How do you know when your Crohns is playing up?

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Regular Member

Date Joined Jan 2010
Total Posts : 31
   Posted 1/11/2010 1:34 PM (GMT -6)   
My specialist asked me how im feeling and I told him I feel ok, but how do I really answer that question? After he asked me that I had a good think and now I dont know if I am feeling ok, or whether Im just so used to feeling unwell that is just seems normal now. I have had Crohns since 2005 but only just diagnosed last week. I dont know if how Im feeling is normal or whether its something that needs mentioning.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/11/2010 2:16 PM (GMT -6)   
When I am flaring I will have an increase in symptoms. i.e. More frequent diarrhea, cramps or obstruction symptoms.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 1/11/2010 3:06 PM (GMT -6)   
Usually the first signs i get is unexplained weight loss and extreme tiredness and maybe crampy pain. Bev x
Diagnosed at 13 now 43
Reversal of temp stoma scheduled 27th Jan 10 :-)
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.

Regular Member

Date Joined Apr 2007
Total Posts : 23
   Posted 1/11/2010 5:01 PM (GMT -6)   
I have asked that same question also. I was diagnosed with Crohns in the terminal illeum 3 years ago after a routine colonoscopy. I was alittle shocked. My symptoms are mild with frequent small flare ups. What type of symptoms are you experiencing?

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 1/11/2010 7:26 PM (GMT -6)   
Counting bowel movements daily and weighing myself daily. For me if the bm's go down by more than half is a warning, if none at all thats a wake up call that things are about to hurt. If my weight goes up a few pounds a day for 2 days that also signals potential problems coming. I track both (weigh and bm's)in a diary. Once I detect the changes I stop eating and use just fluids for at least 1 day.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.

Veteran Member

Date Joined Sep 2005
Total Posts : 517
   Posted 1/11/2010 8:02 PM (GMT -6)   
well your question implies that you have not communicated succesfully with your doctor.

if you are referring to your primary might realize that they are in charge of ordering tests such as blood test. It is your job to be open to dialogue regarding any changes to the results of the tests from previous visit. You should in return initiate the dialogue as to if any changes in the blood test as compare to previous visit has occurred ...however minor. There is a normal range for blood test values. So if there is any trend within the range, then you know before it gets out of the range. For example if something goes down even slightly from before and there is a feeling you get as a result then its certainly possible you feel the way you do as a result of the changed value. For me its potassium and that is a tricky electrolyte because of the serious implications in either of the high or low areas. If you are severely flaring ,chances are, your potassium is out of the normal range. why not keep an eye on it when you feel so-so. I also find that changing it is also difficult as this is not something you can suddenly consume a bunch of bananas and you are better. It is something to watch all the time so you should get blood test every 6 months and this requires you have some idea of how you feel and what the values of your blood are at that time so you can gain some knowledge from the blood test. So if I get so muscle twitch i might drink some gatorade that day instead of some other drink.

Veteran Member

Date Joined Feb 2003
Total Posts : 1432
   Posted 1/11/2010 9:55 PM (GMT -6)   

Tell your doc exactly what a typical day is like for you.

How many bm a day, any nausea, any pain (rated on a scale of 1-10). Problems with certain type of foods and if you're only able to tolerate certain diets like low residue. If something is really bothersome to you and you're not sure if it goes with the package, just ask.

Just be honest.  They are the specialist, and will determine if you're in need of any help/medications.

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