help to lose weight for a fatty CDer

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HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 1/6/2010 8:56 AM (GMT -7)   
I have never been thin...let's start with that.  The only time I was smaller was after my rupture and I dropped 30 pounds in under 3 weeks.  Even that did not make me thin, just thinner than I was.
Well, my knees are killing me (stairs cause sharp pain and tears every time) and my other joints ache variably at times.  GP told me Monday he does not think it is CD related as I do not have redness and a lot of swelling with it.  He really wants me to lose at least 10 pounds.  The Wii Fit helped, but I am having a hard time getting any significant weight off.  I do not tolerate fruits or vegetables (except an occasional applesauce or white iceberg lettuce salad).  The foods I tolerate best are those that cause weight gain (oddly milk products are great for me, breads and baked goods all go nicely in my gut).  I can eat only so much pork and chicken before I get BORED!  I have already gone to smaller portions.
How do I get more active through the joint pain and how do I change my diet any more?  Any good ideas.
 
The good news is I have an appointment with a new GI in early February.  I am going to find out more about calmoseptine and other non-major meds and see what I can do on the external issues with him.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 1/6/2010 11:01 AM (GMT -7)   

If you find a good diet, let me know.  I am also overweight and find it hard to lose it.  I have some joint pain every now and then and also have low energy.  All the foods that are "good for you" are in reality bad for me.  I have asked my doc about it and thier office push the no carb diets (any no type of food diet is bad for you).

 

I can't afford a nutritionist and I can't find one that would specialize in CD.  Needless to say I am at a lose.  I hope you feel better and find something that works.  If you do, let me know.  I would love to hear about a safe diet for CD that works.


36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 1/6/2010 11:23 AM (GMT -7)   
Thanks Java...I too do not believe in any diet that completely eliminates a particular type of food or restricts you to only one type. I never found them to be a long term solution. Another friend just sent me a note about a discount at a local indoor pool. I may try swimming to lower the joint stress, but get more active. Have got to do something...even my normally low blood pressure has jumped up in the last year.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 1/6/2010 11:35 AM (GMT -7)   
I'm like you, I can't eat any fruit or veg. Carbs are my best friend. A few years ago I was put on Topamax for migraines. It helps a lot, but has the side effect of decreasing my appetite, to the point that I could go all day and not eat. I had an appointment with my Endocrinologist soon afterward and she said that she sometimes puts her patients,who need to loose weight and can't, on Topamax BECAUSE of that side effect. I don't know how you and/or your doctor feel about a medically helped weight loss, but I know it has kept the prednisone weight off me.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/6/2010 12:16 PM (GMT -7)   
CD or not it'a about calorie intake, what your eating and how much you're exercising...if you have joint issues, try aquasizing or an eliptical or stationary bike. Drink green tea if you can handle it (gives me heartburn), it's suppose to be clinically proven to help with weight loss especially in the belly (so it's been claimed, which is very odd but it's worth a try). Portion control is a big thing too when it comes to weightloss (blends in with calorie intake of course).

Good for you for wanting this Habs, just be patient and stick with it and you will see results, key is if you start to see results and want to continue then you have to look at it as life-style changes and keep up with it so you don't go back to the way things were or the weight will come back.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2010 12:22 PM (GMT -7)   
PB4 beat me to it, but I was going to suggest the stationary bike too. That will not only help the knee pain, but help you to do some cardio too. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 1/6/2010 12:36 PM (GMT -7)   
See--that is where I have problems.  Most bikes hurt my knees and aqua stuff is out as I can't swim.

36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/6/2010 12:51 PM (GMT -7)   
I don't think yu have to be able to swim to do aquasizing, I think they do it in shallow enough water for those that don't swim. Be worth looking into...I find my eliptical easy on my legs (knees and all).

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 1/6/2010 1:19 PM (GMT -7)   
Thanks pb & nanners, but I had to nix the bike when I had back issues. I actually lose all feeling in my one leg when I try to peddle or even on an elliptical. I guess I am going the water route and will still keep up on the WiiFit as it it has some stretching and bending exercises that work well. Have a cruise in the end of the month....Any one want to splash around with me hehehehehehe..
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


soppendeuff
Regular Member


Date Joined Jun 2008
Total Posts : 27
   Posted 1/9/2010 8:38 AM (GMT -7)   
I've found that recumbent stationary bikes put the least amount of stress on my joints.

heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 1/9/2010 3:15 PM (GMT -7)   
I am going to try to lose weight too. I almost feel like I'm setting myself up for failure though. All the diets suggest lots of fiber, fruit and vegis etc. With limited food choices and crohn's related arthritis, it feels like I'm between a rock and a hard place. But despite all that, I feel too bad and too big not to do anything. I'm going to start out slowly that's for sure. I haven't exercised in so long that just stretching felt like a challenge. I feel like I'm in someone else's body.

Good luck to everyone who's trying to lose weight with crohn's! Maybe we can encourage each other. yeah There's my new exercise.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 1/9/2010 4:37 PM (GMT -7)   
Hey, everyone...I am (was) a bit overweight Crohnie too. I hear what you are all saying about the exercise and joint thing!
Last fall I was also diagnosed with Diabetes. In a way it was a blessing because it made me go to yet another nutritionist! Actually, I had been to 6 nuritionist but nobody really helped. You can ask your G.I. or regular M.D. to refer you to a nutritionist and the insurance company should cover it...more than likely. Ask them to cover more than one time! Some insurance company will cover gym time if your Nutritionist can work it out!  Be DIRECT and tell them what you want! Don't go to a nutritionist that doesn't understand what your going through. Ask for another one! Your trying to be PREVENTIVE and they are their to help!
The nutritionist had her work cut out for her with me because what was is good for Crohns (carbs) isn't good for Diabetes (veges and fiber) ...and vis versa. She was a young girl who really gave a crap! FINALLy! It was a challenge for her and she really wanted to help! I really cried the first week trying to figure out how to eat! Taking my blood every day made me accountable though and watching my numbers fall was incentive. Going back to see her ...she did more homework and we've just been working together.
Anyway, I can't exercise much either because of all the joint stuff and back surgery when I was younger. I try to walk though. Honestly, there are days I don't feel like moving a muscle and the thought of even getting out...exhausts me. Most important..you gotta get back up and keep trying...
Bottom line...move as much as possible! Mostly, had to cut back on food portion size.  Putting veges back into my diet has been difficult to digest however..But I found if I cook them down it helps and I think before I was always eating toooo much at one time. Just habit and comfort thing.
I have 45-55 grams of carbs per meal : break, lunch, dinner. Don't skip carbs or go super drastic because you really NEED them.... if you can't do this right away..work toward it.
Then snack 10 a.m., 3 in the afternoon , right before bed...I have 15 grams of carbs. Haven't really counted much else ..like fat, protein..a little to overwhelming. With these carbs I usually mix whatever. It's remarkable how it just drips off you! Not super fast...but pretty fast.  I'm not hungry and actually feel alittle like I eat ALL the time. You can't skip snacks or meals..during the holidays it was a challenge but now, back on schedule and feeling good. Swelling in my fingers and joints go down right away. I try to avoid wheat..not because of an allergy (don't know whether or not I'm allergic)...just a sucky way to use my carbs. It's all about balance. Mostly, what everybody's been screaming for years. Once you get into the groove and find food that work..it's soooo easy.
 
 
 
 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 1/9/2010 5:04 PM (GMT -7)   
I know it didn't work for some people, but the elliptical worked real well for me...I even did it ~5 days post op from bum surgery...I still can't sit on a bicycle seat or most seats for that matter, and I'm about 3 years post op now. I have super bad arthritis and the treadmill, even at low speed is a bit hard...and sometimes swimming, esp a few months after surgery (my doc didn't allow it for 4-5 months post op). But I was happy with the low settings on the ellipticals...

As to food, it helped like using soy milk in some instances instead of regular milk...like with baby rice cereal when my tummy is in a bad way. I make brown rice in a cooker when I'm feeling a bit better...I do try and go with more protein since I can't really do more fruits and veg at most times...and more protein (soy, shakes with higher protein) does indeed make you feel fuller and thus take in less...
"The earth laughs in flowers"


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 1/9/2010 5:43 PM (GMT -7)   
Habs, I do the Wii Fit, too, there I use the Yoga part, on the first training CD. Have you seen it? the thing with those Yoga exercises is that they are not hard on the knee joints. I also am using the Wii Fits muscle training programs to build stronger knees, back and hips. Using both these will make you burn more because you'll get more muscles.

I have been reading flowerys suggestions and I do agree with her, but would like to add something due to carbs: the wheat flour carbs (bread, cakes, pasta, potatoes, makaronies and so on) are "unhealthy" carbs. (specially if you want to loose weight) Vegetables and fruits, (vegetables: cooked to death, fruits peeled and those you can have), yogurt and walnuts are good snacks in between the main meals. Do eat 6 to 7 times a day, every meal has to contain a almost half of the plate of proteins (poultry, meat, fish), more than 1/3 of carbs (vegetables/fruits), just a handful rice or potatoes, and a little fat. Instead of rice you could use bulgor now and then. I have used this diet and made all things from scratch, the meat has to be fresh as do the poultry or the fish, so you have to make most of this at home. Last year I lost 25 stone by doing this and using my Wii Fit. When you eat a fruit, always combine it with some almonds/walnuts (5-6), because you then choose a balance between protein/carbs/fat. When eating a yogurt, do the same, some walnuts or macadamian nuts will increase the fat burning. This diet is called the Glucemic Index diet. GI, I am sure you know it. It's super because you are eating all day, and loosing at the same time. You actually HAVE to eat 6- 7 meals a day, to succeed, cause eating a fists size 7 times a day increases the fat burn, due to insuline reactions/other natural bodily reactions.Good luck! /Bee

bkblack
Regular Member


Date Joined Feb 2003
Total Posts : 102
   Posted 1/12/2010 5:29 PM (GMT -7)   
Hey
I'm an Exercise Physiologist withCrohns dz. I've managed to maintain a healthy weight for 21 years since being dx'd. It comes down to 2 things; eating and exercise as I'm sure you are already aware. However, you've got to make sure you're doing things in the correct amount. Usually people tend to over do it and wind up having to stop. I'm happy to see what I can do for you via internet.
God Bless
Byron


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/12/2010 6:46 PM (GMT -7)   
Hey Habs you are not alone. I managed to double body weight with crohns. I just wish I could exercise without so much pain that I cannot sleep.
 
Just fyi since I do not know what your weight is, but I do like HMR (health management resources) shakes, and phentrimine for app suppressant (but if you have heart problems it is a no go),


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 1/12/2010 6:52:49 PM (GMT-7)


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/12/2010 9:50 PM (GMT -7)   
No to be mean, but any suggestions on how to gain weight? I currently fluctuate between 135-140 lbs and would like to gain at least 10 lbs. I used to weigh around 180 prior to Crohn's diagnosis.

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 1/13/2010 6:37 AM (GMT -7)   
Hey everyone...thanks for the thoughts....I am very frustrated that I have such negative replies to so many good ideas. I just have horrible knee and back issues. The Wii yoga is helping, but you are right some are tough on the knees....I actually find the hula hoop and boxing the best for me so far

Heatmiser...I would be glad to be your support group in this effort. Post any time you want to for me and we can share. My husband would think it is hilarious as we give cards to each other signed heatmiser-him, snow miser-me. I have cut back portions more and started doing exercises during every day things...i.e. while drying my hair I do stomach muscle tension or steps. Now I just have to survive a cruise diet at the end of this month.

Navy..I will look into the shakes. Are they a suppressant or just a supplement to make you feel full? I can't do the app suppressment meds as I do have a family history of CHF/high BP/MI and I have been having stress heart flutters the last year.

Keep at it folks....I have set a small goal of -10 pounds in 6 months. Bye Bye ice cream :-(
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 1/13/2010 7:49 AM (GMT -7)   
I fall into the let me know category. Conflicting diet types between crohns and diabetes have me much larger than I would be but nothing I try knocks the weight down. I think I can gain a pound from a half ounch cookie. Long ago I tried the Atkins diet and had good results but hit a point where I was not losing anymore weight and felt like I could not go any more . Tired all the time. Right now, except for my knees I'm fat and happy..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/13/2010 8:56 AM (GMT -7)   
Habs,
I use a weight management/baratric doc, because my BMI is about 42. I use the HMR shakes as meal replacements, and phentrimine as an appitite suppressent. Since I have been dx, I have been hungry all the time. It wakes me up in the morning, and I have had the hardest time with the hunger issue.
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 1/13/2010 10:48 AM (GMT -7)   
Chronnieman - weight loss and gain is the same equation pretty much. A pound is 3500 calories, to lose a pound a week you need to defecit 500 calories a day, as to gain a pound in a week you'd need to add 500 calories a day.

My dietician taught me that the best way to create the increase or defecit was small changes and subsititutions that can easily be changed back once you reach your gain or loss goal. Small changes such as in sandwiches full butter and condiments/low butter and condiments, if you have a cup of tea have a biscuit/or remove the biscuit etc etc. When I needed to gain weight I'd also add and extra 2 meal replacement drinks a day - which was an extra 600 calories until I got up to a better weight. Now I'm a little bit beyond my ideal weight I'm doing the small cutbacks as mentioned before.
 
 


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/13/2010 1:44 PM (GMT -7)   
Thanks lilcrohnie -

I might check into the replacement drinks. Just tired of my family acting like I don't eat anything because of my weight...

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 1/13/2010 1:59 PM (GMT -7)   
Habs have you tried eating well cooked non-acidic veggies and fruit for a few days? Boiled or baked potatoes and sweet potatoes (excellent anti-inflammatory), baked/boiled low acid apples (red delicious), cooked mashed bananas, etc?

I went years and years without eating hardly any fruit or veggies because it just went right through me and my stomach really hurt (CD in the stomach as well as intestines).

I realized how big a mistake it was to eliminate veggies and fruit because so much of our much needed nutrition is from all the plain old natural foods and meats.

Mihee
Regular Member


Date Joined Jan 2005
Total Posts : 155
   Posted 1/13/2010 2:35 PM (GMT -7)   

I have always struggled with my weight as well and steroids certainly make it even harder!  I have lost 87 lbs with weight watchers, you can eat what ever type of foods work best for your system (I avoid most veggies and fruits).  Walking is great!  You can take it slow and easy until you get stronger.  I found as the weight came off, the arthritis improved along the way.  It has been a win ~ win diet for me!!  Good luck!!


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 1/13/2010 3:22 PM (GMT -7)   
Mihee...I have always wondered if Weight Watchers would even take me. I had a girlfriend who lost a lot of weight on it and keeps it off by just watching what she eats in quantity and more exercise. I just thought they had a fruit/veggie requirement in their diet. i may look into that too....I don't seem to be doing it on my own!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

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