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Crohnie4Life
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 1/6/2010 6:54 AM (GMT -6)   
Hello all,

Like a lot of people, I have beenn lurking on the boards for a while. I decided I should stop lurking and hop into the water, so here I am.

I am a 36 year old male from Atlanta, Georgia, USA. I was diagnosed with Crohn's in 1993. Up until that point, I had been steadily losing energy. Of course, I had been losing massive amounts of blood. I didn't want to tell anyone because well, it is pretty embarrassing for a guy (or anyone) to be pissing blood from his ass. I was 19. Yeah, it was rough. Finally, my mother(thanks mom) scooped me up and took me to the hospital. That was the first of many 3 nighters at the hospital. I couldn't walk so the staff wheeled me into the hospital. I had my first blood transfusion then, and have had many since. I am 6'1" and weighed 160 pounds. I was stick thin and everybody thought I was doing major drugs, lol! Finally, in Feb 2007, I had a resection. 8 damaged inches of intestine was removed. By Sept, I was back in the hospital for another 3 nighter and more blood transfusions. I started IV iron infusions last July. I started out with Venofer but had bad leg and body cramps. We tried the dexferrum but I had an anaphylactic issue and went back to the Venofer. So I get IV iron once a month now.

It seems like I have always had symptoms. Yes, there have been stretches of 2-3 months without any major issues, but I always seem to drop back into the Crohn Zone pretty quickly. My current flare started last October with bloody diarrhea and gurgling belly noises. Then came the pain. I thought it was Crohn's related. My Gastro ran most of the tests (C-scope, Barrium, CT, bloodwork,...) but couldn't find any issues. I still had major pain. My Gastro told me that he couldn't treat pain if he couldn't find a cause. After two years of his crap, I fired him and got a new Gastro. Active disease was confirmed with a pill cam, and I have been on 2 Humira pens a week( have been taking Humira for almost two years). It is obvious that the Hurmira is not working anymore, so it is on to the next drug. I have taken a good bit of the Crohn's drugs available. I have an appt on Thursday for new meds and a new game plan.

As other posters stated, I could write so much more, but even this seems too long. Even this little bit seems to long for a forum. Anyway, good morning (depending on where you live:)!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/6/2010 7:32 AM (GMT -6)   
Welcome to the forum! Sorry, you've had to go through so much...this disease is just too generous!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2010 8:43 AM (GMT -6)   
Hi Crohnie4life and welcome to Healingwell. We are so glad you joined our family and look forward to hearing more from you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Crohnie4Life
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 1/7/2010 5:19 PM (GMT -6)   
Thanks y'all!

It's nice to have a place to share with other Crohnies!

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/7/2010 7:34 PM (GMT -6)   
Welcome, I am newer too. I haunted the site for awhile as well, before I saw how nice and wonderful everyone was/is. I hope you find the relief that you are searching for and soon! Good luck!
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/7/2010 10:56 PM (GMT -6)   
Welcome Crohnie4Life. I like your user name, it shows you've accepted reality. I hope we hear much more from you.

Don't mess around, get better soon. smilewinkgrin
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC

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