happy newyear and yet another line

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randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 12/29/2009 1:59 AM (GMT -7)   
ok so who has been thinking the bad thoughts? hmm? HMM? i want to know!  my brand new 7 day old line has a hole in it.. yep you read right my new 3000 dollar line has a freakin' hole. so now i gotte go back to seattle and "see" if they can fix it when the fix it kit gets here from the east coast .. and if not replacement is in my future. im done, im done, stick a fork in me , im donemad
randynoguts 



     http://www.geocities.com/randynogutsweb/


HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 12/29/2009 6:25 AM (GMT -7)   
((Randy))) I wish I could reach through the computer and help. Please keep positive thoughts if only to keep your spirits up. I will be thinking of you
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3110
   Posted 12/29/2009 6:29 AM (GMT -7)   
sending cyber ((((HUG))))

Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 12/29/2009 7:58 AM (GMT -7)   
Dang it Rando, didn't it come with a warranty,,,12 months or 30000 miles or something ???? I think I would take my body to another shop if this was not a free repair. This sucks big time. Maybe you can get it replaced with 8 ply...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 12/29/2009 8:06 AM (GMT -7)   
Man, Randy!!! Hoccum you so always gotta do things the hard way?? nono I sure am sorry to hear about this latest!! shocked Check around maybe you can join a class-action lawsuit against the manufacturer?? devil
 
((((hugs)))) yeah

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/29/2009 8:43 AM (GMT -7)   
(((Randy))) Sending healing hugs your way, sorry you have to go thru this mess.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

meshice
Veteran Member


Date Joined Jan 2003
Total Posts : 734
   Posted 12/29/2009 12:06 PM (GMT -7)   
Hang in there Randy - sending prayers up for you!
"We can't beat this disease, YET, but we can't let it beat us!"
Mandy

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/29/2009 2:45 PM (GMT -7)   
Randy..dang i am so sorry plz do keep us posted will ya..does it ever let up fer ya friend..huggles..lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                             No BETTER GIFT than FRIENDS N FAMILY                                               
                            Happy Holidays from my home to yours
                              
 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 12/29/2009 5:28 PM (GMT -7)   
Randy you have to stop chewing on the line like a puppy! I agree with Sniper about a repair shop. Maybe a drive in shop (although hospitals are getting that way now) and you can eat stale donuts and drink bad coffee while you wait.

Where is the hole? And what the heck is this "repair kit" I am envisioning a sealing patch like you use in tires or air mattresses.

I hope you are comfortable and this hole isn't causing you any pain. This all just really sucks!! Please please insist on a multitude of pain meds this time, unlike last time (I'm still having nightmares). I'm praying this will be over, done with, and behind you very soon and you have a much, much better New Year!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/29/2009 9:23 PM (GMT -7)   
well its looking like thursday if the kit gets here on time.. if not it will be monday now cause of the holiday...

the hole is apinhole about an inch from the tip where i screw on my tubing for my TPN.. its a soft silicone rubber type tube.. as for the fix it kit? i got no idea but will report when i see it.. i would think its some sort of goo that melts the silicone and apatch will be adheard to it.. , yes like a tire tube patch i guess. or a section could be cut out and anew tip inserted and glued in place? it will be interesting for sure...

oh yeah it gonna be warranty work sniper!

most of my tubing and stuff for IV use is made in the dominican republic. so whom could i sue? cant sue the VA or government ya know.. shades of government health care ? hmm.
randynoguts 



     http://www.geocities.com/randynogutsweb/


humboldtmom
Regular Member


Date Joined Jun 2003
Total Posts : 280
   Posted 12/29/2009 9:52 PM (GMT -7)   
Gosh Randy, you've sure been having a tough time. I really hope the tire patch works, it's definitely time for things to start going right.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/29/2009 11:05 PM (GMT -7)   
Randy, is this pinhole on the part thats outside? Maybe they can splice it out. I am sure were it not for the pain involved you would want a new one but in this case a good hotpatch may do the trick. Hope all goes well and dont forget to get the extended warranty ...Parts and labor
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/30/2009 2:35 AM (GMT -7)   
yeah sniper, its about 8-9 inches on the outside.. so easy to get to. the problem is that with the hole its not sterile. luckily i have a dual lumen line so i can use the red side till i get it fixed.. but it makes me wonder if there are anymore holes on the single tube inside right? then the TPN is leaking out in the wrong spot and can damage the vein. we shall see,i guess.

Hmom, yeah im thinking a regular tire patch may work if i trim it down! :0)
randynoguts 



     http://www.geocities.com/randynogutsweb/


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 12/30/2009 6:37 AM (GMT -7)   
Yes, I was just thinking of the stuff I used to repair my bicycle tubes. I bet you when you get the kit it's going to look exactly like a bicycle tube repair kit with patches and rubber cement (except selling for $100 instead of $5.00). Probably made by the same manufacturer, too!

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 12/30/2009 7:55 AM (GMT -7)   
I think Writer is right -- they are probably ordering a tire patch kit from a bike repair store. But under our highly efficient government health care it will cost U.S. tax payers $123,357,679,745,666.99. Each.

I was thinking duct tape (which binds the universe together) might do the trick to seal up that hole, but I'm not sure how sterile it is. Please tell your doctors all of our DIY suggestions, and then find out how much their "kit" actually costs.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/30/2009 5:00 PM (GMT -7)   
I too was thinking bout that there duck tape.........hope this is fixed b real soon randy
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                             No BETTER GIFT than FRIENDS N FAMILY                                               
                            Happy Holidays from my home to yours
                              
 


meshice
Veteran Member


Date Joined Jan 2003
Total Posts : 734
   Posted 12/31/2009 1:46 PM (GMT -7)   
When I had the open fistula from my gut to my abdominal wall - My dad told me he would shoot it full of JB Weld to fix it. Mechanics always have something to fix a hole! Maybe that would work for your line.
"We can't beat this disease, YET, but we can't let it beat us!"
Mandy

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/31/2009 8:54 PM (GMT -7)   
Randy, no-one needs to stick a fork in you yet because you ain't done yet hon. Happy New Year x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 12/31/2009 10:52 PM (GMT -7)   
Randy you are the bravest person I know. Please back away from the forks for all our sake. We need you, your guidance and experience and your tremendous wit!

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/31/2009 11:25 PM (GMT -7)   
im glued! im blued and maybe tattooed?

well the fix is in so they say.. well its done anyway, whether it worked or not wont be known till i hook up later, and see if i awake in another puddle of goo!

for those that are interested, the repair piece cost 180 dollars, thats all they could tell me. they could not say about the instalation as they dont keep track of stuff like that..but figure 1 dr, 2 techs and a nurse, a sterile room, a sterile drape and prep etc...

the line was cut about 2 inches out of my chest. the repair piece consisted of the main line and the split into 2 lumens with new caps etc.. after the line was cut the new portion was inserted like a hose repair piece. it had little serated edgesto grip the interior of the old line. then the ends were glued and a clear piece was slipped over the junction and glued in place.

this was the first repair of this type of line they had done.. they were reading the instructions as they went!.. so at least i can claim- im number 1 !!.

the whole thing took maybe 1/2 hour , from prep to being done.. it was interesting. another first for me i guess..

so heres looking for a whole new year .......i hope.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/1/2010 6:15 AM (GMT -7)   
Glad your put back together, I hope you have a better year.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/1/2010 8:58 AM (GMT -7)   
Sending healing prayers your way that this one works. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 1/1/2010 9:46 AM (GMT -7)   
Leave it to you, Randy! Tell them about the bicycle tire patch kit and how much cheaper they are. Maybe you'll save the next guy your type of patch and you can remain the one and only!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 1/1/2010 12:47 PM (GMT -7)   
Think of all the help you are to the medical profession by giving they someone to practice on. Your like the test pilot for the TPN flight crew. Hope the fix holds up but if not call me and I will come up and put a good pressure wrap and heat shrink on it for you. 31 years of keeping water out and nitrogen inside phone cables should help keep TPN in a tube. Big plus is with a phone man,,,you get a ding a ling .....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 1/1/2010 4:37 PM (GMT -7)   
actually sniper, i thougt it might be some sort of shrink wrap .. i mean if the had the same type material that could be heated a bit and shrink to a airtight fit, why not? but i suppose ill have to stick with pieces and glue.
randynoguts 



     http://www.geocities.com/randynogutsweb/

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