Rocking With Pain

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Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/4/2010 4:47 PM (GMT -7)   
confused I'm getting rocked with pain, my usual type cyclical pain building up to a peak every 2-5 minutes. Both sides of the top are tough to take. Plus both kidney's are aching pretty bad. I just had 6 days without or with very low pain and now this and again I've no idea what caused it .How many of you get this type of pain?cry

Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/4/2010 5:13 PM (GMT -7)   
Sorry to hear that, hang in there.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/4/2010 5:27 PM (GMT -7)   
Am so sorry u a having to deal with this..do pain meds help you at all or do you take them...some dont...that pain sounds just horrid..i will keep you in my thoughts for a quick come out of it..what has your doc said about this pain...take care and yes welcome..i never did welcome you before...huggles..lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
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AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/4/2010 6:43 PM (GMT -7)   
I only get that kind of pain when I'm blocking at my ilium. If you haven't told doc, I'd recommend you do.

Now quit hurtin' soon! (That's an order.) :-)
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/4/2010 6:49 PM (GMT -7)   
Yes Dr.s are aware of this. I've suffered this type of pain since 1995 when I came out of remission the last time.I do take morphine sulfate immediate release to try and control it. It's working today as the pains only a 7 of 10, any higher and the painkillers only take the edge off.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


jebnow
Regular Member


Date Joined Sep 2006
Total Posts : 68
   Posted 1/6/2010 9:17 AM (GMT -7)   
I get the same pain you describe. Going through it now. :(
So sorry you too are suffering.......

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2010 9:25 AM (GMT -7)   
Sounds to me like you are either experiencing at least a partial obstruction or possibly kidney stones. A pain on that level really needs to be brought to your docs attention. I hope you get feeling better soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 1/6/2010 9:30 AM (GMT -7)   
My doc gave me something for spasms a while back, trying to remember the name... levsid. Have you tried that one or something similar? During recent flares I get an upper GI spasm every few minutes which makes me want to double over.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 1/6/2010 9:59 AM (GMT -7)   
it sounds a little familiar. I'll get 'attacks' that start by my sternum, then it expands to my entire abdomen and into my back by the kidneys. It hurts so bad that nothing helps it. It's hard to breathe and hurts to move. They usually last a half hour to an hour, though the last one was almost 2 hours long. My dr doesn't understand it, he prescribed me robinul to see if that helped, it doesn't really, and I get so nauseaous that nothing will stay down.

hope it passes soon for you!!
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008

Medication: tapering off Prednisone (5mg), Pentasa 6x daily, Imuran 100 mg, hydrocortisone enema nightly, multivitamin. Probiotics through yogurt.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/6/2010 10:13 AM (GMT -7)   
Hope you are soon feeling better Grandpa2to. Bev x :-)
Diagnosed at 13 now 42
Reversal of temp stoma scheduled 27th Jan 10 :-)
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.

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