Having surgery the first of the year

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Regular Member

Date Joined Nov 2009
Total Posts : 380
   Posted 12/24/2009 8:11 AM (GMT -6)   
I am new to the forum in the past month. thanks to all for the great support. I have had CD for about 13yrs and was on maintence meds with only anemia as my main problem.  then in oct i had a blockage.  I had been moved to cimzia about a year ago as the dr. saw dramatic inflamtion when he did a colonoscopy.  Spent 6 days in hospital. started back home with prednisone and Dr. wanted to try remicade.  have had 2 treatments, but have had two bad flareups in the past 3 weeks-nausa, throw-up, pain, feeling run down and just plain sick.  interestly, i do not get the dreaded "d" much, just everything else.  the flareups seem to be getting closer and closer together. 
Dr. sent me for another CT scan this past monday. it showed that the two spots that are very narrowed have not gotten any better and he feels it will not.  In fact they got worse while on Cimzia and the remicade is not helping, he says we need to remove it via surgery. i am on basically a liquid diet and some soft foods hoping to not have another blockage during the holidays. Set to see him and the surgeon Jan 6-both are out until Jan 4th.  I am set if need emergency care- dr and surgeon taken notes to team in their groups and we are set as to which ER to go to. 
I do have 3 complications for my surgery. 1) my intestinal track is backwards from most people-a condition from birth. all this means is no laproscoptic surgery. and 2) i had adominial hernia surgery 6 months ago where they place a mesh in th tear and they have to undo that to do the resection.  so the surgery and recovery will take longer. 3) I take 5 different high blood perasure meds.  this makes balancing all the meds difficult due to drug interactions. In fact at my hernia outpatient surgery, it took me 4 hours to wake up in post op. they were ready to admit me to the hospital.... ugh. 
I am ready to get this over.  The past two times i had a flareup I was getting ready for a work trip and had to cancel. further more, I was on a work trip when i had a flareup right after the hospital and had to sit in the hotel room for two days-the bad thing it was my meeting i called with my team from all over the country. 
I will update you as we go along

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/24/2009 9:22 AM (GMT -6)   
Good luck with your surgery. You are going to feel so much better afterwards, so keep that in mind. Yes the recovery will be a little rough, but they give you good meds to ease your pain. I will hope and pray that this leads you to a long long remission. Remember to get on and stay on some type of maintainence med afterwards to avoid a repeat of all this.

Good luck
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 12/24/2009 10:47 AM (GMT -6)   
I was in a similar situation; couldn't eat, lost a bunch of weight. Basically wasn't living much of a life. Had open surgery Monday, and it hasn't been as bad as I imagined it might be. Pain meds do a great job - if you're ever hurting ask for more/better drugs and you'll get them. Surgery-wise, I'm not sure about what complications may arise due to your unique situation but I;m betting your surgeon has seen similar cases before.

Best of luck.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/24/2009 11:48 AM (GMT -6)   
Good luck with your upcoming surgery, I hope it gives you a long remission.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Nov 2005
Total Posts : 174
   Posted 12/26/2009 6:47 PM (GMT -6)   

Good luck with your surgery and I hope you have an easy recovery and a long (hopefully forever) remission.

My daughter had surgery almost 5 years ago and felt, in her case, it gave her her life back.

Good luck and please keep us posted.


Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 12/26/2009 7:12 PM (GMT -6)   
Surgery is such a scary word. I spent years fighting the surgery aspect. Now I wish I'd done it before it was too late.

When I finally had surgery the whole colon got taken and rectum with cancer removed. So good for you for listening and going forward.

Best of luck with it all.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

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