So Many Terms and Definitions.

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Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/18/2010 8:48 PM (GMT -7)   
scoolWhen I'm in trouble what's really going on? Flare up? Obstruction? Temporary Obstruction? I have just called them temporary obstructions as it seems to make the best sense to me. ideaSince my short time here at HealingWell, I've googled so many terms, medications and such and finally googled 'strictures' today and now I know what is actually going on for me and what to call it. I have a stricture. Nice to know and just one more thing among many that I've learned here!

Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/18/2010 10:23 PM (GMT -7)   
Grandpato2, didn't your doc tell u that u had a stricture?
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/18/2010 10:47 PM (GMT -7)   
AzJohnny, After the last scope she told me I had ulcers again. The thing is my research into strictures exactly describes the condition my condition is in!smilewinkgrinyeah


Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 1/18/2010 11:48 PM (GMT -7)   

You learn fast. For me not knowing I had Crohn's until my first colonoscopy at the age of 55, feeling good, immediately hospitalized, diagnosed with Crohn's within two days, told I needed surgery but then after phone consultation from one GI to another recommended Remicade.  Put on Prednisone and with the side effect of insomnia, spent many many hours researching and finding this forum. Learning all the abbreviations and terms and Crohn's itself. It has been a huge help in making decisons and I thank everyone.

Welcome to HealingWell!


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 1/19/2010 4:50 AM (GMT -7)   
I remember my GP saying to me that patients become experts in their own disease and will often know a lot more than they (the general practitioners) do! The amount of times I've been and she was just like "right, tell me whats up and what you need!" I think when its your health on the line you're more than willing to do the homework! Shame I don't get as passionate about my uni work! lol!
 
 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/19/2010 3:30 PM (GMT -7)   
The best thing is learning that I'm not alone and vindicated that this isn't all in my head.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/19/2010 7:05 PM (GMT -7)   
Grandpa, Amen to that!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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