Dr appoint tomorrow..have a question

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JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 1/12/2010 7:15 AM (GMT -6)   
I just had my third infusion of Remicade the week before Xmas and I don't feel like it has helped at all.  I feel like I did before the Remicade started.  I am thinking that already, the Remicade isn't working on me.  This is one of my problems is that no drugs seem to work for me.  I have a bad reaction to most drugs.
 
Here is my question.  I see my GI tomorrow.  If he takes me off the Remicade I know he is going to want to try Humira.  I am actually very nervous about Humira because of the shooting myself and the darn sting it gives.  I was wondering would Cimzia be better to try then Humira.  I don't mind the IV's as I do that now with Remicade.  Has anyone taken both Cimzia and Humira and which would you recommend.  I may also ask about LDN but I don't know if my doc will know enough about it. 
 
I am just feeling anxious about this visit as I am getting really frustrated with no drugs working on me.  I have thought about clinical trials but that is a short term not long term solution.
 
 
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/12/2010 8:15 AM (GMT -6)   
Well I have heard from others who use Remicade that it can take more than 3 infusions before it really takes affect. My personal opinion is that you should give it a little more time to see if it will really work for you before switching meds again.

Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 1/12/2010 8:21 AM (GMT -6)   
Hey JavaJay, I agree with Nanners, give the remicade a little more time. I also just had my 3rd infusion last week and was feeling great for awhile, now I'm having a little side pain, but I expect it to keep getting better. I tried Humira and it didn't really work for me but the shots weren't so bad. Talk it over with your GI and see what he/she thinks. Hang in there!

*hugs*

Dana
35 year old Female

Entocort EC 9mg per day and Remicade

Tried Remicade 2 yrs ago for about a year and a half and loved it, got off it due to costs, tried Humira and it just didn't work for me so now back on Remicade.


~Trying to avoid surgery as long as possible~


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 1/12/2010 8:24 AM (GMT -6)   
My problem here is that after both the first and second infusion, I felt like a whole new person.  Going to bathroom only 3 times a day.  I had energy.  No bleeding. No urgency.  After the 3rd infusion however, I was back to pre-Remicade.  I am going about 6-8 times a day with some major urgency.  I developed a hemmie, I am bleeding again, and I have less energy.  I also am breaking out with pimples on my face again which also had stopped.  All signs show that I am flaring again and it feels like the Remicade did nothing for me.

36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily

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