Anyone had surgery without a blockage?

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alie1420
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 1/4/2010 4:26 PM (GMT -7)   
A little background - I am 28 and was diagnosed with Crohn's at 15. I have had various areas of my colon effected as well as dealt with anal fistulas. Everything is doing pretty ok right now, except for a portion of my ileum.

I am having surgery on Jan 14th to have about a foot of my ileum removed. I am on Cimzia and Entocort and have been on every other crohn's drug out there at some point. The one area of my ileum isn't being controlled by the meds. It isn't blocked but causes me daily pain and an upper GI shows it flared and spasming. My doctor has recommended surgery because it is my last option. I am nervous though because I am doing it for quality of life and had to make the decision. It would be easier if it was a blockage and I had no choice. Has anyone else had surgery to have a better quality of life? Did it help? I am worried that I will get it done and still have the same pain because I have severe IBS or something on top of my Crohn's disease. Oh also, I want to get pregnant this summer and it would be nice to not have this area constantly flaring up.

If you could share your experiences it would be great! Thank you!

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 1/4/2010 4:46 PM (GMT -7)   
I had surgery because I had several blockages over a 5 year period and was on so many meds I just couldn't take it any longer. Now my pain is gone. Although I am still on meds I don't feel as sick. It was worth it to me.
Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 1/4/2010 5:19 PM (GMT -7)   
I had surgery in mid november to remove a stricture, I did not have a blockage. The surgeon had to make a large incision, I have alot of scar tissue.

I feel like IrishMom described.

Better, not as sick, and glad I went through with it.

I am still sore, after about 6 weeks, and need 6 more weeks most likely before I am fully recovered, and will be able to work on getting my body strong again.
Humira 2 x month, Lialda 2 x day, Imuran 100mg x day, Remeron 30mg x day, Pain Meds, Zantac 300mg 2 x day, Prednisone 2.5mg x Every third day(01_02_10), Vitamins = B12 Injection(Once x Week), Magnesium, Calcium, Multi-Vitamin, Potassium, Folic Acid. (Phenergen 25mg Per Request Needed).
semi@jengland.info -- FaceBook


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/4/2010 6:20 PM (GMT -7)   
I have had 3 resections. The first and last were for strictures that were not responding to medications. The middle one was for scar tissue. I was not having blockages at the time. They were all pretty close together, but I believe that it was due to being untreated and unmedicated for 10 years. Once the damage from those ten years was "fixed" I have lived a pretty good life. I still have some pain and take maintenance medication. But I was able to stay out of the hospital for over 10 years and be a real Mom to my two girls. I had my first daughter before diagnosis. My second daughter, I had after diagnosis but before the first resection, so I can't answer to how that will go. I can say that choosing quality of life is not a bad thing. No one says you are going to get tomorrow, so choosing to have a great today is all we can do.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/4/2010 10:09 PM (GMT -7)   
I had "elective" surgery in September. I wanted to get it done while I was relatively healthy, rather then wait for an emergency and risk complications. I had a stricture that was about 7mm wide. They took out a total of 16cm of intestine, and it was so worth it!
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/5/2010 2:44 AM (GMT -7)   
Hi I had surgery when no meds worked and had a bad blockage.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.

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