Hello...introduction

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Crohnie4Life
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 1/6/2010 5:54 AM (GMT -7)   
Hello all,

Like a lot of people, I have beenn lurking on the boards for a while. I decided I should stop lurking and hop into the water, so here I am.

I am a 36 year old male from Atlanta, Georgia, USA. I was diagnosed with Crohn's in 1993. Up until that point, I had been steadily losing energy. Of course, I had been losing massive amounts of blood. I didn't want to tell anyone because well, it is pretty embarrassing for a guy (or anyone) to be pissing blood from his ass. I was 19. Yeah, it was rough. Finally, my mother(thanks mom) scooped me up and took me to the hospital. That was the first of many 3 nighters at the hospital. I couldn't walk so the staff wheeled me into the hospital. I had my first blood transfusion then, and have had many since. I am 6'1" and weighed 160 pounds. I was stick thin and everybody thought I was doing major drugs, lol! Finally, in Feb 2007, I had a resection. 8 damaged inches of intestine was removed. By Sept, I was back in the hospital for another 3 nighter and more blood transfusions. I started IV iron infusions last July. I started out with Venofer but had bad leg and body cramps. We tried the dexferrum but I had an anaphylactic issue and went back to the Venofer. So I get IV iron once a month now.

It seems like I have always had symptoms. Yes, there have been stretches of 2-3 months without any major issues, but I always seem to drop back into the Crohn Zone pretty quickly. My current flare started last October with bloody diarrhea and gurgling belly noises. Then came the pain. I thought it was Crohn's related. My Gastro ran most of the tests (C-scope, Barrium, CT, bloodwork,...) but couldn't find any issues. I still had major pain. My Gastro told me that he couldn't treat pain if he couldn't find a cause. After two years of his crap, I fired him and got a new Gastro. Active disease was confirmed with a pill cam, and I have been on 2 Humira pens a week( have been taking Humira for almost two years). It is obvious that the Hurmira is not working anymore, so it is on to the next drug. I have taken a good bit of the Crohn's drugs available. I have an appt on Thursday for new meds and a new game plan.

As other posters stated, I could write so much more, but even this seems too long. Even this little bit seems to long for a forum. Anyway, good morning (depending on where you live:)!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 1/6/2010 6:32 AM (GMT -7)   
Welcome to the forum! Sorry, you've had to go through so much...this disease is just too generous!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2010 7:43 AM (GMT -7)   
Hi Crohnie4life and welcome to Healingwell. We are so glad you joined our family and look forward to hearing more from you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Crohnie4Life
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 1/7/2010 4:19 PM (GMT -7)   
Thanks y'all!

It's nice to have a place to share with other Crohnies!

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/7/2010 6:34 PM (GMT -7)   
Welcome, I am newer too. I haunted the site for awhile as well, before I saw how nice and wonderful everyone was/is. I hope you find the relief that you are searching for and soon! Good luck!
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/7/2010 9:56 PM (GMT -7)   
Welcome Crohnie4Life. I like your user name, it shows you've accepted reality. I hope we hear much more from you.

Don't mess around, get better soon. smilewinkgrin
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 1:18 PM (GMT -7)
There are a total of 2,731,736 posts in 300,955 threads.
View Active Threads


Who's Online
This forum has 151128 registered members. Please welcome our newest member, Diane82256.
279 Guest(s), 9 Registered Member(s) are currently online.  Details
Artist Mark, Tirzah, Mrs. Brady, Girlie, Hilander64, Mustard Seed, 5678, Myself 09, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer