Help Please for Remicade reaction - joint 'pain' inflamation,

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West Coast Lady
New Member


Date Joined Jan 2010
Total Posts : 7
   Posted 1/6/2010 9:21 PM (GMT -7)   
Actually - joint pain or inflamation does not do this reaction justice! This was over the top pain! Last night was one of the worst I have ever experienced and I have gone through lots.

I also have liver complications and so most pain meds including any anti-inflammatory - ibuprofen, ASA, are out and I am allowed 2 tylenol a day (whoopy!). So on Monday my Dr. moved to the narcotics and last night oxy did not touch the pain. It appears to be a reaction to the remicade that gets worse in the evening and by nightfall, I can't walk, it is in both knees, ancles, my ribs (hurts to breathe), and shoulders. Ouch! My parenting is not very good right now and I hate putting my daughter through this.

I should mention that prednisone changes me into a homicidal maniac! (or Mr. Magoo as my Dr. calls it). Maybe could tolerate a very small dose?

Two questions:
1) What helped? nothing I have tried has even taken the edge off...
2) If you had this, how long did it last for? My last infusion of Remicade was on Dec. 7th... Please tell me there is an end to this!

Thanks!

I am new and will create a summary - not sure yet what to include...

j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 1/6/2010 11:16 PM (GMT -7)   
I had a reaction to Remicade both during and after my second infusion.

What I had felt like muscle pain, like I'd torn every muscle in my body. Couldn't raise my arms, barely walk, felt achy-bruised all over. For me that lasted several days, back to normal after about a week. I just took Tylenol every few hours. It didn't eliminate the pain but it took the edge off.

Hope you feel better soon.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.

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