Can be depressing reading

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AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/19/2010 1:23 PM (GMT -7)   
I come here and read the threads and sometimes I add a post or ask a question, but I read, read, read.

After awhile I get a little scared... depressed... feel like I'm reading my own tombstone. So I log off and go away.

In a couple of days max, I'm back, because I want to learn everything I can to keep this disease as controlled as I can. I start reading again.

Anyone else dealing with this dichotomy?
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 1/19/2010 1:26 PM (GMT -7)   
Yeah. This site is depressing and uplifting.
It makes you realize that you're doing okay compared to some, worse compared to others.
I find it less scary than randomly googling medical terms like prolapse. heh heh
I find it heartbreaking to see so many children diagnosed at younger and younger ages.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/19/2010 1:48 PM (GMT -7)   
Ditto. Only thing to add is it is uplifting when you have an advice, experience or even a dumb joke to give someone a hand or a smile.
 


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 1/19/2010 1:55 PM (GMT -7)   
You're right FunGuy, but you should update "ditto" to "xerox". smilewinkgrin
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/19/2010 1:56 PM (GMT -7)   
I'm living in the past but shouldn't xerox now be "scan" or "digitalized" or something? I wonder if my dad would type "carbon copy"?
 


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 1/19/2010 2:10 PM (GMT -7)   

I ahve to admit, there are some posts I avoid because they look really sad and I don't know how I could help, or how I would be if I were in that situation, but it feels so good to give someone advice to help them get hrough something you have gone through, or are going through.

 

I spent a lot of time at first getting bogged down in reading seemingly "worst case scenarios" and thinking that was my ultimate fate. That can truly be depressing. But everybody is different.


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/19/2010 3:03 PM (GMT -7)   
I can understand exactly what you are saying. I get really sad when I read posts about little children being diagnosed. We as adults just learn to adapt, but how does a little baby adapt, I can't even imagine.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 1/19/2010 3:51 PM (GMT -7)   
When I first came to this forum I was started to flare very badly. Sitting here and reading these forums by far made me feel worse...it actually sent me into a panic attack and I thought of suicide because of some of the stories I read many many times.  Sitting here now post flare reading stories doesn't give me that feel anymore though...I guess it really has to do with the state of mind you are in when you read this stuff.
 
Sometimes you need to realize that these are some of the worst cases of Crohns, usually people who have very mild cases don't feel the need for support online.  It's like the news, you hear more bad then good.  I just tell myself to remember that every case is SO different that no ones path will be mine as well.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/19/2010 6:56 PM (GMT -7)   
I also just want to remind people that there is depression and anxiety that is associated with
chronic illness.  There is nothing wrong with going to a therapist (there are people who specialize in chronic illness), in fact it might just help one feel better.   It might take a couple of different therapists to find one that "fits" for you, but please get professional help if you are troubled.  There is nothing wrong with getting help, especially when it could really help.  If fact I believe that preventive mental health care can be extremely helpful in chronic illness.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 1/19/2010 7:02:12 PM (GMT-7)


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 1/19/2010 7:02 PM (GMT -7)   
I really agree with what MAG102886 says. When I first started posting here, I found it extremely depressing. Over time, I think most begin to realize that it's people that are struggling badly that are posting here, looking for hope and answers. I can remember even posting and asking if there are any success stories. To my surprise there were quite a lot, but I thing sometimes some might feel guilty/hesitant posting good news when so many are suffering. I would encourage the ones that are checking in here and doing well to post about that now and then. I think it would provide some positve hope for everyone. 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 1/19/2010 9:37 PM (GMT -7)   
That's how I felt as a kid, 73monte.
I went to a support group for Crohn's when I was first diagnosed and felt like crap. I was the youngest there by at least 15 years. They were all survivors of some very terrible things.
When I got better, I couldn't go back there. I felt like I couldn't face them because I was so lucky in such a short period of time. The facilitator tried to get me to come back, but I just couldn't do it.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 1/19/2010 9:37 PM (GMT -7)   
You hit the nail on the head.

This place terrifies me. But there's so much information here and it's good to see that even through all of our struggles, life goes on and people do manage. And eventually things get a little bit better.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.

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