Meds for diarrhea?

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lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 1/14/2010 9:49 AM (GMT -7)   
I currently take 90+ mg of codeine everyday for diarrhea. Thing is I find my concentration is shot and I feel lazy a lot, I often wonder if this is down to the amount of codeine I take.

I use calcium for bulking too and Immodium doesn't agree with me and Questran/cholestyramine didn't work. Just wondered if anyone had any suggestions of anything else I could try for diarrhea or are there any other meds that have constipation has a side-effect that would be less dope-ifying than codeine?
 
 


pdmhol
Regular Member


Date Joined Apr 2007
Total Posts : 40
   Posted 1/14/2010 10:09 AM (GMT -7)   
I'm sorry but I feel just like you. Nothing i've tried has worked. Currently taking 8 gm of colestid daily but it doesn't work either. GI says take imodium but I hate the symtoms of it too.
Crohns dx in 2002. ilieum and colon resection 2002. Ilieum resection 2007.
Started Humira dec, 08


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/14/2010 10:23 AM (GMT -7)   
Hi, i used to take lomotil it worked great for me could take up to 8 a day but i needed only two in the morning to get me through the whole day! Bev X
Diagnosed at 13 now 43
Reversal of temp stoma scheduled 27th Jan 10 :-)
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 1/14/2010 4:18 PM (GMT -7)   
Isn't lomotil also a kind of opiod? Opiods do work great with me for diarrhea but with uni and everything I'm starting to find the dopeyness a bit troublesome! And my tolerance is insanely high - during my last flare I had to get pethedine injections to control the pain as well as double-doses of tramadol and it still didn't get rid of the pain!
 
 


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 1/14/2010 4:40 PM (GMT -7)   
i never found that tramadol did a thing for me but lomotil does..n for me it hasnt caused grogginess or such...good luck let us know..lyni also found that when doc put me on t 4s that helped a bit more..


                          
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Post Edited (Howlyncat) : 1/14/2010 4:49:03 PM (GMT-7)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 1/14/2010 6:24 PM (GMT -7)   
have you tried probiotics or changing your diet?
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/14/2010 6:59 PM (GMT -7)   
I believe when I was on lomotil my Dr. said it was an opiod bonded to a larger molecule so it wouldn't pass through the blood brain barrier so you got no narcotic effects.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 1/14/2010 11:12 PM (GMT -7)   
I used 2mg of lomotil per day and it worked great. It gave me approx. 7 hours or worry-free time. Any more than that made me listless.

Ever try digestive enzymes and probiotics?
58 years old;
Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 1/15/2010 2:30 AM (GMT -7)   
I was taking Questran and a lot of loperamides, as well as cocodomol and all the other medication and I still had/have terrible diarrhoea and my doctor has just put me on questran light instead when I told her I was still getting a lot of diarrhoea. I cant say at the moment if it is actually working as I am having a flare up atm so my movements are all over the place, and I am now back on the steroids!
If you do find something please let me know.
Good luck!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 1/15/2010 2:32 AM (GMT -7)   
Thanks guys, I'll ask my doctor about lomotil next time I go.
The diarrhoea is due to some permanent damage somewhere in my GI tract - I'm in remission but I'll never have full bowel control on my own - the best way to describe it is that my body doesn't have a its own "off" switch, it just keeps trying to go even when theres nothing left in me so the codeines job is to stop that and hold everything still and I use calcium for bulking as theres a lot of bile in it. Its been this way for at least 6 or 7 years, I tried so many diets and I couldn't find any probiotics that my body agreed with - very stubborn system unfortunately!
 
 


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 1/15/2010 5:12 AM (GMT -7)   
Hi lilchronieUK,

I also take Questran & Lomotil. The Questran i have to take for the rest of my life as my ileocecal valve was removed when i had my resection. But i found nothing really worked for me for D until i tried Lomotil, it has been a life saver for me. It's the only thing that really slows down my intestines and gives me a rest for a long period of time. It doesn't really make me tired, a little bit groggy maybe, but i find i feel more realaxed from it as i am a big stress head most of the time. So it gets a major thumbs up from me. You should give it a try, you'll know within a few days if it's for you or not.

Best of luck,
Lila

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/15/2010 8:08 AM (GMT -7)   
is lomotil cheap? My medicare part D doesnt kick-in till Feb 1st.

any cramping or gas with lomotil?
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