I feel so bad for your daughter; she is just too young to have to deal with these kind of problems! I know that is not helpful and I am sure you have heard it before. I do think that she will probably end up developing a really strong character as a result of having all these health issues. I still hope and pray that she is able to find a solution for her problems, though, so she can live a normal life!
I am still happy with my surgery (sub-total colectomy with connection from small intestine to rectum). I feel much healthier, can eat more normally, have more energy, just feel happier in general. The diarrhea does limit me in going out for more than 4 hours at a time. I just don't feel comfortable having to use friend's bathrooms or even public restrooms when others are present. It is embarrasing to have diarrhea! I can (and do) take Lomotil, Immodium and Vicodin (for "drying-up" effect) about 1 hr. before I go out and then again before I go to bed. I have good control, it is just that the pressure sometimes builds up and it is kind of uncomfortable. I have to keep experimenting on when and what to eat if I am going to be away from my house (bathroom) for more than about 4 hours. There is one other bothersome problem after this surgery . . ."butt burn." I am not trying to be funny or weird, there really is such a problem after this surgery (maybe for life . . . I hope not). The stool that comes out will burn sometimes! My doctor said that the colon seems to put a protective mucous on the waste so that the acid and bile salts don't burn. Now I have to use Desitin or Vit A/D ointment daily to protect myself. None of this is fun, but I do feel healthier than pre-surgery. Write to me again if you need help!