You sound very similar to me after my surgery, I could not stop myself having to run to the toilet and constant accidents. I take iron tablets which do stop me a little, as well as constant loperamides (immodium) which i sometimes take between 10 and 15 a day (8 max for normal peolple!, but my specialist said i could take up to 32 a day)
I also got put on cholestramine (questran) which also helps with the constant D, and as a last resort if all else fails I have an emergency bottle of kaolin & morphine as well.
Even after 2 years of having surgery I still have to go to the toilet frequently and sometimes it doesnt matter what I eat, but guaranteed within an hour or two hours of eating I am on the toilet. I am not on humira but still get the itches, which the cholestramine is supposed to also help with, and usually a couple of weeks before \i go for my B12 injection i constantly itch.
Are you on any form of B12? And maybe ask your doctor about questran as well, it does help to bind things, it has not been completely successful for me yet but who knows, what doesnt work fully for one person could work with another!
I can fully relate to your problems and understand how you feel, I got so bad that I wouldnt venture out the house in case I had any embarrassing episodes, I hope it all comes right for you, and please let me know what your doctor says, as I would be interested to see if there would be anything my doctor could do for me in the same regard as well.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
questran light (3 sachets/day)