No conclusions after scope, waiting on biopsy!!! Frustrated!!

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 1/16/2010 10:13 AM (GMT -7)   
I had my scope yesterday and they said I had "some" inflammation in my sigmoid colon but it looked better than last year. They said it was just red and inflammed looking. The diverticulum looked ok. They were going to up my colazal to 9 pills a day from 8 pills a day. Hello, what did they think one more pill a day was going to do after 8 weren't cutting the mustard! So, they put me on lialda. I see that not too many people are on this b/c of cost. I hope my insurance covers it and that it works. They also didn't think using rectal meds would help much. I think they are still confused and hoping the biopsy results will show something.

So, my question to the forum is can they always tell if you have crohn's or UC from the scope or do they sometimes have to wait for the biopsy? They seem to put a lot of faith on what they see via the scope and said right now my inflammation was mild and only in the sigmoid colon. The enterography showed more inflammation in the descending colon. I wonder why the discrepancy? Has this happened to many other?

I do feel somewhat better than I did a year ago, that is for sure. It's just that they sounded like things were not all that severe and I've had a pretty bad bleeding episode about a month ago.

Regardless, I just hope this lialda helps and I am going to double my VSL #3 to two doses a day. The practitioner did not want me to take rectal meds b/c they want to see how the lialda works. You know, I'd think they would want us to just get better regardless. We are not guinea pigs!

Ok, so I am grumpy after my ordeal yesterday. it went well though, so I am pleased to have it over with at least. Thanks for listening to me vent.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/17/2010 9:09 AM (GMT -7)   
The biopsies show alot more. I think you will just have to be patient a little longer to get your answers. Give the Lialda a shot, it might help after all. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 1/17/2010 9:17 AM (GMT -7)   
Thanks Gail!! I appreciate the support you give us here on the forum. I am just frustrated after a year of not feeling well and not knowing exactly what I have.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies,
low thyroid,claritin, advair, singulair, diovan, progesterone, lialda, VSL#3 probiotic, Vit. D

Blood test positive for Crohn's via prometheus ibd serology panel


UC21
Regular Member


Date Joined Oct 2009
Total Posts : 68
   Posted 1/17/2010 1:29 PM (GMT -7)   
When I got scoped they prepared me for life with Crohns... And then the Biopsy showed that the inflammation wasn't as bad as it appeared on the scope....
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