CHANGE OF MEDS

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wannerbee
Regular Member


Date Joined Dec 2009
Total Posts : 40
   Posted 1/9/2010 10:14 AM (GMT -7)   
tongue Hi all  Had an appointment at the hospital yesterday  with medicle doctor ( wot a nice fella)  explained a lot to me  Put me on MOVICOLE for the constipation  had one dose this morning and wheeee it worked  ******* will carry on with it till they tell me to stop  ***** he also took me off omeprazole what they put me on  for my heart probs(another story)    And stopped theASACOLE  and put me on  PENTASA   STOPPED THE PREDFOAM ENAMA *** thank the lord for that *****Pentasa seems to be agreeing with me Scooted through the housework this morning seemed to have a lot more energy idea  (is that my imagination )L O L  got a bit of a pain in lower back but could put that down to  bony degenerative change involving the lumbar spine smhair    Hope i am not cracking up altogether  ***************** ****** By the way am i the oldest to be diagnosed with crohnes therefore  oldest member on this terrific forum     (73) DONT LOOK IT  L O L yeah blush   ALL THE VERY BEST OF HEALTH TO YOU ALL  LOVE TO HERE FROM YOU     yeah yeah yeah TED    (Butcher)xxx

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/9/2010 11:02 AM (GMT -7)   
I hope this change of meds works for you! Good luck!
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj


wannerbee
Regular Member


Date Joined Dec 2009
Total Posts : 40
   Posted 1/9/2010 1:09 PM (GMT -7)   
Hi jesses girl thanks for your good wishes I see you are on pentasa how are you finding it i dont know if it is any thing to do with pentasa or just this terrible weather we are having but i feel cold all the time even with all the heaters going only time i warm is in bed but cant stay there all the time got a life to live L O L ***be well*** TED (Butcher)

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/9/2010 1:20 PM (GMT -7)   
I have always been cold, If I am warm everyone else is burning up. I wear long johns all the time under my pants, just a thin layer seems to help...

I have been on pentasa for over a year and it helped at first but I have been maxed on the dose at 4 500mg tabs twice a day. they just added the entocort 6-8 weeks ago and I thought every thing was great (aside from the new side effects) until last week. I have had D with urgency for 5 days now seems to be getting better each day, I am still trying to figure out what my safe foods are though. so maybe i just am intolerent to something I ate.

New symptoms (ie side effects maybe?) 10 # weight gain in one week, increesed urination....weeeeee, upper back pain, knee pain, "creepy leg," and trouble sleeping.

I am not sure if it is all the entocort, a combination of the entocort and pentasa, or just delayed effects of the pentasa. Hell it could be the B12, I started that at about the same time too!

What's your story?
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj


wannerbee
Regular Member


Date Joined Dec 2009
Total Posts : 40
   Posted 1/9/2010 2:26 PM (GMT -7)   
Hi jess A story well i dont know more like a ramble I was only diag: about 6 months ago but probably had it afair time b4 that but u can guess scared to go to doc thinking all the bad things and having him sticking god knows wat up me behindL O L NOT finaly plucked up the guts to see him turn out ok had a good lafffff cutting it short went to hosp: had the usual tests then rigid sygmostopy( speling) then they orderd flexible one could only get 45cm up met something else on the way down ha ha took a lot of biopsies few day s later told me it was crohns put me on a med forget wot it was But my own doc put me on asacole siad it was betterfurther down the road an appointment at the hosp with med doc who took me off predfoam (PREDNISOLONE) for relieving the swelling inflamatoin in rectum and the asacole put me on MOVEICOLE for the constipation and PENTASA FOR THE CROHNS I THINK had all the blood tests and x rays waiting for the results now not feeling to bad only 3 (THREE) URGENT CALLS TODAY TWO OF THEM PRETTY GOOD one the usual icky icky so there you are jess thats me up to date i am in the UK where you if i mite ask hope i have not bored you to much

wannerbee
Regular Member


Date Joined Dec 2009
Total Posts : 40
   Posted 1/9/2010 2:27 PM (GMT -7)   
SORRY DID NT SIGHN OF TED (Butcher

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/9/2010 2:44 PM (GMT -7)   
Butcher,
I am in the US, Nothern Michigan. I am a photographer, 31 years old. I have a dog named Emma (she is husky-lab) and a guy named Jesse (hench the Jesse's_girl).

Today I have spent entirely to long on the internet reading and checking into alot in general on the internet. I am sorry have to get going...my anti nausea med and cooking dinner await, oh I have no idea what I am going to make but I am sure I will have to figure that out. I try to get in here a couple time a week to check and see whats new. lets keep up on each other....
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj


jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/9/2010 2:45 PM (GMT -7)   
ps why butcher? Ted is a good name.
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj


wannerbee
Regular Member


Date Joined Dec 2009
Total Posts : 40
   Posted 1/9/2010 3:14 PM (GMT -7)   
CHANGED IT JUST FOR YOU TEDDY BOY CLOSEST I COULD GET RE BUTCHER I AM A RETIRED ONE SEE YOU SOON STAY WELL TED.....hi there TB could you refrain from using all caps in posts unless your eyesight forces you to do so as it is sometimes wrongly taken as yelling and i know you are not....how are you doing btw,,,,lyn

Post Edited By Moderator (Howlyncat) : 1/27/2010 6:25:52 AM (GMT-7)


wannerbee
Regular Member


Date Joined Dec 2009
Total Posts : 40
   Posted 1/31/2010 3:56 PM (GMT -7)   
sorry lyn ijust posted with caps again will not do it again lots o hugs ted
             HI   I"M TED                                                                                DIAGNOSED CROHNS IN 2009  CURRENT MEDS PENTASA 2X 500 MGs TWICE ADAY    1SACHET A DAY MOVICOL  1PREDFOAM ENAMA ONCE A DAY                   IX INSPRA    1 AMIAS 1 CARDICOR ONCE A DAY                                        LAUGH AND THE WORLD LAUGHS WIV YER


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/31/2010 4:09 PM (GMT -7)   
Just wanting to say hi Teddy. I can tell by your posts that your a fun loving kinda guy! Good luck and keep us informed.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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