new year. new diet.... maybe.

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amytupelo
Regular Member


Date Joined Nov 2009
Total Posts : 38
   Posted 1/2/2010 3:39 PM (GMT -7)   
i think i am finally ready to make a change in my diet.  i eat A LOT of sugar and other carbs.  and since my major prob lately with my CD/IBS is abdominal pain (no diarrhea), i think my diet may have a lot to do with it.  another pharmacist i worked with once recommended a book to me called The Anti-Inflammation Zone.  i bought but have never read it - have any of you read this book?
 
I also know many people on here have had success with the Specific Carb. diet, i had a dietician suggest this for me once.. but i can never stick to any kind of diet.. i'm just so tired and my stomach hurts and its so much work to cook for yourself, especially when you work 10hr days....  excuses excuses excuses
 
i wish good health were enough motivation for me to make and keep some positive diet and lifestyle changes.  so maybe i can make a new years resolution to get off my butt, quit wasting my gym membership, and cook some good food for myself. 
 
also, does anyone use coconut oil? i read a lot about it a few years ago and bought some.. but of course, did not keep using it.
 
i just started taking align, and really need to go buy some more EC fish oil.. i think i've been out of it for 5 months.
 
would love to hear everyones feedback on diet and supplements - any suggestions or motivational words are welcome!
32/F
crohn's terminal ileum - 11 years
pentasa, entocort 6mg, b12, align, canasa
allergies: remicade, imuran, 6-mp, cipro, levaquin


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/2/2010 6:08 PM (GMT -7)   
I've followed SCD for a little over a year now. It's done so many good things for me, I'll never go back to eating the way I used to. I really have a sweet tooth too, but I keep track of my carbs so I don't overdo it. I can't say I'm a big fan of cooking, but I do like the food, so that helps somewhat. I just kind of force myself to cook, and often make big batches of items to freeze so that I don't have to cook as often.

For probiotics, I just eat the SCD yogurt. I do eat coconut oil. I just eat it off the spoon, because it doesn't taste bad. Make sure you get virgin coconut oil. I also take 3 kinds of fish oil (salmon oil, cod liver oil, and sardine/mackerel/anchovy). A vitamin D supplement is also very good, because most of us are deficient. I started taking Coq10 recently, and feel it has helped my energy a little bit.

I feel so much better then I did a year ago, so it's all been worth it. Just getting my fistulas healed up is motivation for me to keep at it!

Good luck!
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 1/2/2010 8:42 PM (GMT -7)   
Changing my diet was the ONLY thing that helped me get well again after 8 years with UC symptoms. Coconut oil is a potent antifungal, lowering carbs (sugar/grains) starves fungus, so for those whom this kind of diet has helped, fungus is probably a culprit. Fungus can be brought into your body through antibiotics, eating foods containing mycotoxins (fungal poisons) like grains like wheat, corn, mushrooms, cheese, alcohol, eating sugar which feeds the fungus, or living/working in a water damaged or moldy/mildewy environment. It doesn't hurt to change and try altering your diet. Many have been helped. Diet change may not be enough. Antifungals are sometimes required depending on your severity of the disease. Natural antifungals( caprylic acid, olive leaf extract, apple cider vinegar, coconut oil) can be bought if your doctor won't provide an antifungal prescription. Keep taking those probiotics.

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 1/2/2010 9:15 PM (GMT -7)   
I was just diagnosed with CD in November.  Instead of go on drugs right away, I used the disease as a motivation to change my diet first.  I feel fortunate that I didn't give myself any choice, which has given me the determination to stick with it so far.  I always needed, before the diagnosis, my coffee in the morning and oftentimes needed a bite of sweets at night.  I didn't eat a lot of junk, but did like certain starchy foods.  I first started with Jordin Rubin's diet in "Restoring Your Digestive Health."  Now, I am on the SCD.  As to how I'm doing:
 
I feel pretty good.  My constipation has finally cleared up (I've never had the CD diareaha that most people seem to have).  I don't even think twice about not having a brownie or something like that when I bake them for my family.  The ONLY cheating I did was take a small taste of the cheesecake I made for Christmas (basically, I licked the spoon).  I make a bit pot of chicken soup, and have that constantly in my fridge.  I eat that at least once a day (lots of good veggies and natural anti-inflammatory things in there).  I also eat a lot of yogurt and berries, but I don't eat enough veggies and meat.  I am still in the exploratory phase, where I'm adding new foods and seeing how my stomach handles it.  Too much gas=not good for my system.  I have virtually no pain, minimal gas, and NO diareaha.  I don't know what difference it might make on my insides, but outside it is making me feel great!  Also, my skin is the best it's ever been (family has commented on that :). 
 
I'm no gourmet chef, but I found the recipes in the SCD diet easier to do than in Rubin's books. 
 
I have a family member with terrible IBS.  He knows some of his triggers, but still partakes at times.  He hates the way it makes him feel, but he can't seem to not eat them.  He loves the determination I have, and wishes he had it.  But, he's not sick enough of his symptoms to change, yet.
 
For me?  I only gave myself this one shot.  I figured if I can't fix my diet, I'll always be a slave to the drugs (that's how my brain needed to think of it).  I didn't want that.  I'm only 35, with two kids ages 6 and 7.  I want to be HEALTHY for me, and for them.  When they are grown, then my body can fall apart.  But not right now.  So, I am on the restricted diet, and following it very well, and will reevaluate drug intake in another few months, and see if drugs and my new diet will be my long-term care plan.
 
Sorry to ramble, but I hope this helps!
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
No meds yet, Garden of Life supplements


Jamci
Regular Member


Date Joined Nov 2009
Total Posts : 27
   Posted 1/2/2010 9:26 PM (GMT -7)   
newfoundsun---I'm exactly the same (no D) but only mild pain. I am on Apriso which is really doing anything except keeping pain from getting worse????

I changed my diet too. I started eating healthier, although I don't deprive myself of many of the things I like, I just eat alot less of them.

I did fall off the wagon though during the past two week and ate too many sweets and other holiday foods.
Current meds:  Apriso (4 caps-1x/day)
                         Antara (cholesterol - 1 cap/day)
                         Welchol (cholesterol - 3 at evening meal)
                         Cardizem (blood pressure - 1 cap/day)
                         Protonix (some reflux/Barretts - 1 tab/day)
                         Welbutrin (anxiety - 2 tabs/day (morning/evening)
                         Multi Vitamin (morning)
                         Fish Oil (evening)
                         Tylenol (sometimes for back pain)


newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 1/2/2010 9:28 PM (GMT -7)   
Hey Jamci.  Nice to meet you!  I love connecting to people that have similar symptoms as me.  :)
 
What is Apriso?  I take it to mean it's only helping the pain be not too bad, but otherwise...who knows?
 
Don't kick yourself about falling off the wagon!  It was the holiday's...move on and do what you know you can do!!!
 
Later,
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
No meds yet, Garden of Life supplements


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/2/2010 9:42 PM (GMT -7)   
I also had awful constipation. SCD fixed me right up (took about 3 months).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/3/2010 9:00 AM (GMT -7)   
I live on a low residue diet all the time and it works well for me. You can google it and get some diet ideas. Its a easy to chew, easy to digest diet. SCD works for some but not all. But either diet works well for Crohns. No matter what diet you choose you should ALWAYS take some type of maintainence meds. Diet and medications should be considered as complimentary of eachother. I once went med free and it ended abruptly with emergency surgery with a complete obstruction. I will never be med free again. I am successfully maintained and in remission with Asacol. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 1/3/2010 9:15 AM (GMT -7)   
Thanks for the support for a low res diet Nanners!  Quick question:  I see you a lot tell people to ALWAYS be on drugs.  Does this advice only come from your own experience, or do you have some medical/microbiology training that we are unaware of? 
 
Thanks!
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
No meds yet, Garden of Life supplements


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/3/2010 10:18 AM (GMT -7)   
Its from mine and a few others experience. I thought I was enjoying remission med free when in fact the disease was still in there doing its damage until I was completely obstructed. I unfortunately did not have any warning signs either. So I am a firm proponent for maintaince meds. I don't want one innnocent person to suffer what I went thru.   Also, 35 years of living with the dd have given me a little insight too:)  JMHO

Hugs
Gail*Nanners*


Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 1/3/2010 2:07 PM (GMT -7)   
Hahaha!!!  Thanks Gail.  My GI told me that just because you don't have any Crohn's symptoms, doesn't mean the disease isn't doing it's damage.  Sounds like that's what happened with you.  I admire you for your desire to help people not go through what you went through.  We each have a story, I believe, and a it's an honor to use it to help others with our story.  Thank you for sharing yours.
 
PS:  So, what meds have you tried?  After 35 years, I would imagine you've been on a number of them!
 
Pam
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
No meds yet, Garden of Life supplements


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/4/2010 8:10 AM (GMT -7)   
Actually I haven't taken alot of the meds. I mostly have been successful with the 5ASA's. But I did try 6mp once, but ended up needing surgery anyways, so stopped it. But if it were needed in the future, I would go back on it. So far, so good that Asacol is keeping things in check:)
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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