2x/day
Entocort 9mg 1x/day
Darvocet or Tramadol as needed


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/24/2009 2:40 PM (GMT -7)   
Culturelle is the one that has the most research supporting its benefits, but the ones recommended above are all among the best.

tastroman
Regular Member


Date Joined Jul 2003
Total Posts : 45
   Posted 12/24/2009 2:47 PM (GMT -7)   
I have had good results using the CVS brand capsule form of acidophiles. It also needs to be kept refrigerated. It does little to help with my pain but has without a doubt helped with the frequency of my bowel moments.

GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 12/24/2009 3:28 PM (GMT -7)   
VSL#3 has the most different types of bacteria: 7 or 9 I recall.
Cimzia, Asacol


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/24/2009 9:48 PM (GMT -7)   
My doc suggested Flora-Q2 - it's pretty expensive (around $50 for 30). Apparently I can't live without it now. I tried going to Align and on day 5 had to go back to the Flora-Q2 because I started getting symptoms.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/25/2009 2:22 AM (GMT -7)   
If Align isn't work, and I'm really sorry to hear that, then you might look into Culturelle or VSL#3. I've heard great things about those two, but Align worked for my so I never had much incentive to try them out and see.

Best of luck in finding one that helps you!! It's great once you do.
Diagnosed with Crohn's in May of 2008.
Currently taking for Crohn's: Pentasa, omeprazole, Loestrin birth control, and Align probiotics.
Also taking Elmiron and RE Methylphen for Interstitial Cystitis.
bonniegriffith.blogspot.com/
"He who has a why to live for can bear with almost any how."


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 12/25/2009 8:42 AM (GMT -7)   
If you have a good prescription plan, you can get VSL #3 that way for a lot less money. I got a box of double strength VSL #3 FOR $24. That's a lot less expensive than if you purchase on the internet. I got the capsules there for ~~69 and they were single strength. Sometimes you just have to try several brands to see what works for you. Align did nothing for me, absolutely nothing. I think VSL #3 worked best for me.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/25/2009 4:07 PM (GMT -7)   
jeanneac said...
If you have a good prescription plan, you can get VSL #3 that way for a lot less money. I got a box of double strength VSL #3 FOR $24. That's a lot less expensive than if you purchase on the internet. I got the capsules there for ~~69 and they were single strength. Sometimes you just have to try several brands to see what works for you. Align did nothing for me, absolutely nothing. I think VSL #3 worked best for me.

Thanks for the tip! I will ask my doc to write a script for that stuff and see what happens.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14165
   Posted 12/26/2009 10:25 AM (GMT -7)   
I like dr ohhira but it is not cheap. I also like fermented foods and kefir.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
Christmas 09, Flare :(


penelope-marie
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 12/26/2009 11:38 AM (GMT -7)   
I am very interested in this, I use VSL#3 and its excellent. I have to say that the last batch was not as effective. It tastes different, not so sweet. also they have changed the packaging, its now easier to open but I wonder if there is a connection? Apart from that I would reccomend it
had crohns for 15 years took pentasa then nothing but diet but stricture appeared 3years ago and problems since.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 12/27/2009 6:31 AM (GMT -7)   
I use VSL#3 and its available as a prescritpion in the UK so we get it for next to nothing. Ithas 250 billion bacteria, the most of any. It is very very good.

Diagnosis Oct 07: Mild Crohn's Colitis. By the grace of God currently in remission. Current Medication: 1000mg Pentasa Tablets x 2 a day. VSL#3. Manuka Honey.


basil
Regular Member


Date Joined Oct 2008
Total Posts : 78
   Posted 12/27/2009 9:32 AM (GMT -7)   
I was curious about this too. To piggyback on this question, is there a difference as far as effectiveness between the VSL#3 capsules and the packets?

Post Edited (basil) : 12/27/2009 9:35:58 AM (GMT-7)


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 12/28/2009 8:11 AM (GMT -7)   
The packets I have are double strength with 950 billion bugs in it. I think the capsules have 450. You can get them online, just google it. If you can't get a prescription for it, it will cost more, like $65. I think it is good to get the pharmaceutical stuff because you know the quality control is there. Otherwise, it can be luck as to how much is in there. In the instructions of the VSL, it states that it is used to treat pouchitis and UC. I know when I had a specialized stool test, they said I had NO acidophilus bacteria. That sounded bad to me. Good luck.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/28/2009 2:27 PM (GMT -7)   
Just as a post note here. What works for someone, may not work for someone else. Please keep trying different ones until you find one that works for YOU. I have tried most of the ones listed plus PB8. Only Align and PB8 have worked for me. To the point that most made things worse and I had given up probiotics entirely and thought that they were a bunch of crap. But if you find the right one, it can make a huge difference. It also can take several weeks to notice any effect, so give each one a good month before you give up.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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