pred, moonface

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artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 9:33 AM (GMT -7)   
does anybody have bad side affects from pred. this is the first time I'm taking them, and am so worried about moon face among other side effects. how many mg's before I might see these side effects, like how long of period of time taking pred.
cd since 1970 3 resections total 9ft
pred,vicodon prylosec, sleep med, restoril,serax
artist guy


mj1966
Regular Member


Date Joined Nov 2009
Total Posts : 46
   Posted 1/22/2010 9:43 AM (GMT -7)   
I have taken Prednisone several time through out 10 years. I wish I had written down the mg's but I didn't. Usually my side effects are hunger. I get really hungry and want to eat big meals. Weird I know, but snacks never satisfied me. Which in turn caused me to gain weight. This past time that I was on it (around Thanksgiving) for 6 weeks- starting out at 40mg's. I had a different reaction I didn't get hungry like I did before but I did have weight gain- I noticed it also in my face, but I don't think I had the "moon face". Maybe if I had been on that dosage for a few more weeks before weaning off. It always made me feel better when I took it. Good luck with it!!

artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 9:48 AM (GMT -7)   
thanks so much for that info. super informative

artist guy


crohnniedoe
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/22/2010 10:46 AM (GMT -7)   
Hi Artist Guy,

From my first post, you can see I've been on prednisone quite a bit over the last 2 years. The dose is always the same, 40mg a day for a week tapering 10mg each week till done. I do get the moonface side effects, but it does go away. I just avoid cameras and mirrors a lot while on it...haha. I also suffer night sweats, icreased warmth during the day. When I first started on the Prednisone, I was very intolerant of anybody who pushed my buttons and required a lot of patience......that was hard as I am a nurse. I also, usually, get lack of appetite, but a big side effect of prednisone is appetite increase. That's a hard one when you're supposed to be on a clear liquid diet. With this round, for the first time, I am experiencing the increased appetite. You can also grow facial hair and have increased hair growth, although, yesterday I lost a fistfull of hair in the shower,,,,,the crohns flare I'm suspecting. The biggest side effect we should all get screened for is bone density loss. Good luck and be patient with yourself....remember...moon face isn't the worst thing that can happen, it's just a bump in the road.

Crohhniedoe
DX-2/2008
hospitalizations-1/2008,2/2008,2/2009,7/2009,10/2009
meds-pentasa 4000mg daily, zegerid 40mg/1100mg 2 times a day, humira 40mg every 2 weeks, celexa 40mg daily, requip 1mg daily, simvistatin 40mg daily, phenergan, vicodin, miralax, as needed.
with my lord, anything is possible!

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/22/2010 10:53 AM (GMT -7)   
artist guy said...
does anybody have bad side affects from pred. this is the first time I'm taking them, and am so worried about moon face among other side effects. how many mg's before I might see these side effects, like how long of period of time taking pred.
cd since 1970 3 resections total 9ft

pred,vicodon prylosec, sleep med, restoril,serax


Yes, I've gained a lot of weight, definitely have the moon face and "hump" on my back. I have LOTS of other side effects too, especially the increased acid reflux, increased sweating, increased blood pressure, etc. Also, even worse, I've been on pred for almost two years now and my blood sugar finally has begun to rise! AAACK! This is the thing I've feared the most....pred-induced diabetes. cry

My dad had pred-induced diabetes because he was on pred for years for his RA; he also had one of the rarer side effects, he could blow up in psychotic rages.

Best wishes,
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/22/2010 10:56 AM (GMT -7)   
P.S. Sorry, you asked about dosages. I started at 40 mg, tapered down to 5 over 18 months, now bumped back up to 10 mg because of flares of my "lupus-like" AI disease.

JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 11:09 AM (GMT -7)   
thanks all of you for your rspones. I take the pred mostly for my throat and burning mouth syndrome. hate it. I'm so use to being thin and trim and fit looking I exercise madly, so am scarred of that part

artist guy


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/22/2010 11:12 AM (GMT -7)   
have you tried oral latocaine
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 1/22/2010 11:15 AM (GMT -7)   
I started on 40 mg of pred in december, and I'm tapering down by 5 mg every two weeks... I am now at 25 and down to 20 next wednesday. My face is ridiculously moony, but I feel better so its all good I guess. I'm avoiding cameras til I'm off the steroids... which will be in march. I've also gained weight but I'm still little (about 115 lbs at 5"3) so it's okay. Maybe I'll get my curves back! I turned into a stick figure when I got this DD.
I haven't experienced terrible mood swings/insomnia/acne as of yet so I am considering myself lucky!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 1/22/2010 12:06 PM (GMT -7)   
Hi Artist Guy.

When I was on Pred I got the moon face, I started to grow a beard (not a good look for a woman), I had sweats (tropical moments), I couldnt stop eating, became short of temper, and to cap it all off I had the most dreadful and weird nightmares (real scary stuff).

Oh and I needed lots of fillings in my teeth

Having said that within a couple of months of me coming off pred it all went back to normal
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 12:34 PM (GMT -7)   
I'm just afraid i'm going to be on it for long period. my crohns is in my mouth and throat and tongue as well as gut. thanks for your support

artist guy


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/24/2010 8:59 PM (GMT -7)   
What is the refernce to the "hump" on the back of the neck... as I'm on 55mg of prednisone and the back of my neck really hurts .... could this be from the prednisone? Can anyone enlighten me? Thanks
DIAGNOSIS
Living in California, diagnosed with Crohn's disease in 2004 after 1 1/2 year of diagnostic testing - finally the pill camera found two ulcers in my lower ileum.  Allergic to Asacol.  Took Imuran (6MP) 2004/2005 until it raised liver enzymes, however drug put disease in remission (along with modified diet). 
 
FLARE
Moved back to native Iowa, flared in Nov 2009 (from swine flu?  Result from Toradol?  Weather? Allergies?)
 
HOSPITALIZTION
Hospitalized in Jan 2010 for acute Crohn's flare and dehydration. Struggling with tender, distended colon / abdomen, trying to introduce fiber. Currently suffering from protruding thrombosis hemorrhoid and seeing surgeon Monday for possible surgery.
 
MEDS
Currently taking 55mg prednisone, 50mg Imuran (6MP), nortriptyline (for fibromyaglia), vicodin (for pain, herniated disks C5 C6), Topax (migraine)
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 1/24/2010 9:06 PM (GMT -7)   
I have been on and off it my whole life for asthma but never at high doses like now (for Crohns). I'm on 60mg right now. I've never encountered moonface, and honestly aren't sure what exactly that looks like.

I do, however, become almost a different person. I am so angry and moody and a short fuse, which is really unlike me. That's honestly the worst symptom for me because I'm a minister - eek! It's a challenge for me to keep those emotions under control.

I also typically get a huge appetite and have issues sleeping. Right now, I'm so far gone that I have constant gut pain so I'm not eating much anyways but the Pred is keeping the fever and joint pain in control so I can function until my resection is scheduled.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/24/2010 9:29 PM (GMT -7)   
champagnekindofgal said...
What is the refernce to the "hump" on the back of the neck... as I'm on 55mg of prednisone and the back of my neck really hurts .... could this be from the prednisone? Can anyone enlighten me? Thanks


The hump on the back is sometimes referred to as a "dowager's hump", or "camel's hump", or "buffalo hump"....but no matter what you call it, it's just b&*t ugly!

It's one of the more well-known side effects of prednisone; pred not only makes most people gain weight, but even if you're lucky and DON'T gain any weight, it shifts any fat you have around so that it piles up in your face and under your chin, around your middle, and right at the very top of your back (around the base of your neck in the back).

The fat at the top of your back develops as a little (or big, depending on the person) dome.....this is the infamous prednisone hump, just a lump of pure fat on your back.

I don't feel like I do the hump justice, so here is a link to a blog where someone on prednisone was truly inspired to write about it:

rs.4030.com/?p=62

The pain that you may be experiencing is likely unrelated to the hump phenomenon, but may still be a side effect of prednisone. Prednisone has been known to trigger it's own set of aches and pains. You may want to ask your doctor about this.

Good luck!
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com

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