I'm new here...... Saying hello!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ibdoer
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 1/22/2010 11:16 AM (GMT -7)   
Hello to all! I finally decided to join the forum. Have been watching for a while now. I'm 26 years old (male), and was diagnosed with mild Crohn's a few months ago.
   It started in August '09 while I was on a plane going to my one week trip to the Caribbean with my girlfriend. At the airport waiting to board, I caught severe stomach cramps and needed a rest room immediately. My BM was diarrhea and very x-plosive, and I figured i had too much coffee. Then i went another 3-4 times on the plane, and by the afternoon I felt amazing. Like nothing happened.
   I got to the resort, went to the beach, had dinner, and all was well. Next morning at 5am I woke with cramps and for the next 3 days I had 10-20 bm's a day, with mucus and at times a lot of BLOOD. I was real scared. I went to the hospital there and they told me to wait until I got home. Tried coming home early but all the flights were booked.
   *** Luckily, one of my clients (a doctor) was at the same resort and he gave me a 3-day supply of CIPRO. The day after I started the CIPRO I felt much better. No more diarrhea or visible blood, just a little mucus and my appetite came back. Made it to the beach for the rest of the 3 days.
   Visited a GI, and told me it was probably an infection. But he stuck his finger in my rectum and tested for blood and said there was a lot of blood in my stool. Gave me a 4-day Xifaxan regimen and scheduled colonoscopy and biopsies one month ahead.
   I did the colonoscopy mid-September and it came back with Crohns. He said my blood points to Crohns but my biopsies point towards UC. And I did have some ulcerations sporadically in my colon.
 
AFTER THE COLONOSCOPY - 3 months of Flagyl and he put me on a half dose of Apriso. 2 pills a day in the morning. I haven't really had any diarrhea (only on two occasions since August) (after dinner). My main symptoms are irritation right inside and outside of my anal opening. Especially after a BM it starts acting up. In the mornings its fine. He has not given me anything for that even though i asked twice. I do a sitz bath everyday which helps.
   I did lose about 25 pounds since then. I think the IBD had something to do with, but I was also overweight and have changed my diet greatly. No more sweets and very minimal on breads. I also was not eating much while on Flagyl because it cut my appetite.
   I do have some minor abdominal discomfort here and there. And I am much more bloated and gassy. I have 1-2 bms a day, usually well-formed (occasionally oversized and constipated). I see darker colored streaked blood on the outside of my stools occasionally, but I do have some hemmies.
   Also, sometimes I feel great for a few days but then sometimes I'll get this wave of exhaustion and fatigue for a few days. I also noticed more eye redness, even though I have always had allergies.
 
I know my symptoms aren't as bad as some others here, but it still sucks. I always think about the worst and I admit my outlook on things have changed a bit. Its still new to me so i guess I'll have to adjust.
   Anyway, I WISH ALL THE BEST TO ALL OF YOU, and God Bless You. Talk to you soon.
  

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/22/2010 3:35 PM (GMT -7)   
Welcome, ibdoer!

I do sympathise: poor you, suddenly getting those symptoms on a plane, and on holiday. Talk about bad timing!

As far as your irritated anus goes, you might like to try getting some zinc cream or nappy (diaper?) rash cream and applying that to the itchy area, and seeing if that helps. Sometimes all that poo can end up irritating the skin, causing itching and redness: the cream can prevent the poo from coming into contact with the skin, and maybe break the cycle of itching and irritation.

Has your doctor actually examined the itchy area to make sure there's no fungal infection or other Crohnsy issues going on there?

All the very best to you: it's wonderful to meet you.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 3:54 PM (GMT -7)   

welcome aboard 1bdoer

   I have a good one. I was really sick 1970 couldn't work, I was a horse jockey at the time, so I wanted to go to disneyland with my girlfriend dr. said no way. what do they know,right. I went and had a bowel obstruction in disneyland and had to be rushed home to san diego for surgery. so much for the happiest place on earth

 3 surgeries 2 resections, right now pred, and sleeping med's

 I've had a interesting life with cd. lots of exercise very helpful. I ride mountain bike seriously


artist guy


Biebs77
Regular Member


Date Joined Jan 2010
Total Posts : 20
   Posted 1/22/2010 7:34 PM (GMT -7)   
Welcome. I'm new here too and the information and reassurances that I have been getting have been awesome. I was diagnosed in August 2009 after 6 months of suffering through test after test and delay after delay. Lost 35 pounds (have gained back 10 now), had the shakes all the time, totally exhausted and existed on Powerade. Did 8 weeks of Entocort, 6 weeks of Prednisone, 2000mcg of B12 and STILL not feeling well. Take T3's every night for the pain and ...well, that's enough complaining.
The people on here are fabulous and their stories definitely help me stay positive. I am still lucky so far but they have also opened my eyes to some of the quirky conditions that go along with CD. I now realize that I am not losing my mind and am getting more bold and demanding with my docs. Nobody knows your body better than you do so be insistent. Welcome, welcome and happy chatting.
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/22/2010 7:46 PM (GMT -7)   
It's great to hear you're becoming more informed and assertive, Biebs :-). That can only help you get better health care, in the long run.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/23/2010 6:04 AM (GMT -7)   
Welcome!! Glad you found the forum.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/23/2010 7:46 AM (GMT -7)   
Hi Ibdoer and welcome to the best Crohns forum out there. Sorry you have to be here with this darn disease though. Ask all the questions you want, we have a wonderful and supportive group here. Look forward to hearing more from you. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 1/23/2010 7:27 PM (GMT -7)   
Welcome Ibdoer...wow your story sounds very similar to mine when I first started, pooing blood is always kinda terrifying, huh?...btw, I achieved remission for about 5 years...just a couple of things that may help...
FIRST...skip the toilet paper...TP on an upset bum with hemmies...no feel good. There are some great toddler wipes or prep-H wipes that are sewer/septic safe. Not to mention that you have to use fewer and feel cleaner. My GI suggested this...and I cannot thank him enough...
Next, Like Nanners has said in previous posts...I wish now that I had stayed on maintenance meds (asacol/pentasa...or such)so it could have stayed mild and even in remission.
See you around on HW scool
"The earth laughs in flowers"

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 1:01 PM (GMT -7)
There are a total of 2,732,185 posts in 300,998 threads.
View Active Threads


Who's Online
This forum has 151161 registered members. Please welcome our newest member, Geef.
282 Guest(s), 9 Registered Member(s) are currently online.  Details
countess18, Starlight*, Todd1963, maria2016, rockyfords, bdavis, Mister Mike, julymorning, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer