crohn's healed after 37 years

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hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 191
   Posted 1/10/2010 11:35 PM (GMT -6)   
I am 58 and had crohn's for 37 years. I had never been in remission, had 3 bowel resections and one fistula repair. I was prescribed the usual crohn's meds over the years, including remicade. In January, 2009 a physician recommended I start mega probiotics, L-glutamine powder, tart cherry juice concentrate, cod liver oil, calcium magnesium, 2,000 mg of vitamin C, sublingual B12 and B complex, and continue the multiple vitamin and digestive enzymes I was already using. I was also told to limit yeast breads or eliminate them and all processed foods.

I followed instructions exactly and by September, 2009, the rashes, itchy eyes, dermatitis, joint pain, hot and cold sweats, dull headache, swollen tongue, and multiple trip to THE BATHROOM were gone.! The cramping, abdominal pain, loss of appetite and bloating, even when I was empty disapeared within 30 days. This is the first time a physician drew blood and ordered a full stool kit to look for a CAUSE. She found that all of my symptoms were consistent with candida overgrowth and the tests proved it. This was my last resort. I had all but given up even caring about life, but I have gained 6 pounds, I have a huge appetite and love cooking again and people no longer accuse me of anoexia!

If this sounds too easy, research candida albicans and crohn's, and you will find a wealth of information that will explain exactly how the candida gets a foothold in your gut and the roller coaster begins.

Don't give up.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/11/2010 9:39 AM (GMT -6)   
I am glad to hear you have found some treatment to get your Crohns under control. I too have had this darn disease for almost 35 years, but luckily for me I have reached remission with the help of Asacol. I hope you can continue to enjoy your remission.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 1/11/2010 10:37 AM (GMT -6)   
What probiotic are you on? Did you limit bread or eliminate it?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


1025
New Member


Date Joined Aug 2006
Total Posts : 8
   Posted 1/11/2010 1:18 PM (GMT -6)   
congrats. it is a relief when you find a way to control or eliminate symptoms.
 
 i've had crohn's about 28 years. these days i have no symptoms, none for about 6 months. i got temporary relief with activia yogurt (probiotics) which probably rebalanced my bacteria.
 
these days i take a large fish oil pill supplement (interesting how your physician prescribed cod liver oil) and drink 2-5 cups of green tea daily (great for digestion). i don't how or why it's working but i am great. i eat carefully, (fish, fruits and veggies as much as possible) but don't avoid anything completely. i really watch my sugar intake, to avoid bacterial imbalance. no drug therapy required right now.
 
it's important to control stress levels, too. i excercise 4-5 times a week walking or running.
chrohn's for 25 years
flareups every 3 years, then every year past 5 years.
prednisone during flareups
20 years on asacol
tried immuran (white cell count plummeted)
doc recommended remicade
 
i started looking at my diet. made changes. eat probiotic yogurt couple times a week. limit refined sugar.
 
now no meds for over a year. no flareups or symptoms.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17927
   Posted 1/11/2010 2:04 PM (GMT -6)   
Where do you buy Mega Probiotics and who makes them?

I'm glad you finally found remission, I too have never been in full remission yet (going on 19 yrs now) and have also altered my diet, avoiding all processed foods/beverages, fast-foods, caffeine, animal fats and refined sugar (as well as artificial sweetners, I use Stevia when needed instead, or honey).

The probiotic I've used was Primadophilus Reuteri made by natures way but recently switched to one called Pro-Bio TX-11 made by Sangsters, but I'm curious to know who makes Mega Probiotics and where you buy it from.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1100
   Posted 1/11/2010 9:02 PM (GMT -6)   
Pb4,
 
Just curious, what prompted you to make the switch to a different probiotic?
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 1/11/2010 10:57 PM (GMT -6)   
Is the probiotic you are referring to in the post the Complete Probiotic from Mercola?

  • pb4
    Elite Member


    Date Joined Feb 2004
    Total Posts : 17927
       Posted 1/11/2010 11:01 PM (GMT -6)   
    Hi 73monte :)

    I switched cuz the primadophilus pretty much doubled in price (I was sooooooooo pissed about that) so I thought I'd try the Sangsters brand which the lady told me was not only comparable (and much cheaper for even more pills) than the rueteri but infact better as it has quite a few more strains (including the same strains and strength as the primadophilus) so fare after using 1 and a half bottles I haven't noticed any difference (even thought the PR is 5 billion and the ProBio is 10 billion) so whatever, I figure as long as it works just as well and it's cheaper & I get more for my money,  that's fine by me.

    :)


    bee propolis caps 500mg one cap twice/day
    omegas 369 caps one cap twice/day
    probiotics 10 billion cfu once/day
    vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
    Prodiem fibre supplement one cap before bed
    I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
    I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
    ~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


    Steakum824
    Regular Member


    Date Joined May 2003
    Total Posts : 40
       Posted 1/12/2010 10:12 AM (GMT -6)   
    Wait...a high sugar diet can cause an overgrowth in the bacterial balance?

    No wonder the antibiotics I'm currently on are making me feel so much better.

    That's hard though, because I find that high-carb/high-sugar foods are overall "easier" for me to eat. It's easy to find something with no skins, seeds and uncooked chunks that way....but I shall try to find better alternatives.

    hld4good
    Regular Member


    Date Joined Jan 2010
    Total Posts : 191
       Posted 1/12/2010 1:02 PM (GMT -6)   
    pb4, I switched to Complete Probiotic by Mercola because a stool kit showed I still wasn't digesting meat and veg fiber completly. It was advertised to target meat and veg and it seems to work much better.

    The last stool kit also showed that the candida overgrowth is now at pathogen levels not overgrowth, so I will always take probiotic. From what I have read, once candida albicans gets a foothold in the body, it will always be an issue. I prefer not to take the prescr. antifungals because I have a history of super sensitivity to many meds.

    Sugars and carbs are food for candida. Starving it works, but avoiding these things altogether just isn't realisitc. I limit them, take the probiotic, and, slowly, the candida loses the war. I used to eat too much just to satisfy my hunger because I couldn't fill up on fish, meat and veggies. But, now that I am digesting food and absorbing nutrients, I can eat those things without bloating up like a balloon.

    There are many quality brands of probiotic out there. Mercola is just one of them. You may find a much better price in your region.

    BeeSting
    Regular Member


    Date Joined Nov 2008
    Total Posts : 392
       Posted 1/12/2010 3:39 PM (GMT -6)   
    I am glad that you have found a treatment that worked this well for you, I have actually read about quite a few Crohnies doing the same treatment as you've done, and with great results. Many of those using Low dose Naltrexone, LDN, is doing this yeast treatment and changing their diet at the same time. Yeast is not at all easy to get rid of, you need to follow the advices and stick to it through hel and high water.
    To make it easier you may try a product called Myco plex, a natural anti-fungal, which I've learned is so effective on some people, but of course, I can't promise it will help everybody. You can read more about it at: http://www.antyler.com/detail_short.aspx?id=105

    MoobyDoo
    Regular Member


    Date Joined Sep 2009
    Total Posts : 212
       Posted 1/12/2010 9:58 PM (GMT -6)   
    What is the intended purpose of the tart cherry juice you mentioned?  I read your post to a friend of mine who is in the medical field and she said tart cherry juice would likely have anti-inflammatory properties and could mimic the effects of prednisone! This true?

  • pb4
    Elite Member


    Date Joined Feb 2004
    Total Posts : 17927
       Posted 1/13/2010 1:19 AM (GMT -6)   
    Cherries have an antioxident and anti-inflammatory affect, tart cherries are known to be beneficial for body aches/pains especially after exercising.
     
    Check out this link...you may have to copy & paste into your search engine.
     
     
    :)


    bee propolis caps 500mg one cap twice/day
    omegas 369 caps one cap twice/day
    probiotics 10 billion cfu once/day
    vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
    Prodiem fibre supplement one cap before bed
    I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
    I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
    ~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

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