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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/17/2010 1:42 PM (GMT -7)   
Hi, i have come across this story so many times when surfing the net for those of you that haven't seen it take a look.
Its not about crohns (but could be)but a person stuggling to be able to make friends and relatives understand what its like for a person dealing with their illness. Bev x

www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Sorry i don't know how to link so you will have to copy and paste.

<Edited to make link live>

Post Edited By Moderator (Lynnwood) : 1/17/2010 1:50:48 PM (GMT-7)


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 1/17/2010 2:00 PM (GMT -7)   
www.butyoudontlooksick.com/the_spoon_theory

Thanks, I hadn't seen that. It's a nice piece of ammo for oblivious healthy people.
Cimzia, Asacol


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 1/17/2010 7:56 PM (GMT -7)   
super cool. we all know how hard it can be sometimes to get through to people to really explain to them what it is like living with crohn's disease, especially during the bad times when you are in a flare. i think it is a great way to explain to others what living with the disease (any chronic disease really) is like on a daily basis as the example gets the person invested in daily decisions instead of listening to your story or a list of symptoms. most people take their health for granted so they have no frame of reference for what it is like to live with a chronic disease. this may give them one.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 1/17/2010 8:00 PM (GMT -7)   
ps - when i read the subject i thought it was going to be something related to "the matrix" - remember when neo went to see the oracle and he was in the waiting room with that creepy bald kid with the accent who showed him that there is no spoon? yeah...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Biebs77
Regular Member


Date Joined Jan 2010
Total Posts : 20
   Posted 1/17/2010 8:14 PM (GMT -7)   
Bravo. I showed it to my husband and i think he has a better understanding of what i am dealing with now. he doesn't realize what is going on because i have refused to slow down in front of him and our young boys but I have paid dearly for that decision. he is now thinking of all the times in the summer that i asked him to take the boys to baseball or skating and he refused because he had something "more important". I think he realizes that those are the days that i barely made it through my work day and just wanted to curl up in a ball and cry. i am going to share this with my entire family who have no grasp of the nature of CD and all of the complications that can arise from it. I am so glad that I found this forum!
 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/17/2010 11:13 PM (GMT -7)   
An excellent story definately one to share with friends and family. I wonder if a talented member could do something similar for us cronies?


Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Crohnie4Life
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 1/18/2010 6:49 AM (GMT -7)   
Great story! Thanks for sharing. I might have to show this to some of my friends.
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