Prednisone nightmares!

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Crohnie_Mel
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/4/2010 8:24 AM (GMT -7)   
Good morning and happy new year!

I am writing for some clarification -- because I feel like I am going nuts! I have been on 60 mgs of Prednisone in the past, but this time the docs have me on 10 a day. Which isn't bad in the whole scheme of things...however I feel like I am getting larger in the face. Is is really possible to get moonface on only 10mgs a day??? I mean for a while people were like "nooo...you look fine" but every picture I see myself in I am looking more and more round. I hate what it looks like!

Are there any alternatives to Prednisone? I mean thankfully all the hundred other terrible side effects aren't as prevalent as they were when I was on 60 mgs...but I hate looking like this!!
Melissa -- New York City
Diagnosed with Crohn's in 2004


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 1/4/2010 8:41 AM (GMT -7)   
Yes, it's possible to get moonface on 10mg.  It does suck, I've bee on Prednisone for over 2 years straight now, I was on 100mg for a year of that..I'm finally down to 2.5mg.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/4/2010 9:10 AM (GMT -7)   
The only other option is Entocort. And to tell you the truth, its a steroid too, but just absorbs differently. But not so sure you wouldn't get the moonface with that one too. Hopefully someone else will give their thoughts. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 1/4/2010 3:59 PM (GMT -7)   
I was on entocort for about 5 months and got moonface near the end, it wasn't too bad and wasn't immediate. I'm on pred now and it's starting to show up, I'm on 30mg right now now tapering by 5mg every two weeks... but I feel good so it's worth it!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/4/2010 4:31 PM (GMT -7)   
Whenever I've been on prednisone I've always started with a high dose then dropped down to a maintenance dose. Of course I got the moon face at the high dose and I'm assuming that it s because I couldn't see food without bolting it down, the result being huge weight gain. When I went below 20mgs my appetite calmed down although I didn't loose any weight until I stopped completely. So my question Melissa is at 10 mg is you appetite more active? If so then yes your putting on weight.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/4/2010 4:35 PM (GMT -7)   
That last line seems to be rether tackless didn't mean it that way!
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 1/4/2010 4:39 PM (GMT -7)   
You may look into humira, remicade or cimzia as alternatives to long term prednisone use.
Humira 2 x month, Lialda 2 x day, Imuran 100mg x day, Remeron 30mg x day, Pain Meds, Zantac 300mg 2 x day, Prednisone 2.5mg x Every third day(01_02_10), Vitamins = B12 Injection(Once x Week), Magnesium, Calcium, Multi-Vitamin, Potassium, Folic Acid. (Phenergen 25mg Per Request Needed).
semi@jengland.info -- FaceBook


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/4/2010 5:27 PM (GMT -7)   
Prednisone!! The Dr Jeckll, Mr Hyde medication.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/4/2010 6:31 PM (GMT -7)   
I've been on Entocort since April 06 with very little apatite increase and no sign of moon face. No side affects at all worth mentioning actually.
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC

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