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imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 1/12/2010 8:50 PM (GMT -7)   
Anyone else have big issues with dehydration?

I just wound up in the hospital for 2 days with severe dehydration which caused my heart rate to go up to 180...then...a day later I had to go back to the ER to get another bag of saline because I was dehydrated AGAIN (even though I was drinking ALL day). I'm not even having as much D from my Crohn's as usual, so I'm confused as to why this keeps happening.
Also, my hands and feet keep getting this tingly sensation which the ER doc told me that was caused from the general dehydration because the only electrolyte that was low was my potassium. (the low potassium doesn't make much sense because they gave me potassium pills and IV in the hospital).

Sooo, what do you guys do to make sure you keep hydrated? And has anyone else had experiences like this?
_____________________________
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Pentasa 1 gm/4x daily; 6-MP 150 mg; Entocort 9mg


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 1/12/2010 8:59 PM (GMT -7)   
yes. You should read the oral rehydration therapy from wikipedia: http://en.wikipedia.org/wiki/Oral_rehydration_therapy
Rehydration is a combination of glucose, salt and water

During the home-prepared stage, care should be taken to select the proper type of fluid to administer. The fluids given must contain both sugar and salt in the proper amounts. Liquids without both these components must be avoided. Too little or not enough of either can be ineffective and/or detrimental.

Where ORS sachets are not available, home-prepared solutions are typically used. Many recipes exist, but most are some easy-to-remember combination of water, sugar, and salt. An example of such is 1 level teaspoon of salt, 8 level teaspoons of sugar, and (optionally) 4 ounces of orange juice; mixed into 1 liter of clean water.

RACERGIRL
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/12/2010 11:05 PM (GMT -7)   
I am a newby to this site but I have definitely had the problems that you are describing.  I always drink a minimum of a gallon of water a day and could never understand why the Dr.'s were telling me I was dehydrated all of the time.  Also had a lot of problems with inaccurate test results because of supposed dehydration.  The potassium problem I am finding seems to go along with the Crohn's as well.  I had always assumed it was from the loss of blood but I now have realized that I just don't absorb or retain enough for some reason (I'm told by my GI that it's common with the disease).  Most of my hospital stays have been prolonged only due to my low potassium level.  Almost went into cardiac arrest from such low potassium so keep an eye on it if it is something that you are having trouble with.  (I'm sure your Dr. will talk to you about it but in the ER you can't always be sure.)  It might be that, as in my case, you need the potassium supplement not the additional liquid.  I get mine in a liquid form because my intestines don't like most solid forms of supplements.  Not sure if this was helpful, but it's kept me out of the ER lately.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/13/2010 1:48 AM (GMT -7)   
Gatoraide has sugar, salt and potassium and thats what I use to rehydrate,espesialy in a flare up. I noticed that I get cramps in my legs and stangely my tongue when I'm dehydrated.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/13/2010 8:30 AM (GMT -7)   
I am like Grandpato2 in that I drink Gatorade. My GI told me to sip it every 5 minutes. Also, when feeling dehydrated and feeling crampy in my legs etc I immediately try to eat a banana and that helps. Hope you get this figured out soon.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

PK4881
Regular Member


Date Joined Aug 2004
Total Posts : 21
   Posted 1/15/2010 2:06 PM (GMT -7)   
 
6mp is probably the reason you are dehydrated, ask your doc to cut it to 100mg a day.
 
PK

zztop
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 1/15/2010 11:20 PM (GMT -7)   
Having crhohns disease makes you dehydrate a lot quicker than normal due to the amount of fluid lost from toilet stops. I was told to keep up
fluid intake but didn't listen and have had 4 bouts of kidney stones (very painful) was told by dr. that crohns also causes them.

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/16/2010 6:49 AM (GMT -7)   
Hi i used to suffer with dyhdration alot I now just make sure i drink at least 2 litres of fluid daily also adding a bit of extrs salt to my meals. Bev x wink
Diagnosed at 13 now 43
Reversal of temp stoma scheduled 27th Jan 10 :-)
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.


Alford
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 1/18/2010 11:53 AM (GMT -7)   
You could try coconut water (not coconut milk.) Also, Powerade Zero is a good electrolyte drink without sugar.

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 1/18/2010 12:10 PM (GMT -7)   
I used to use Dioralyte when I was dehydrating and Lucozade - not sure what the US equivalents are but these were best things I could find in the UK, still have them occasionally them now especially after nights out!
 
 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/18/2010 2:51 PM (GMT -7)   
winkWow, ZZTop has a new member! Awesome!rolleyes
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 11:24 AM (GMT -7)   
I've had 9ft removed resections and lately and have been having really bad issues with dehy. the valve that slows down our fluids and food absorbtion wa cut out, I have what is called dumping syndrome. I put electrolyte in everything I drink a good one is ElectroMix tm I get is at henrys or sprouts here in san diego comes in flavors. I also use the one from isogenix check out flavors at emergenc.com I'm also mountain biker and this past summer i had mild heat stroke in remote mountains and had to be paramed, found by hiker. so I know exactly what your going thru. also my arch of my feet cramp that is another sign of dehy.

artist guy


crohnniedoe
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/22/2010 12:08 PM (GMT -7)   
Cramping is the number one sign of low potassium,,,,charley horses is what we called it when we were young. A good way to gauge your hydration status is how much you are urinating, not pooping, also, if you lay your hand flat on a table and pull up the skin on the back of your hand it should go down right away. If it stands up, we in the medical profession call this tenting. Tenting of more than 4 seconds is pretty bad hydration and needs to be improved as soon as possible. Everyone is right in telling you to use an electrolyte drink. Hydration for Crohnnies is different than hydration for your normal joe. we don't absorb fluids and electrolytes like your normal counterpart, so we need to do more to help our bodies out. Salt chemically helps draw fluid toward it so if you add salt to your body, it will pull fluid into your body and keep you hydrated. But you have to be careful not to use too much salt, theres a balance that our bodies need. Plain water will go right through us, that's why people who drink a lot of water can still become dehydrated. Also, be careful of water intoxication,,,,,you can drink too much water and shake up your electrolyte balance.
I've been having problems with low potassium also, a good sign of it is charley horses/muscle cramps. try eating foods high in potassium, bananas, dark green leafy vegetables, potatoes, but if you are anything like me, you cant keep up with it all and I'm intolerant to a lot of foods right now. Electrolyte drinks sound like a good idea to me,,,,,one to two a day is what i might try. I am also getting my labs checked more frequently and I figure if the insurance company has a problem with this I'll remind them they aren't paying for an ER visit or hospital stay.
Remember, our intestines were designed to absorb nutrients from our food and to absorb fluids from our drinks. With our condition, they don't do as good of a job so we have to tweek it and help it along. I can't take supplements because my body won't tolerate them, they come out just like they go in....
I'm still getting usedto all this and I'm a nurse, so hang in there and be diligent.....it's a lot of work, but I'm realizing that being able to stay home is much better than being in the hospital!!!

crohnniedoe
DX-2/2008
hospitalizations-1/2008,2/2008,2/2009,7/2009,10/2009
meds-pentasa 4000mg daily, zegerid-40/1100mg 2 times a day, humira 40mg every 2 weeks, celexa 40mg daily, requip 1 mg daily, phenergan, vicodin, miralax as needed
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