Why are most people with IBD lactose intolerant?

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Regular Member

Date Joined Oct 2009
Total Posts : 68
   Posted 1/19/2010 10:12 PM (GMT -6)   
Before I got sick I used to drink milk/dairy all the time..... Why does my doctor tell me to avoid dairy now? Isn't lactose intolerance for people that don't carry a certain enzyme from birth?

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 1/19/2010 10:43 PM (GMT -6)   
It seems that way doesn't it...but actually quite a high percentage of the worlds population is lactose intolerant (to some degree, as there are varying degrees of severity)...cats are all naturally lactose intolerant, I believe dogs are too, they don't carry the enzyme to break lactose down in their system.

I was lactose intolerant as a child, apparently "grew" out of it then about 7 yrs ago became severely lactose intolerant but it was masked by my crohn's so m GI tested me for it and sure enough, severe lactose intolerance...since using probiotics (either primadophilus reuteri or ProBio TX-11, 2 that I now of for sure) they aid with lactose intolerance issues and I no longer have it...I do take my probitotics daily and plan to indefinitely.
Here's a pretty good link about cause of lactose intolerance....copy and paste if it doesn't work when you click it.

bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 1/20/2010 2:36 AM (GMT -6)   
I'm not lactose intolerant but my doc suggested I avoid milk because it's hard to digest. He recommended I switch to soy milk which I did.

I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 1/20/2010 8:59 AM (GMT -6)   
I was also lactose intolerant when I was kid and then outgrew it. I still sometimes use lacto-free milk as I heard its just better for Crohnie's anyway tp cut back on it, but its so expensive in comparison to regular milk that I don't get it that much.

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 1/20/2010 1:16 PM (GMT -6)   
I'm not lactose intolerant as far as I know, but just to play it safe I take lactaid with any dairy I consume (like probiotic yogurts, or cheddar cheese usually) and I don't drink cows milk, just almond milk (I never liked cows milk anyway and almond just tastes so much better!). My doctor suggested I avoid dairy too so I did for awhile, and reintroduced it slowly with no significant problems.
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

New Member

Date Joined Jan 2010
Total Posts : 6
   Posted 1/24/2010 10:54 PM (GMT -6)   
My daughter was tested for lactose intolerance and isn't, but she can't have milk or other fresh dairy products anyway, b/c she is allergic to casein. She does okay with cooked or processed dairy though. We like rice milk.
mother of Crohns patient, diagnosed at age 8, current medications Entocort, Pentasa; supplements include multivitamin, fish oil, glutamine, and floristar
previous meds: remicade, methotrexate, azathioprine (all of which she had severe reactions to); bowel resection in March of 2009 (13 inches of small intestine, ilieum, and a bit of large bowel and appendix)

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