How long for the SCD diet to work?

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snappy
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Date Joined Sep 2005
Total Posts : 675
   Posted 1/20/2010 10:25 AM (GMT -7)   
bad morning. Makes me want to go eat a pizza and say F it! (forget it ).
 
4 months into the diet and I've been so strict lately. Very frustrating.
 
Plus, another thing. Someone at work keeps asking me to lunch to junk food places when she knows my restrictions. I'm really getting mad. Would she ask a legless man to jump rope with her? GRRR!!!!!
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/20/2010 11:13 AM (GMT -7)   
Don't know anything about the SCD diet, but I have a guy that I have worked with for 5-6 years, he knows I have Crohns and that my diet is very limited. But still he brings me in articles on the "Raw Food Diet" and last week an article about Jack LaLanne and how if I want to live to 95 like him I need to eat 10 raw veggies a day and 5 fresh fruits a day. Yeah right, like thats gonna happen. We all have folks around us that just don't get it.

Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 1/20/2010 12:07 PM (GMT -7)   
I was telling my Mom one day that it's not hard for me to follow my diet, just hard for everyone else around me who tries to follow along. You know, the people who try to guess what I can and can't eat. Why do they bother???

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


docdundidit
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 1/20/2010 12:12 PM (GMT -7)   
We are just starting the diet for my 14yr old daughter. It's a tough one for her (tears shed for pizza andd mac and cheese). Although it's been less than a week I notice she is craving the RIGHT foods more AND we are all eating better.
Still no conclusions on how it's working though...
My 14 yr old daughter has Crohn's. Diagnosed March 08. Currently taking Imuran and Pentasa. Also probiotics, Vit D and C supplements, Omega 3, folic acid, calcium.


snappy
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Date Joined Sep 2005
Total Posts : 675
   Posted 1/20/2010 12:16 PM (GMT -7)   
The anecdotal evidence is so great for this diet that I would endorse it even if it doesn't end up working for me. Besides, it's a really healthy diet. Nobody needs to eat all that processed crap or an 80 percent carbo diet we all get used to! even though my symptom has not cleared, I just feel so much better and I'm (intentionally) lost lots of weight. Best wishes to your daughter!
 
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


medchrt1
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Date Joined Sep 2005
Total Posts : 517
   Posted 1/20/2010 12:57 PM (GMT -7)   
actually there is a pizza that is gluten free/wheat free and is made by the grainless baker. It tastes good and didnt influence my sis who has celiac. I can see this as special diet being included on your taxes if you have to pay extra to get healthy, (that is if you itemize). The itemizing needs to result in a big number to go over the amount of the the general number the govt has for an unitemized return for me to consider it worth itemizing.

spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 1/20/2010 1:44 PM (GMT -7)   
I just made my first SCD pizza earlier this week. It was so good! Almond flour crust, tomato sauce, and provolone cheese.

Snappy, is it possible that you're accidentally ingesting illegals? Do you take supplements? If so, make sure to check the inactive ingredients. What about chicken and turkey? Look at the label, sometimes they inject them with broth or a sugar solution. Are you maybe eating foods too advanced for your stage of healing? Do you keep a food diary so that you can track your food/symptoms? You might discover a food that isn't agreeing with you. If I recall, you already found out that shredded cheese has starch on it, but for anyone else reading this, don't eat pre-shredded cheese.

Good luck! I hope things start improving for you soon.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 1/20/2010 1:49 PM (GMT -7)   

Hi Spookyhurst, I can always count on you! Well, I'm not injesting anything illegal now. I've made that part very simple. To tell the truth, I have never approached the diet in stages since I don't have typical symptoms. maybe i should. Where do I find info about the stages? I do have the book but I guess didn't really notice that stages were listed.

I hope I haven't come off as one of those people who complains about something not working but hasn't been doing it right.  i really do trust the logic and evidence behind the diet. just wonder if there is someting left in my diet that is keeping me from healing. You know, something not typical.

 

I even cut out tap water two weeks ago! I'm willing to try anything.


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 1/20/2010 2:19 PM (GMT -7)   
snappy, I would like to suggest that you take a look at some of the yahoo groups, I am convinced there are quite a few that is for SCD'ers. You may find a lot of experienced and active listmates there as well. /Bee

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/20/2010 4:51 PM (GMT -7)   
Snappy, the stages weren't an original part of SCD, but were developed for kids with autism. They can be helpful for adult IBDer's too, but they certainly aren't set in stone. The most important thing is to add one new food (or supplement) to your diet at a time (even if it's from a later stage) and wait at least 2 days to see if it's giving you symptoms (I usually wait 3 to 4 days, some people who are late reactors only add one new food a week). Here's a link to the stages: http://pecanbread.com/p/how/stages.html

Here is a list for you to look at as well, "Common SCD Mistakes": http://pecanbread.com/p/how/mistakes.html

Also, they say that the biggest reason for SCD not working is peanut butter (a lot harder to digest then almond butter and pecan butter) and other advanced foods (Lentils, beans, dried fruits, seeds, raw fruit and veggies, whole nuts).

If you want some help from people who have been on the diet longer then me, you should join the BTVC group at http://health.groups.yahoo.com/group/BTVC-SCD/. There are lots of member that give advice and help people work their way through the beginning months of the diet. There was also recently a discussion about running being hard on the body (you're a marathoner, if I recall correctly?). Even runners without crohns's have wear and tear on their immune systems: http://www.copacabanarunners.net/i-immune-system.html
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 1/20/2010 5:02 PM (GMT -7)   

spooky, if peanut butter is the culprit then I am KILLING myself! You wouldn't believe how much pb I eat. But I assumed it was a safe, high energy snack. Also, I have a feeling my marathoning is holding me back. I know it causes inflammation. In fact, that showed up in my last blood test a day after a marathon. And I've run 2 in the last month and have two more in the next 4 weeks! But I was kind of looking for a reason to quit. It's kind of hard to quit doing marathons when you're in shape for them and they keep coming up! I love running a lot but realize moderation is probably the key.

 

OK, just ate my last peanut butter for awhile!


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 1/20/2010 6:49 PM (GMT -7)   
I COMPLETELY agree with the thing about people always trying to figure out what you can and can't have, and suggesting variations. I know they think they're being helpful, but they're really NOT!

I hate going out and having people say "Oh but you can't have that can you?"

SO frustrating! Why can't they just leave it to us! We have to tell them we're ON the diet, but we don't need to be reminded every two seconds! We can deal! haha

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/20/2010 6:55 PM (GMT -7)   
Good luck Snappy! Hope the lack of PB solves the problem. I get almond butter at Trader Joe's for a decent price (still more money then PB though). It's not blanched, but luckily, that doesn't seem to be a problem for me.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/21/2010 7:59 AM (GMT -7)   
My daughter, who can tolerate most SCD foods, finds that peanut butter causes problems for her. However, if the peanut butter is baked into cookies (the recipe is in the book, "Breaking the Vicious Cycle"), then she has no problem with it. 
 

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 1/21/2010 8:02 AM (GMT -7)   
njmom, that's a relief to hear. I tell everyone "peanut butter is the new chocolate". I was a chocoholic before SCD and now I eat a quarter jar of peanut butter almost every day! I feel kind of stupid about that now!

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/21/2010 11:55 AM (GMT -7)   
Snappy don't beat yourself up, I love PB too, but just recently realized it was tearing my gut up. Have yet to try the Almond butter Spooky recommends, but do want to try it. I am not a SCD'r but I love me some PB & J. So maybe I will be able to eat AB&J's now:)
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 1/21/2010 11:59 AM (GMT -7)   

I'm gonna try the AB for sure. Hope it's just as good smothered on some apple, carrots, banana, etc etc! But I'll keep moderation in mind, also.

Sure stinks when you think you're living all healthy and find out your not! Live and learn.


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.

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