In hospital need to hear from experienced folks

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buttholesurfer
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/28/2009 7:31 PM (GMT -7)   
Hi im in the hospital right now Merry Christmas! scheduled for a colonoscopy 2 days after a major flareup that put me in the emergency room on Christmas. im quite hesitant to have this procedure performed right after the flareup because of possible complications if they were to accidentally perforate the colon wall while my insides are still so raw from the flare up not to mention the unexplained infection i had which has my fevers up to 104 and down to normal for the first time today, any suggestions past experiences or educated opinions would be really helpfull. i am really curious about any tests that might supplement for a colonoscopy which isnt so invasive and possibly harmful in the early stages of recovery. or does it even matter? thanks for your help in advance

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 12/28/2009 7:39 PM (GMT -7)   
I'm so sorry you have to spend time in the hospital on the holidays :( Blah... I've actually never been in your position so I can't speak to any useful advice or suggestions.
Just wanted to say that if you like the band Butthole Surfers thats awesome
Also feel better!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 12/28/2009 8:02 PM (GMT -7)   
I have had two colonoscopies while in a severe flare, in my rectum no less. GI's do them all the time, and the likelihood of perforation is very slim. It is often really helpful to have the colonoscopy, so that they can determine what is happening. In my case I was bleeding a great deal and needed to find out why. Only you and your doctors can determine if it is important in your case, but I would not worry too much if they are recommending the colonoscopy. You will likely have a sedative and/or pain killers so the procedure will be painless. The worst part is the prep while you are flaring, so be aware of that and ask them for something that does not require endless drinking. Others on this site can recommend prep stuff to you. I can't remember what I had.
44 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March this year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 12/28/2009 8:09 PM (GMT -7)   
When I was in the hospital last month they did a CT scan and then another one, no colonoscopy. I can't be 100% sure why they did one and not the other though.
35 year old Female

Entocort EC 9mg per day and Remicade

Tried Remicade 2 yrs ago for about a year and a half and loved it, got off it due to costs, tried Humira and it just didn't work for me so now back on Remicade.


~Trying to avoid surgery as long as possible~


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 12/28/2009 8:25 PM (GMT -7)   
I had two scopes, two days in a row in the hospital. They were in there to stop heavy bleeding, and I was in a major flare. Not my favorite time to have a scope, but sometimes it's needed. Seems a lot of us don't find out what's even wrong with us, until they get in there when things are active.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 12/28/2009 9:43 PM (GMT -7)   
My husband went through two colonoscopies while during a pretty bad flare. Both went ok. These colonoscopies were done because my husband did not yet have a diagnosis of crohn's. The first colonoscopy established that he had a bad bad bad case of inflammatory crohn's, and the second was useful to see that there was some healing from the Remicade. Both times, the doc did not finish the colonoscopy. He stopped where the inflammation was really severe to avoid a perforation.

Trust your doctors to take care of you. Knowing how bad the inflammation is, can help figure out the course of treatment to take.

I hope things get better for you soon.

Hugs,
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


buttholesurfer
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/28/2009 9:51 PM (GMT -7)   
thank you for your quick responses! my father had a colonoscopy for diverticulitis and they perforated the wall and he almost died, and from what ive learned from doctors with an infection present it is even more difficult to mend such a mistake, this is why im mostly concerned

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 12/28/2009 10:00 PM (GMT -7)   
My husband had c-diff infection in addition to the crohn's, and they did 2 colonoscopies anyway - because they needed to figure out if it was the c-diff causing all the problems, or the crohn's. A perforation is definitely a risk, but we trusted my husband's GI to know the limits. My husband spent 45 days in the hospital getting diagnosed and treated for both crohn's and c-diff, and was on 120 mgs of solumedrol, and vancomycin and flagyl, and to this they added the remicade, which finally got him healing. So, it was definitely risky. But we know my husband's GI to be very cautious, and he we know he wouldn't push his luck in terms of the colonoscopy (ie. he wants to see what's going on in there, but a peek is good enough, he wouldn't try to go all the way through if the inflammation was bad).

Discuss it with your doc, and see what he intends to do. I think he's just going to see how bad the inflammation is, to see how you should be treated. But if you don't fel comfortable with it, you should be able to just tell him to first get you feeling a little better before going in for the colonoscopy.

That's the best you can do.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 12/28/2009 11:48 PM (GMT -7)   
Hahaha... buttholesurfer!
Cimzia, Asacol


mthboards
New Member


Date Joined Dec 2009
Total Posts : 18
   Posted 12/29/2009 1:21 AM (GMT -7)   
I have been in the hospital almost every winter, this is the first winter im not.
If you are not on your death bed I would wait till the swelling goes down.
There going to give steriods, antibiotics and maybe an anti tnf drug.
Start taking vitamin D3 right now, NOT just regular D because that is the synthetic form.
6 months ago I was bleeding so bad about a quarter cup of blood a day my ass was so inflamed.
I was about to go to the hospital once again.
So I took 10000 iu a day of vitamin D3 and all bleeding stopped in 3 days.
Dont ask your doctor about this, go online and read about it youtube has tons of info on there about it
Your doctor will just say thats to high of a dose or it wont help, its a bunch of bull crap.
Remicade is one of the best drugs that works for crohns and vitamin D3 works even better than that for me.
I went off all drugs in less than 2 weeks, I was on them all my life.
 
4. Use good judgement.  NEVER rely on information or opinions exchanged via the forums or chat rooms to replace necessary, personal consultation(s) with qualified health or medical professionals to meet your individual health or medical needs.  Remember that what's right or has worked for one person may not be what's right for you. 

Post Edited By Moderator (Nanners) : 12/29/2009 9:07:12 AM (GMT-7)


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 12/29/2009 6:29 AM (GMT -7)   
I can't offer you any recent experience, but I do know that I had a scope not long after a perforation already happened. I had ruptured myself, then had the resection, then they did a follow up scope not long after. I had no problems with my scope.
I hope that give you some peace of mind. Hope you have a better New Year!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

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