Doctor seems convinced I have Crohns

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sickinny
New Member


Date Joined Jan 2010
Total Posts : 3
   Posted 1/12/2010 6:05 PM (GMT -7)   
First of all, let me say that I'm extremely grateful for the wealth of knowledge on this forum and everyone's willingness to help each other out here. If my colonoscopy does confirm, then I'll certainly be around. I'm 23 years old right now.

Here's my story:

about a year and a half ago, after a night of binge drinking I woke up with horrible abdominal pain. Constipation started the next day and started to gradually get better about a week later. I always slept on my right side the duration of symptoms because I couldnt stand the feeling of "heaviness" on my right when I slept on my left side. I did also have significant cramping in my upper left abdomen. It felt like the waste was just getting stuck up there. I did also have alot of bubbling and dull discomfort sensation in my lower right; but it was never terribly painful or sharp. It took about 2-3 months for the constipation to go away completely.

I had no symptoms until this fall, when, again after a night of lots of drinking, I began to experience the same symptoms and ongoing discomfort in my upper abdomen. I went to the doctor and was prescribed prilosec on suspicion of an ulcer. The prilosec did a great job of reducing my acid reflux symptoms and my problems went away in a week! Then when I stopped prilosec 2 weeks later, the acid symptoms and abdominal discomfort came right back. After about a month of prilosec I began to develop very very hard stools and abdominal cramping. The acid reflux did not come back after stopping prilosec, but the chronic constipation has never stopped. I've also had slowed emptying of my stomach; especially when I eat Pizza.

I've been taking miralax and metamucil. I tried to stop the metamucil, but then I just cannot pass anything but small skinny stools due to the miralax. The miralax has nearly completely eliminated any pain in my abdomen. The dull sensation and bubbling sounds that used to come from my lower right are gone, and the upper left abdomen cramps are much more infrequent.

After telling him this story, he said its very likely I have Crohn's; so much so that he was willing to prescribe crohns medication immediately at the time. I have a colonoscopy schedule for a week from now (Scared! I've never had anasthesia). So, what do you guys think? Sounds like I'm about to join the club? Is there a chance that I could have Crohns in my small intestine and the doctor would never see it? Has any ones symptoms started in a similar way?

So to recap:
Chronic constipation
Slow emptying of stomach
Occasional dull pain in lower right abdomen relieved by miralax
Cramping in upper left abdomen
No weight loss/no diarrhea
No blood in stool
No mouth ulcers
No joint pain

Post Edited (sickinny) : 1/12/2010 6:17:59 PM (GMT-7)


Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 1/12/2010 6:40 PM (GMT -7)   
There's so much variation between individuals with this disease that only a medical professional with the right diagnostics could really give you an answer.

As for the colonoscopy, don't sweat it. In the unfortunate event you do have Crohn's a colonoscopy will the very least of your worries. The prep sucks but the actual scope is quick and easy.

If I were a doctor, which I am not, I would ask you about your diet. Particularly the amount and type of carbohydrate that you intake.

Good Luck
JB
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/12/2010 7:18 PM (GMT -7)   
Did you ever consider the pill camera in addition to scopes?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 1/12/2010 7:22 PM (GMT -7)   
Hi! First off I'm so sorry you're not feeling well... whether or not you have crohns those are not easy symptoms to deal with. This disease varies so much from person to person it's hard to say whether I would think you have it... that said I really really hope you don't! Don't worry about the colonoscopy, getting knocked out for it rules, it's kind of an awesome dreamy feeling and you don't feel a thing til you wake up and they give you cookies. The prep sucks, but what can you do! It will be anti constipation anyways, which is always a plus if it's a problem for you :)
I'll also second Former58D on the diet thing, it is so central to how most of us deal with the disease and very much based in trial and error. I would try keeping a food diary until you see your doctor next and discussing maybe what triggers your pain?

Anyways good luck with everything and I hope you get feeling better very soon!!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/13/2010 8:57 AM (GMT -7)   
scool First off, Welcome to Healing Well! Secondly, the success of the colonoscopy often depends on the location of the disease and the ability of the Dr. to manuver the scope into the small intestine far enough to find any disease. That's why MMMNAVY sugested the pill cam, it can cover ground the scope cannot. My first 3 colonoscopies didn't find anything. The 4th time my gastro-enterologist got the scope up far enough to definately find disease. Third, the anasthesia is no problem, a very gentle way to fall asleep, waking is no different than normal, just a little slower. Keep smiling:-) and please let us know how it went for you.

Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


farcry
Regular Member


Date Joined Oct 2009
Total Posts : 25
   Posted 1/13/2010 12:26 PM (GMT -7)   
Did he ever consider the possibility that you might have irritable bowel syndrome, another bowel disorder? It's much more common than Crohn's and although I'm not a doctor it seems to fit your list of symptoms better than Crohn's. Unless of course they did a blood test and you were shown to be anemic with high white cell count and a high crp rate. Or if they did a small bowel follow. But just your symptoms I'd say you have IBS.

Another thing, people who have bowel disorders (IBS, IBD, etc), usually don't handle alcohol very well. As a friendly piece of advice you might want to quit drinking to avoid having troubles. Good luck!

sickinny
New Member


Date Joined Jan 2010
Total Posts : 3
   Posted 1/13/2010 6:55 PM (GMT -7)   
Thanks for the helpful replies!

Former58D, I eat alot of bread. Subway, sandwiches, etc. Is that bad? I had the blood test for celiac and it was negative. Foods like broccoli seem to cause the most pain for me, so I've been avoiding it lately.

MMMNAVY, thanks for the idea. I'll definitely bring it up with my doctor if he doesnt see anything in the colonoscopy.

farcry, yes, the doc said that in the scenario that he doesnt find anything, it would be very likely be IBS. Honestly, that outcome seems even scarier considering there's no clear path to fix this then at all. After everyone's suggestions though, it seems like I should push on to get my small intestine checked out as well. I've had blood tests already (How the hell it costs the insurance company $1800 dollars to do some blood tests is beyond me) and everything was normal. No anemia or any other problems there.

CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/13/2010 8:34 PM (GMT -7)   
I recommend looking into probiotics and asking your doctor about them.
500 mg of Pentasa 4 times a day, 1 Florastor 2 times a day, 2 mg LDN at bed time, 1400 IU Vitamin D3

Prior medication until LDN:100 mg Imuran a day - GI wanted 150 mg, but I didn't want to destroy my liver, 1 Gram of Pentasa 4 times a day, 3 mg of Entocort 3 times a day, Librax as needed

AKA:Chronnieman


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 1/13/2010 11:35 PM (GMT -7)   
I agree that alcohol is very harmful for anyone with a digestive problem. I know how scary it is while you're waiting to find out what is wrong. I was having diarhea and pain for seven years before the crohn's was visible on my ileum. But that was long ago before colonoscopies. Doctors couldn't diagnose it until the damage was obvious. The colonoscopy is easy. The prep is a hassle but you sleep thru the whole thing and wake up with no memory of it. Tell your doctor what you eat and how often. Good luck. I hope you are feeling better soon.
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