sores in mouth

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ilgrandma
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/22/2010 12:14 PM (GMT -7)   
I have had crohn's for 30 yrs.  I had ostomy surgery on Oct. 12.  I was doing great.  I went to the specialist on Dec. 9 and he started me on 6-mp.  After taking the drug for 4 weeks I woke up one morning with sores in my mouth.  On Tues. this week the specialist told me I have crohn's in my mouth, he hasn't even seen me he told me on the phone.  I have stopped all med at this point.  Can anyone tell me if this is truly a possiblity?  After surgery I had no crohn's symptoms at all.  Now this after starting the 6-mp.  Before surgery I was on Cimzia for a year and had no problems at all.

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 12:29 PM (GMT -7)   
I have sores so bad it is in my mouth and on my tongue, the only thing that has helped so far is pred. and vicodon. my gi said the same, but there is a burning mouth syndrome. my sores move around thru out the day. I found burning mouth syndrome on webmd.com

artist guy


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 12:31 PM (GMT -7)   
I forgot to mention I have had crohns since 1970, it is in my throat as well. hard to swallow at times. pred takes it away, but am so afraid of side affects, (moon face)

artist guy


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 1/22/2010 12:55 PM (GMT -7)   
When I'm in a flare, the insides of my cheeks always have sores on them. It's definitely a Crohn's problem. I like to suck on ice chips. I've never taken any meds for it because they always go away eventually.
This is why Crohn's is such a chronic disease and surgery is always the last option. If you cut something out, your Crohn's will just jump to another spot.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 1/22/2010 1:31 PM (GMT -7)   
When I get mouth sores I use a prescription paste called Aphthasol. I don't think most GIs prescribe it because I've had to ask each one for it and they had to look it up to figure out how to write the Rx. I first heard of it because my step-mom is a dental hygienist. Without that, my mouth sores each last about 10 -14 days and make it very difficult to eat. They are so painful. This stuff cuts the pain within a few days and speeds the healing by about half the time.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/22/2010 1:57 PM (GMT -7)   
ilgrandma, YES, crohn's can affect any part of the GI tract from the mouth to the anus...taking a good probiotic daily and indefinitely can actually aid with crohn's (including the mouth and throughout the rest of the GI tract).

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/22/2010 2:05 PM (GMT -7)   
thanks for the aphtasol. I'm gonna ask my gi guy when i see him 2/1. the blistewrs on my tongue is really bad what about that paste on tongue for that?

artist guy


ilgrandma
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/22/2010 2:13 PM (GMT -7)   
My family doc gave me the RX for aphtasol I started taking it last night. He said twice a day.                 

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/22/2010 2:29 PM (GMT -7)   
I found sugar and acid type foods hard on the sores. I gargle a lot with salt water (4-5 times a day)when I get them. Sometimes get Rx with anti-viral med and they go away faster.

Hope you feel better soon
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 9:17 AM (GMT -7)
There are a total of 2,734,680 posts in 301,234 threads.
View Active Threads


Who's Online
This forum has 151348 registered members. Please welcome our newest member, fenway17.
322 Guest(s), 12 Registered Member(s) are currently online.  Details
Bololidat, TOOTY, Scaredy Cat, Loutucky, LG13, iho, fenway17, ks1905, joavila92, quincy, bdavis, Sashrag


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer