I'm new here:My doc says it's IBS..probably..but are these symptoms IBS?

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Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 12/24/2009 10:11 AM (GMT -7)   
IBS..Crohns...Gluten Sensitivity... WHAT is the difference??

I was tested for Celiacs but is believed to be IgA deficient while my IgG antibodies score off the charts for Celiacs, but for some reason doctors don't really think anything of the NON-existant corralation between the two... so I decided to get off gluten a year ago and my chronic migraines went away and just come around once a month for the most part, but not every single freaking day like they used to. Now since I know what has gluten, I can go out to eat and not get immediately sick. However..even over the last three years I started noticing razor blade feeling in my stomach--always there on the right side when docs push down..and my right SI joint started to hurt, even though I go to chiropractor frequently for the last 5 years.

Only the migraines and stomach cramps from eating gluten went away... Oh, and I was diagnosed w/osteopenia two years ago after they saw that my VIT D levels was 11.

STILL my symptoms are:

Low Vit D even while on 2000 daily--it's about only 38
Low iron--almost anemic
low B12
Razor Blade pain ranging from 0-Unbearable! Esp in the mornings
constipation--I take basically colon prep in a capsule complimentary of an old Naturopath doctor
-NOW I'll get constipation, feeling like my insides will burst open w/razor blade slicing thru every which way and then get diarrhea after the hard stool moves by and then w/the loose movement sometimes it feels like acid is coming out and buring the crap out of the tissue down there and it swells at exit site. (GI says acid doesn't come out that end, but then what's that fire pain?)
-Tuesday morning the pain hit so bad--just SHOCKING pain slicing thru my whole lower area and once it dropped to an 8 I was able to, while doubled over, get to my purse and pull out the little pill of Bentyl and then make it to the bathroom and force out hard stool, and then the next three movements in the next hour were very soft.... the last one had... mucus(?) all in it. MUCUS--what the heck does that mean??? WHY?? Wednesday better, but then this morning, I just opened my eyes from sleep and BOOM! Stomach started moving and here the blades a come and rolling!

-I make coffee in the morning cuz it helps get the constipation moving out faster in the morning=better morning/day.
-also I think I finally figured out why I can't eat my FAVORITE food--mashed potatoes. I read that starch contains Amino fatty acid..6 or9..which is a pro-inflammatory (sp)...while Amino fatty acids 3 are anit-inflammatory.

Two weeks ago I went to talk to GI doc about possible Crohns... he says I should be having diarrhea all the time, not so much constipation...but that he'll do a colonoscopy in March. ***last time I tried colonoscopy I was gagging so bad to the FLeet that I was going to be throwing it up so they decided to just do endoscopy to rule out Celiacs. I want this colonoscopy so bad...but am worried that my body won't let me drink it. Anyway... you think colonoscopy will prove the GI right that it's just IBS?

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 12/24/2009 11:01 AM (GMT -7)   
First off...sorry you are in so much pain..and welcome to our forum here.
 
Second, I would definetly recommend a colonoscopy.  Contipation can be a side effect of Crohn's.  You may also have some sort of blockage or stricture.  Do worry about the prep so much.  Ask your doc for the Miralax prep...it is tastless.  Seeing that your B12 is low you may have Crohn's in your illium as well as other areas of your intestines.  I wouldn't wait until March though.  If your doc won't do it now, go see another Gastrointerologist and have them do it.  They may also do a CT scan and MRI. 
 
Feel better and let us all know how it turns out.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/24/2009 11:21 AM (GMT -7)   
Hi and welcome to Healingwell. First off your doc is wrong, not all Crohnies have diarrhea, I suffer with more constipation. So much so that I have to take stool softners nightly in order to keep things soft and easier to pass. I hope you can get into a real GI soon and figure out whats going on with you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 12/24/2009 12:00 PM (GMT -7)   
Thanks guys!! Gail--i take 3 capsules of a mixture of magnesium citrate ever night too--for the same exact reason... but I'm thinking I may need to take 4 now. What stool softeners are you taking and how much? the stuff I buy from the naturopath doc is super expensive because their private 'pharmacy.' So when the razor blade pains hit--are those CAUSING the inflammation or an effect of inflammation? I wonder if I should take the bentyl pill even if i'm having light razor pain--If the pill stops the pain AND damage then I should always take it even if the pain is light, right? I'm just so tired of taking so much crap. I also just got off of strong antibiotics to help deal with intestinal bacterial overgrowth--to stop the bloating..but I still bloat just same, all the time, so I don't think overgrowth is a problem and I am now wondering if it was the antibiotics that set off tuesday's and today's pains.

I am very thankful for this forum! I think GI docs should log in here and learn about the daily lives of ppl who are suffering and refer to their stories rather than what they learned as "fact" in med school. They think they know exactly what should be felt and what shouldn't and then look at you like your crazy for even suggesting crohn or gluten intolerance. lame.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/24/2009 1:11 PM (GMT -7)   
Hi Ouch...sorry you're suffering so much...here's a link from the CCFA about the differences between IBD and IBS....I hope you find it helpful...You'll have to copy and paste the link into your search engine to read it though.


http://www.ccfa.org/about/news/ibsoribd



;)

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 12/24/2009 1:12 PM (GMT -7)   
I think you should get a colonoscopy and find out for sure so you can get some treatment and relief. I'm so sorry you're not feeling well! It can be so challenging. For me it took a little awhile to get a diagnosis because like you, I didn't have the big D as a primary symptom. I also had unbearable lower right side pain. It's possible to have both IBS and crohns... the difference I believe is that crohns can cause permanent irreversible damage. Anyways good luck and I hope you get feeling better soon!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/24/2009 3:08 PM (GMT -7)   
I want to caution you about the dangers of overuse of laxatives. This alone could be the source of many of your problems - including constipation. Have a look at http://en.wikipedia.org/wiki/Laxative especially near the end of the page under "laxative abuse" and http://www.uihealthcare.com/topics/digestivesystem/dige3508.html

You will need to have some guidance in tapering off laxatives and substituting less damaging ones (temporarily?) for your current approach. Talk to your doctor.

You should get a colonoscopy to check on what is happening in there. You may have diverticulosis (can result from chronic constipation) or any number of problems, including Crohn's. You can't do anything without knowing what is causing the problems. Your pain issues should make getting a colonoscopy more urgent. Ask about getting in sooner than next March.

Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 12/24/2009 4:16 PM (GMT -7)   
I can't get it sooner. They are booked up and on Dec 31st I'm having surgery and need about six weeks to fully recover before colonoscopy. :D

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 12/25/2009 8:53 AM (GMT -7)   
I was terrified to get a colonoscopy b/c of the problems I had but it went fine. Magnesium can give stomach cramps. Also, you may ask for the serological IBD panel if you have good insuarnce, that's a blood test for UC and crohn's. It is suspicious that all your vitamin levels are low. Sorry you are in so much pain. I hope you get an answer soon and get this resolved. The pain is no fun! Also, you may want to try some good probiotics for the bloating. Read up here and see which one you want to try.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/25/2009 9:13 AM (GMT -7)   
First off Keeper, stool softners are not laxatives, and I have my GI's okay to take these. Stool softners ARE NOT laxatives. They just draw water to the stool to help make them softer and easier to pass.

Ouch101 I take a generic stool softer called Docusate Sodium USP 250 mg. Brand name would probably be Colace. Again these are NOT laxatives, but just soften the stool. And for the cramps don't suffer, use the Bentyl to help when needed.

And yes the colonoscopy is usually the one of the best tests to diagnose Crohns. Make sure the doc does biopsies. Just push thru the prep, its not pleasant, but its necessary. Its the worst part of the colonoscopy, the prep. But you are sedated for the scope and its over before you know it. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/25/2009 9:16 AM (GMT -7)   
Oh by the way there is a difference between IBS, Crohns, and Celiac. IBS is a functional disorder that can be cured by changing your lifestyle and diet. Celiac is a condition that you cannot tolerate wheat/gluten. And Crohns is a chronic and incurable inflammatory disease. I hope your tests finally give you the answers you are seeking. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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