Crohn's and Total Colectomy

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Regular Member

Date Joined Aug 2009
Total Posts : 20
   Posted 12/26/2009 5:30 PM (GMT -6)   

about a year ago, my husband had a partial colectomy due to a perforation relating to his crohn's disease.  We're considering having another surgery to remove his entire colon and HOPEFULLY be done with this awful disease.  Although he has Crohn's all of his symptoms have always been in his colon.  He's never had any issues with his small intestine or stomach. 


For people who have had a total colectomy, did the disease go away?  Or did it begin to attack your small intestine as well?


I know the disease is very individual, and we plan to ask him GI and surgeon, but I thought it would be nice to get some opinions from people who have already been through it. 



Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 12/26/2009 7:00 PM (GMT -6)   
If he is dx'ed with Crohn's then I would not go on the assumption that the surgery will rid him of the disease, unfortunately.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

Regular Member

Date Joined Mar 2008
Total Posts : 134
   Posted 12/26/2009 10:24 PM (GMT -6)   
Hi!  I have Crohn's in the colon only as well.  I haven't needed surgery, but my understanding is that the disease can go anywhere in the GI tract from the tippy top to the final end.  If the colon is removed, it can go elsewhere, but I would still get the surgery so you can feel better.  First things first.

Regular Member

Date Joined Apr 2009
Total Posts : 382
   Posted 12/27/2009 1:54 AM (GMT -6)   
if you go by the assumption that CD is infectious (ie from mycobacterium avium paratuberculosis, E. Coli, or something else), it seems like you would probably get drastic improvement by removing the colon. you are removing the nidus of bacterial infestation, which is the source of migration into the small intestine. i wish you good luck
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade since 6/09
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 12/27/2009 11:57 AM (GMT -6)   
There are no absolutes with any disease. Good luck.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/27/2009 1:37 PM (GMT -6)   
Crohns has no cure, not even thru surgery. Crohns can appear anywhere from the mouth to anus. Usually the Crohns reappears at the reconnection site. I have had this darn disease for almost 35 yrs, had 2 bowel resections, and still have Crohns Disease. can help you to get feeling better. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

not creative
Regular Member

Date Joined Mar 2007
Total Posts : 466
   Posted 12/28/2009 1:10 PM (GMT -6)   
Here's my take since I'm in a similar boat- though I havent had any surgery yet. Yes, the disease can reappear anywhere but the there's no reason to believe the chances of it showing up somewhere else wouldn't be the same if you didn't have the colectomy.
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Three abscesses that are now fistulas, with three setons!
On: 6MP, Zoloft, Cimzia (working so well, I'm on Miralax too!), folic acid, b12
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction

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