What vitamins and other supplements are you currently taking?

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 1/5/2010 7:20 PM (GMT -7)   
Hey all, was just curious what vitamins and supplements you all are taking and which ones do you find work best for you?
Also, if you could explain the function of the vitamin or supplement (why you are taking it).

Thanks!

Post Edited By Moderator (Nanners) : 1/6/2010 1:14:43 PM (GMT-7)


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 1/5/2010 10:17 PM (GMT -7)   
hmmm...it seems that I take as many vitamins as I do meds....sometimes I get an acute case of pill fatigue...so here's what I take and why
1. Viactiv calcium supplement...been on prednisone for over 3 years now (down to 2mg now woohoo)...2x/day
2. Zinc...my GI suggested this after terrible hair fall out and funny taste in my mouth. It does seem to help with my hair growth...haven't taken any in about a week (ran out, haven't felt good enough to get to a store) and it's falling out in handfuls...1x/morning
3. Flaxseed oil. Want the omega fatty acids, but the fish oil stuff does not like being in my tummy...it always want to come back out the way it came in. The omegas are also supposed to help with inflammation too...2x/day
4. Multivitamin...one that dissolves fast (not like a centrum) or in liquid form gell caps...my body has a fast transit time so I do have to be particular about my multi's...also instead of in food form, and more the pure form, my body can get some of it nutrients. (my transit time is way to fast ) ...1x/day
5. Align...or other probiotic. just want everything to normalize...1x/evening
I hope this helps
"The earth laughs in flowers"


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/5/2010 10:42 PM (GMT -7)   
1. Vitamin b-12 inj every 4 weeks as my terminal Illeum is gone. 2. Calcium maintance dose 600mg, (triple that if on prednisone) My experience crohn's steals calcium. 3. Magnesium 300mg I get cramps without this one. 4. Vitamin D 1400 IU's body needs d to utilize calcium. 5. Fish oils 1000mg good for brain health as well as omega fatty acids. 6. A good quality Multi vitamin and mineral. 7. One more to prevent cramping is Potassium in bananas or Gatoraide.(in a flare up I can't tolerat bananas). 8. Iron (Ferrous Gluconate) 300 mg to prevent anemia( forget that one for awhile and bad things happen!).Thats about it for. hope it helps!
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/6/2010 5:17 AM (GMT -7)   
Monthly B-12 injections, Multivitamin,Dbl calcium, Vit-D, Probiotic, Folic Acid.
I should be taking fish oil but it really drops my blood pressure. I'm going to start flaxseed oil and see if that helps.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 1/6/2010 6:47 AM (GMT -7)   
monthly b12 injections (anemic), folic acid & biotin (hair is thinning), calcium (on pred), vitamin d3 (help with bones), probiotic, fish oil, prenatal multivitamin + digestive enzymes and lactaid as needed

I've been meaning to look into what else I should be taking... I'm thinking zinc and aloe vera?
It seems I eat pills for every meal... such is the life!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2010 7:41 AM (GMT -7)   
I get biweekly B-12 injections (lost TI in surgery), take 3000 units of Vitamin D (helps keep inflammation down, helps chronic pain, and strengthens bones), Calcium (to repair damage Pred did), and Primadolphilus Reuteri (probiotic to keep bacterial levels even).
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 1/6/2010 8:35 AM (GMT -7)   
I take:

* iron - to help with any bleeding
* vit D - tests showed I was deficient
* Fish/flax oil - Omega 3's help reduce inflammation
* vit C - to help my immune system
* prenatal vitamin - general health
* probiotics - to keep the monster in my gut quiet
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.


kia c.
Regular Member


Date Joined Jun 2004
Total Posts : 111
   Posted 1/6/2010 8:49 AM (GMT -7)   

Vitamin D ... B12 ... Folic Acid.  I read somewhere the combination of these three vitamins help with Crohns.

Iron.  I'm "slightly" anemic.

Vitamin D/Calicum.  I'm so friggin' tired.  My GP did blood work and found my D level was down and suggest a supplement.

Glucosomine/Condroitin.  I tell myself it helps with joint paint. 

I feel like, I alone, am keeping these pharmecutical companies in business!!

 

kia

 


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/6/2010 11:00 AM (GMT -7)   
I take iron syrup,folic acid which is keeping my blood count up ( i hope!) multivitamin probiotic and have just started vit D3 5000ui so waiting to see if there's going to be any benefits from that.
Bev x
Diagnosed at 13 now 42
Reversal of temp stoma scheduled 27th Jan 10 :-)
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/6/2010 2:20 PM (GMT -7)   
Vitamin D is common is Crohn's patients. My daughter takes 5000IU vitamin (D3, not D2) daily.
 
Also takes:
 
Iron Bislgycinate (27 mg)
Monthly B12 injections - she can't seem to absorb enough B12 from oral vitamins
SCD multivitamin every other day
B complex vitamin
homemade yogurt
Calcium/D supplement (500 Calcium Citrate w/200 D3)  
Zinc only occasionally, because Zinc supplements interfere with the absorption of iron and, I think, calcium 

Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 1/6/2010 2:23 PM (GMT -7)   
Good Topic, I was just thinking of asking this.

Multivitamin. I get the one a day for women, they have some iron, men's vitamins often don't, men are supposed to be big meat eaters I suppose, no idea really...

Folic Acid.
Potassium.
B-12 Injections.
Magnesium.
And Of course Calcium with Vit. D. smilewinkgrin

Ensure also, at least one per day...

Post Edited By Moderator (Nanners) : 1/10/2010 8:34:13 AM (GMT-7)


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 1/6/2010 2:49 PM (GMT -7)   
I've been reading that a lot of you are including a probiotic into your daily regime. Say I want to purchase a probiotic - how would I know it's good? There are so many out there that I really wouldn't know what is or isn't a waste of my time and money. I have heard of Align, is this a good product? Is it available in Canada?

Also, I spoke with my nurse practitioner today about starting some supplements and vitamins - she was leery about suggesting anything because I am starting remicade next week. Has anyone found they had to change supplements/vitamins when starting remicade?
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: Flagyl & Remicade to start January 14/10


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/6/2010 3:53 PM (GMT -7)   
It might make sense to hold off on trying anything new right now because if you get side effects, they might be hard to distinguish from the side effects of the Remicade, itself.
 
Even a multivitamin can cause D.
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. Used LDN to taper off Entocort. Was on Entocort since April 06. Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 500 mg calcium, 27 mg iron, monthly B12 shots, daily oral B12 1000. SCD diet modified to include potatoes and rice. 


riesasmom
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 1/6/2010 4:28 PM (GMT -7)   
My 14 year old daughter takes, prenatal vitamin, 2/1000mg omega 3, 2000IU vit D3, 1000mg calcium, 1 Udo's Choice Probiotic 3mgs LDN at bedtime. She also is on SCD and the SCD yogurt. She is presently tapering off Prednisone(10mgs right now) and will begin back on 2/500mgs of Pentasa this week.

amytupelo
Regular Member


Date Joined Nov 2009
Total Posts : 38
   Posted 1/6/2010 4:44 PM (GMT -7)   
currently: calcium, vit-d, iron, multi, align, zinc, vit-c, super b complex, b12 shots..
i used to take enteric coated fish oil - then i ran out about 5 months ago and just keep forgetting to get more. i feel like that was beneficial. also, i used to eat dannon activia yogurt everyday per my doc - but i got tired of buying, not eating it, and having to throw it away - but i feel like i was more beneficial than the align - seemed to help more with gas and noise. funny the 2 things that were most beneficial am i not currently taking... maybe i should do something about that :)
32/F
crohn's terminal ileum - 11 years
pentasa, entocort 6mg, b12, align, canasa
allergies: remicade, imuran, 6-mp, cipro, levaquin


ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 1/6/2010 7:27 PM (GMT -7)   
Multivitamin
Calcium
Vitamin D
Omega -3
Flaxseed Meal
Eat Probiotic Yogurt
Crohn's 18 years, Humira, 1 Surgery


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 1/6/2010 8:19 PM (GMT -7)   
digestive enzymes with every meal
multivitamin
Co-Q10
vitamin D3
iron (for anemia)
probiotic when necessary
sublingual b-12 on occasion (i should take it more often - i go in spurts)
calcium on occasion (i should take it more often - i go in spurts)
experimenting with tumeric and bentonite
green drink
vitamin C crystals
aloe vera juice on occasion
colostrum on occasion
krill oil/fish oil on occasion (not as often as i used to)
L-glutamine on occasion
i took collodial silver for a few months

i am always experimenting with new stuff, be it food or supplements. i am my own guinea pig.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 1/8/2010 10:18 PM (GMT -7)   
Great to hear from everyone - would love to hear more.

What do you all find most successful? What about those with peri anal crohn's specifically?
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: Flagyl & Remicade to start January 14/10


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 1/9/2010 5:10 AM (GMT -7)   
farfrmnormal said...
Great to hear from everyone - would love to hear more.

What do you all find most successful? What about those with peri anal crohn's specifically?


I take lingzhi. I made a post about it some time ago:

http://www.healingwell.com/community/default.aspx?f=17&m=1385214

I'm still having great success with it, but I don't think I convinced anyone else to try.

best regards,
Robert
Crohn's since 1988
3 resections


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 1/9/2010 10:10 AM (GMT -7)   
I am on calcium 1500mg and vitamin D3 400 iu
ferrous sulphate (i am slightly anaemic)
B12 injections every 3 months
but looking at every one else's vitamin levels, I don't know if this actually enough or not especially the Vit B12, most people seem to be having the injections alot more regularly, atleast once a month ?????
Does vit B12 stop you from running to the toilet as well.....and stop any itchiness too?? if anyone has experienced that is does please let me know.
I am back to the doctors on thursday so maybe I can speak to her about it!
Michelle Ashworth 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 1/9/2010 4:43 PM (GMT -7)   
njmom - I agree. I don't plan on introducing anything into my diet until I have my loading doses of remicade - I am also going to speak with my GI about his recommendations.

As for the Lingzhi - I read your post, however; I'm allergic to mushrooms :(
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: Flagyl & Remicade to start January 14/10


Aerosmithkat
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 1/10/2010 6:10 AM (GMT -7)   
Hey all... here's my list

- Multivitamin (general catch all for deficiencies)
- Fish oil (for inflammation since i don't eat much seafood)
- Phillip's colon care probiotic (seems to keep my stomach quiet)
- some random supplement that has extra B vitamins, magnesium, and folic acid

I have calcium that i keep forgetting to take. I need to put it with the rest of my vitamins, since i am on prednisone right now and need the extra calcium. I also tried oregano oil for it's anti inflammitory properties; but it seems to cause me acid reflux, so that is taken out of the rotation. I'm experimenting with SCD right now to compliment my maintenence med of Asacol. I went into a second flare 2 months ago, since my first diagnosis of CD back in july '07. I've been told i'm a mild case of Crohn's, but the doctor wants me to go on Humira if i can't get out of this flare and stay in remission (he put me on a prednisone taper again). I'm finding by taking out the inflammatory foods and adding in heavy doses of probiotics.. i'm starting to bounce back nicely. I have to admit that since i got remission so easily when i was first diagnosed, that i got lazy over the past two years by only taking the asacol and not re-adjusting my lifestyle (eating fast food, stressing out too much,still smoking). So i give a big thumbs up vote for heavy probiotic and antiinflamatory supplement currently. smilewinkgrin

ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 1/10/2010 6:15 PM (GMT -7)   
farfrmnormal said...
njmom - I agree. I don't plan on introducing anything into my diet until I have my loading doses of remicade - I am also going to speak with my GI about his recommendations.

As for the Lingzhi - I read your post, however; I'm allergic to mushrooms :(


It's a pity you're allergic to mushrooms. Maybe you ought to give turmeric or curcumin a try:

http://www.healingwell.com/community/default.aspx?f=17&m=1685525

I never taken the capsules myself, though I use turmeric as a spice.

best regards,
Robert
Crohn's since 1988
3 resections


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/10/2010 9:08 PM (GMT -7)   
Everything I use is listed in my sig below... :)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/11/2010 12:13 AM (GMT -7)   
scoolAshworthml, B-12 is only absorbed in the last 14" of the small intestine (ileum). Most of us taking injections have had that area resected so we need injections instead. I've tried sub lingual B-12 wafers but found they didn't do me any good. I get 100cc's every 4 weeks that seems to work best for me. I believe 8 weeks is the maximum time between shots, but check with your Dr. please. B-12 has no effects on D that I've noticed but I get 2 wonderful relaxing nights sleeps after the shot redfaceand I"ve more energy as well for a few days.yeah B-12 is for nerves and nervous system repairs so that makes sense.  Aerosmithkat, calsium while on prednisone is a must, must, must! The prednisone will take it regardless on whether you take supplements or not. Brittle bones anyone?cry

Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, December 09, 2016 4:12 PM (GMT -7)
There are a total of 2,735,538 posts in 301,315 threads.
View Active Threads


Who's Online
This forum has 151416 registered members. Please welcome our newest member, JoanOnan.
313 Guest(s), 14 Registered Member(s) are currently online.  Details
Gemlin, LSil, Serenity Now, Scaredy Cat, Loutucky, Girlie, LG13, U B Tough, dbwilco, Hallahan, LiveJoy, Tim Tam, Tall Allen, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer