flare up? or meds change??

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Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 1/10/2010 8:44 AM (GMT -7)   
Hi
I am used to having at least 6-8 bouts of running to the toilet a day and on bad days sometimes up to 20 times a day, but just before I started on my medication change of questran light (cholestramine) instead of the normal questran, only a days difference. I am now bloated, abdominal discomfort and have had some nausea and am finding it really hard to go to the toilet. My Stools have been quite hard, close on constipation, which is not normal for me. Yes, I like the fact I am not running to the toilet every half an hour or so but could it be the meds change or is it a flare up. I have not felt brilliant the past 4 days and have also been experiencing quite a lot of joint pain, so much so that the other night as I was walking my leg actually gave way.
I cant remember when last I actually had a normal bowel movement in the last 3 years! I am concerned as I only go through my normal doctor and scared that they dont know as much as the GI, or specialists.
For some reason although I am still on my maintenance drugs and have blood tests every 6 months, I do not get appointments through to see nay Gastro specialists now, I used to go to them for check ups every 6 months but now they discharge me from their clinics and if I have any problems I go to the doctors. I suppose its the NHS trying to save money again!!
But I am concerned now that I am flaring up, but the pain is not as bad as previously before my resection.
Help?!
Michelle Ashworth 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/10/2010 8:48 AM (GMT -7)   
I have heard that sometimes Questran can be hard on some people's system. Maybe try just doing 1 sachet a day to start and slowly work your way up. Another thought is some use codeine to help slow their bowels, maybe you should ask your GI for that instead. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 1/10/2010 8:56 AM (GMT -7)   
I am only taking one sachet a day atm as I did find that more than that was preventing me going to the toilet, plus I am on cocodomols 4 x a day, which is 30mg codeine and 500mg paracetomol, and I take 2 tablets. Which I was told that would help with running to the loo as well. I am also on iron tablets which seem to block me up too much if I take the allotted number so I had to cut those down to one every other day, as I was getting constipated and literally had to force any stools out and was unbearably painful!
I just dont know what to do atm, I have got a doctors appointment on thursday, and have blood tests tomorrow morning to go to, so hopefully the blood tests will be ready for the results by the time I go to the doctors.
Michelle Ashworth 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/10/2010 9:02 AM (GMT -7)   
Hey Michelle,

This is off topic, but could you remove your last name from your signature, it could cause problems for you (spammers, etc). To change your profile, at the top click control panel then edit profile.

Thanks
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 1/10/2010 9:19 AM (GMT -7)   
done , sorry!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)

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