is there something else wrong?

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misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 1/11/2010 4:22 PM (GMT -7)   
Hi! I have had Crohn's for two years and have never really gone into remission, by that I mean, I have had D everyday for 2+ years and haven't seen anything solid since! I vomit on occasion and have small moments during the day where I'll have swells of pain in my abdomen (usually just below my rib cages on either side), but the pain will usually subside with a few deep breaths.

This weekend the pain isn't going away! I am in the process of switching dr's for a new opinion b/c my other one just keeps putting me on prednisone. The kind of pain that I'm talking about is excruciating! It comes on dull and then gets stronger... then goes away for a while and comes right back!


I am eating chicken broth, saltines, water, and ginger ale... still D. Could this be something else? Have you all experienced this before? Is there anything you can take over the counter to help with the pain that doesn't make everything else worse? And are there any "home-remedies" you might suggest? thanks!!!

wondering if something is wrong..
27y/o, diagnosed with Crohn's Disease at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, occasional abdominal pain and sometimes mysterious rashes

Post Edited (misspriss82) : 1/11/2010 4:27:28 PM (GMT-7)


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/11/2010 5:05 PM (GMT -7)   
Miss, You are describing what I go through with a temporary obstruction.(I'm assuming this is what others call a partial obstruction but I'm not sure if these are the same thing). I call this type of pain Cyclical. It decreases to nothing or just an ache then builds up in strenght until 10 to 20 seconds before the peak it gets unbareble and 10 to 20 sec. after the peak it's unbareble then it decreases again and starts the cycle all over again. Usually mine cycle every 5 minutes when very bad cycles every 2-3 minutes. This can go on for hours or days. The shortest is probably around 4-6 hours the longest I've ever had was 58 hours, that was brutal.I take morphine to try to take the edge off but it can't touch the peaks. Only in the hospital can that kind of intense pain be totally controlled. The only thing I can recommend is to ensure you take fluids only, no solids.I generally drink Gatoraide or water. Using a heating pad seems to help me. I will usually vomit a number of hours (variable) into the ordeal which hurts like crazy during and afterwards but is a sign that the end is coming, hopefully in a few hours. I'm so sorry your going through this, it's very tough but it will end eventually. Then the trick is to figure out what caused the eppisode. Food? Usually my problem! Best of luck and some prayers for you! Rob
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 1/11/2010 5:12 PM (GMT -7)   
That is the pain I get just when I have normal Crohns flares - not obstructions. They come in waves and they are mind numbing. This is how my pain has been since I was dx 6 years ago.

My current GI thought I had an obstruction of sorts so he sent me for a small bowel follow through a few weeks ago and all that was found was the normal narrowing indicative of Crohns.

I guess for some lucky people this is the abdominal pain they get with flares. It's awful.

I control mine with Vicodin and deep breathing to get through them.

IMO, you need to find a new GI that will do something more than through steroids at you and you need to rule out obstruction. If that's not the case, you may be like me and deal with this pain when you have a major flare. Your new GI will likely want to put you on something else to get this flare under control.

Good luck =)

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 1/12/2010 5:47 AM (GMT -7)   
hey! Thanks for the info! I am feeling better this morning, but am still having D more than usual. The pain is unbearable, but I am not feeling any this morning of the magnitude I've been feeling the past 3 days. *fingers crossed* I've never had an "obstruction", so I'm not sure what that would feel like, however, last time this happened it was just a "narrowing" like Aimee mentioned. I go to see my new Dr. on Thursday!!

Questions though.... about what y'all do for a living? Are you out a lot with this, since you're taking vicodin and morphine? I don't have sick leave with my job and I work on commission - so this is a stressing situation!! I have only taken tylenol and that doesn't even begin to curb my pain. Big pain killers scare me though.
27y/o, diagnosed with Crohn's Disease at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, occasional abdominal pain and sometimes mysterious rashes


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/12/2010 7:30 AM (GMT -7)   

Hi misspriss82 it sounds to me at least that you are having partial obstructions.  With my obstructions partial or full I will get pain that comes in waves much like labor pains, I cannot move air out of either direction, my stomach gets bloated and hard and makes high pitched squealing noises, and then the nausea and vomiting hit.  If its a partial obstruction I will have some diarrhea with it as only the liquidy stuff can get past the stricture or narrowed area.

I am glad that you are seeing your doctor soon, as I think you need more tests ran.  As for the pain meds I take 1/2 tab of Percoset 3 times day.  This helps to keep me more functional and better able to go thru my day.  I still have pain, mostly joint, but the pain meds really do help.  I think you need to talk to your doctor about getting some relief.  Some have had luck with Tramadol, it doesn't make you as groggy.  I can't take it as it doesn't agree with my system.

Good luck with your doctor appt and keep us updated on what he says.

 

Hugs

Gail*nanners*


Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 1/25/2010 11:53 AM (GMT -7)   
Hey! Went to the new dr. and he was soooo informative!! I have been living with Crohn's for two years and my other GI dr. made it seem like it wasn't that serious, but my new dr. explained everything to me in terms I could understand! I had a drexa scan last week since I was on steroids for so long and unfortunately ... it came back showing that my hip bones aren't as good as they should be.


He mentioned putting me on remicade, which I have heard a lot of mixed reviews about. Is anyone else on it? I had an MRI today and will find out more later on that..... so wish me luck!! On the road to feeling better, but have a long ways to go first.
27y/o, diagnosed with Crohn's Disease at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, occasional abdominal pain and sometimes mysterious rashes


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/25/2010 1:25 PM (GMT -7)   
Hi misspriss82, I was on Remicade for over 5 years the drug gave me my life back. I am now
on Humira. The Remicade should help you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/26/2010 1:07 AM (GMT -7)   
Yes I'm on remicade as well. I just stopped one 5-asa drug and an now going to try another to see if it has less side effects. I didn't start on morphine I started with tylenol with codine then just codine (too much tylenol), demerol and then morphine. This process took about 3 years. I worked until the morphine stage.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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