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docdundidit
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 1/21/2010 1:07 PM (GMT -7)   
Anyone using probiotics with success?
Just started my daughter on them a few weeks ago and wondering what the pros and cons are from Chronies that use them or tried them......thanks
My 14 yr old daughter has Crohn's. Diagnosed March 08. Currently taking Imuran and Pentasa. Also probiotics, Vit D and C supplements, Omega 3, folic acid, calcium.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/21/2010 3:05 PM (GMT -7)   
No cons, only pros...they've been very helpful, not full remission for me but still very helpful...IBDers tend to have bacterial overgrowth which can exacerbate IBD symptoms, so a good probiotic is essential. It's important to take them daily and indefinitely (flaring or not).

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 1/21/2010 4:35 PM (GMT -7)   
I think the VSL #3 helps me. The other over the counter stuff did not. I noticed less bloating within hours of taking the first dose. I could probably take 2 packets a day but my co pay went up to $45 for a packet of 24. Ouch!
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies,
low thyroid,claritin, advair, singulair, diovan, progesterone, lialda, VSL#3 probiotic, Vit. D

Blood test positive for Crohn's via prometheus ibd serology panel


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 1/21/2010 4:55 PM (GMT -7)   
Success here! Though, I would add that you have to find the right one. I have tried 3 different brands, of which 2 didn't seem to do anything.

Works well enough that I can tell the day after if I miss a dose.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 1/21/2010 5:11 PM (GMT -7)   
Never touched the stuff. Don't know what they are at all. I suggest that she eats lots of white rice. You can't go wrong with Japanese food. It's delicious and very safe.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 1/21/2010 6:27 PM (GMT -7)   
Has anyone ever tried the probiotic pearls and had success?
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: Remicade for life


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/21/2010 7:54 PM (GMT -7)   
gypsyfp....you can't compare white rice (or japanese food in general) to probiotics, probiotics are friendly bacteria and are necessary to keep our gut flora in check...with having crohn's, our gut flora is out of whack, we have bad bacterial overgrowth which exacerbates our IBD symptoms. They are also very safe, similar to eating yogurt but with supplements you get way more friendly bacteria...10 billion live cultures/pill is minimum amount necessary for IBDers.

:)


farfromnormal, lots of people on the UC board have success with the pearls.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/21/2010 7:57 PM (GMT -7)   
I've gotten pretty constipated since taking probiotics so I have cut back on how often I take them. I would say I got firmer stools, less urgency, but gained some blood due to the constipation. I'm hoping it fades away as the stool becomes softer again.
500 mg of Pentasa 4 times a day, 1 Florastor 2 times a day, 2 mg LDN at bed time, 1400 IU Vitamin D3

Prior medication until LDN:100 mg Imuran a day - GI wanted 150 mg, but I didn't want to destroy my liver, 1 Gram of Pentasa 4 times a day, 3 mg of Entocort 3 times a day, Librax as needed

AKA:Chronnieman


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 1/21/2010 10:31 PM (GMT -7)   
yeah Using a pure probiotic and digestive enzymes improved my health immensely. There are many good ones available that are pure, non-GMO, and backed-up by quality standards. The diarhea, bloating, cramps and skin problems disappeared in 5 months. As the other person commented, if I miss a day, I feel it. The pro-biotic pearl label describes only lactobacillus types of probiotic and that is great for dairy products, but I needed the full spectrum.
58 years old;
Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/22/2010 12:12 AM (GMT -7)   
Wow Crohnnieman, I think you're the first person that's ever said probiotics cause them constipation...I googled probiotics and constipation and all the links I found said the opposite, that probiotics are actually a good tool to treat constipation...here's a couple links....
 
 
 
 
 
:)
 


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 12:31 AM (GMT -7)   
cool I eat good yogurt and drink plain kefir, eat lots of fresh papaya's. vicodon when pain is dangerous, now pred and entocort. good luck with your kid
                                                           artist guy
artist guy


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/22/2010 7:51 AM (GMT -7)   
PB4 I am another one who got more constipation from the Probiotics too. I was having 4-6 looser stools before the probiotics, but now I have to take stool softners nightly in order to keep things softer and easier to pass. So Crohnnieman is not the only one.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/22/2010 8:03 AM (GMT -7)   
Nanners,

Where kind of stool softeners do you use or recommend?
500 mg of Pentasa 4 times a day, 1 Florastor 2 times a day, 2 mg LDN at bed time, 1400 IU Vitamin D3

Prior medication until LDN:100 mg Imuran a day - GI wanted 150 mg, but I didn't want to destroy my liver, 1 Gram of Pentasa 4 times a day, 3 mg of Entocort 3 times a day, Librax as needed

AKA:Chronnieman


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/22/2010 8:04 AM (GMT -7)   
I just use a generic of Colace, it works great for me.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/22/2010 8:04 AM (GMT -7)   
I am now a huge believer in probiotics. But I wasn't always. Several brands, good ones, made things much worse. I continued with each brand for several months to see if it was an initial reaction, but it just wasn't the right fit for me. SO, You need to find the right one for your daughter. We can all recommend the one we think is best but it may not be a good one for your daughter. Only trial and error will tell. I have now found a few brands that work for me. It seems that after a couple of months my body gets used to one brand and I have to switch for a month or so, then swap back. My GI says this happens to some people. But now that I have found probiotics that work, the change is tremendous, so it is well worth the effort to find one that is right.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/22/2010 8:11 AM (GMT -7)   
Thanks Nanners. I need to pick some up now.
500 mg of Pentasa 4 times a day, 1 Florastor 2 times a day, 2 mg LDN at bed time, 1400 IU Vitamin D3

Prior medication until LDN:100 mg Imuran a day - GI wanted 150 mg, but I didn't want to destroy my liver, 1 Gram of Pentasa 4 times a day, 3 mg of Entocort 3 times a day, Librax as needed

AKA:Chronnieman


docdundidit
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 1/22/2010 3:05 PM (GMT -7)   
Thanks for all the input :)
We are using TherBiotic Complete with 25+billion cfu's. It was the one recommended and the first we are trying. My daughter just went through a treatment for blastocystis hominis. She took Alinia for 3 days, which made her feel really bad. She is taking an increased dose of the probiotics now (2 cap/2xday) but it is hard to tell what is what until we re-test for the parasites and see what role they have played in all this...
My 14 yr old daughter has Crohn's. Diagnosed March 08. Currently taking Imuran and Pentasa. Also probiotics, Vit D and C supplements, Omega 3, folic acid, calcium.

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