Remicade and Blood Pressure

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coachb123
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 1/8/2010 5:55 PM (GMT -7)   
Hello all.  Just had my 1st Remicade infusion on Monday and I have a quick question for my fellow Remi users.  Have anyone of you seen an increase to your blood pressure after infusion?  As my story goes, my blood pressure was normal my last visit before infusion in late November, however my pressure was as high as 144/100 during my infusion.  I asked my infusion nurse if she thought I could be having an allergic reaction to it but sh said that my blood pressure was 137/97 when she started the infusion.  Long story short, it is now Friday and my blood pressure seems to be returning to normal levels.  Other than that the infusion went well, I have had no other effects and feel pretty good cool

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 1/9/2010 4:07 AM (GMT -7)   
I had the same problem on remicade and that's the reason I had to stop it.  My blood pressure went to 189/115 during my 4th infusion and stayed there for a week.  It affected my eyesight.  It was strange, the Remicade was helping the Crohn's until then, but about a week after that 4th infusion, the Crohn's returned and my blood pressure then returned to normal.  I also had a real heaviness in my chest (like an elephant sitting on my chest).  That also subsided.  another side effect of Remicade, my lymph nodes (neck, under left arm pit and groin) were the size of golf balls and extremely painful.  that took several months to subside.  I'm now on Cimzia and it is really controlling the chron's (took about 5 months) except for the muscle pain in my legs and PAINFUL feet, numbness and tingling, Cimzia is working
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 1/10/2010 6:48 AM (GMT -7)   
vls.... I am on cimzia as well for the last 5 months. It is causing muscle pain in my legs, arms, lower back, and the bottom of my feet. My feet feel like they are bruised on the bottom. I also have horrible chest pains. My primary care dr feels this is a lupus like syndrom caused by Cimzia. My GI wants me to keep taking Cimzia regardless. I am also getting swollen hands and feet. I do not think it is helping my Crohn's because I still get fistulas, abscesses, and abdominal pain. The joint pain I was having is gone, though. I am not glad you are in pain, but it is good to see others with similar side effects. I called Cimzia and they said they'd never heard of anyone having the muscle pain.

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 1/10/2010 10:04 AM (GMT -7)   
firecracker1...my 4th month into Cimzia I developed an abscess, but antibiotics took care of it. Probably a month later the Crohns greatly improved until my first gallbladder attack. So, Started Cimzia in May, slight improvement until Aug, beginning of Sept had an abscess, Oct...good, Nov 4 gallbladder attack (I thought I had perforated - incredible pain) since that day, totally constipated and nauseated, but the Crohn's is better. Now I deal with this along with the painful, numb, tingling feet and painful leg muscles. I soak twice a day in epsom salt baths, rub Biofreeze all over my legs and feet. Nothing I can do for the "needles being stuck in a toe" feeling. Very random. I guess it's a tradeoff. My GI wants to keep me on Cimzia since my Crohns is everywhere. My colon has diseased to the point that it is half the size it was. During a colonoscopy, he couldn't tell where my colon ended and small intesting began. he said it was unlike anything he has ever seen. The docs at the NIH agreed.
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009

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