New here.... but NOT new to Crohn's & it's additional symptoms

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tboy007
New Member


Date Joined Dec 2009
Total Posts : 6
   Posted 12/29/2009 11:04 AM (GMT -7)   
Hello everyone.
I just discovered this forum while doing my occasional research on Crohn's to see if there are any new treatment options.

So, I figured I would join & make friends with other folks like me, who live with the never-ending excitement & unpredictability associated with the condition!!
tongue

I'm 39 & was diagnosed almost 6 years ago, although looking back I realize I've had it for MUCH longer but never knew it.
All the descriptions of cramping, diarrhea, multiple trips to the bathroom, hemorrhoids, anal skin tags, etc. are things I can relate to.

I've been watching my skin tags grow for the past 12-15 years. They started as one small single little tab... barely noticeable; and have become a rather large family of them. (both in qty AND size).
Sometimes I wonder which I dislike more..... the extra flaps hanging around, or the "surprise attack" when I'm out & about, that makes me run for the nearest restroom in a panic! LOL!!!
I'm sure a lot of you know exactly what I mean huh?!

Anyway, That's it for now
I look forward to chatting with you all & sharing new info or experiences.

Thanks!!

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/29/2009 11:48 AM (GMT -7)   
Hi there and a warn hw welcome to you...this is by far imho the greatest support system and place to get /exchange info with other crohnies.....i have been around for awhile now and hv made some fantastic friendships here like i said the support n comaderie is second to none..i hope you will continue to post and i see you do hv sense of ha ha thats a need for sure with thid dd..take care post again......lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                             No BETTER GIFT than FRIENDS N FAMILY                                               
                            Happy Holidays from my home to yours
                              
 


tboy007
New Member


Date Joined Dec 2009
Total Posts : 6
   Posted 12/29/2009 11:58 AM (GMT -7)   
Hey Howlyncat!
Nice to meet you! :-)

Yes I DO have a sense of humor.... I think that has been one of the most helpful things in dealing with Crohn's.
Although, it took a while to finally be able to laugh about it...

I also noticed that this DOES seem to be the largest support forum by far! This section has more topics/posts than any of the others. (with the UC forum a close 2nd).
So I definitely don't feel all alone!!

Thanks for the warm welcome!!
It's nice to chat with some fellow chronies... most people don't really understand what it's like.... even when you describe it to them.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/29/2009 1:24 PM (GMT -7)   
Thats exactly what drew me and kept me here within the supportive family we have ..there is no embarrassment at all you can ask just about any question n sure you will get an answer..STAY with us see for yourself......tk care ...lyn

LOL......got to say i know those SURPRISE ATTACKS all too well yeah


                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                             No BETTER GIFT than FRIENDS N FAMILY                                               
                            Happy Holidays from my home to yours
                              
 

Post Edited (Howlyncat) : 12/29/2009 1:27:17 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/29/2009 11:40 PM (GMT -7)   
I hate my anal skin tags too...infact that is how my disease started, not internally but instead with the perianal crohn's skin tags which every doc told me were hemheroides but of course were wrong...it was about a yr and a half after i had my first baby that they got completely out of control with alot of pain. I went in for an emergency hemheroidectomy (had them banded) then I started having frequency of bowel movements (still formed though) and then the urgency got worse and then came the D...crappy disease...I agree with you tboy, I don't know which I hate worse either the painful, large and many anal skin tags or the uncontrollable urgency (and frequency)...probably hate them all the same LOL! I sure am sick of this disease almost 19 yrs later now (at least that's how long it's been affecting me internally, externally with the tags started in my teens but absolutely no other symptoms until shortly after having first baby in my early 20's).

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/30/2009 2:21 AM (GMT -7)   
Hi and Welcome, Yes I also agree this is the best place for support for our CD. there
are alot of nice people here.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 12/30/2009 6:32 AM (GMT -7)   
Hi tboy...another tag person here. I like your description of a family of tags. I too started with one tag that got very large right before my ileum ruptured. They just kept multiplying since then. I'm afraid I can use them to count on instead of fingers and toes soon! :-)

My one GI looked at it this way...they are a good indicator of your disease activity at least. he was always the optimist!

depends which day you talk to me which part of CD I am most tired. Today it is the tears at the bases of my tags. Tomorrow it may be the exhaustion. I guess the thing this forum taught me most is that everyone has it worse at some time and it is good to be around people who can laugh at poop accidents!

Welcome and join in the fun!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


tboy007
New Member


Date Joined Dec 2009
Total Posts : 6
   Posted 12/30/2009 8:45 AM (GMT -7)   
What's interesting to me is that Crohn's is a little different for everyone who has it.... yet we all seem to have most of the same experiences at one time or another.
It's like the condition is uniquely tailored to each person in some special way, but also combines the most common issues & difficulties which allows us all to relate to each other.

I remember the first time I noticed something wasn't quite right, and I had severe stomach cramps like I'd never had before. Then everything was normal for a while, before it made it's next appearance. Eventually those in-between days were fewer & fewer, until it finally decided to stick around all the time.

I hate to say it, but I've actually gotten used to the craziness.... it's just part of my everyday life. And I REALLY appreciate those days when it takes a break & gives me a little peace!
** If "regularity" is signified by how often you use the restroom, then I REALLY AM just a "regular guy".

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