Intestinal Twitching--does anyone know what I'm talking about?

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Ouch101
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Date Joined Dec 2009
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   Posted 1/23/2010 7:52 PM (GMT -7)   
So I've been really distended for that past week--yesterday after nachos, EXTREMELY distended. And then last night it felt as though someone was yanking on my intestines on the right lower side--where I have the 'mysterious pain' too.

Help? Anyone know if it's just an annoying twitch or does it mean something different when you have intestinal crap. I have not been diagnosed w/crohns yet. My GP thinks I have it, but the GI doc says it's IBS but I do have a colonoscopy scheduled in march. The twitch seems deep and is super annoying.

Should I schedule a doctor's appt monday?? I do know I'm constipated--more than likely--cuz that's the normal for me, but i was feeling so great the last two weeks that this onset of being super nauseous and bloated and stomach pain/razor blades hit me Tuesday. UGH! I feel for all of you who are dealing w/crohns. :( It makes me sad to read all of your stories.

artist guy
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Date Joined Jan 2010
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   Posted 1/23/2010 9:35 PM (GMT -7)   

yes i do what that twitching is ,where mu cd is and where I have had two resections that part is still inflamed that is where my twitching goes on. when i get a bad flare, for me i call them a gas blockage that twitching spot is dicended. I hope that helps you

cd since 1970 4 surgeries 2 resections med's are pred, vicodon, serax and restoril for sleep

 
artist guy


Ouch101
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Date Joined Dec 2009
Total Posts : 37
   Posted 1/23/2010 9:57 PM (GMT -7)   
ugh... see.. i'm feeling things that I haven't felt before and it's causing a little anxiety. It's such a weird and gross feeling.

randynoguts
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   Posted 1/23/2010 10:24 PM (GMT -7)   
hey ouch... i used to have that feeling it was most likly the addhesions that had stuck some of the intestines to the wall of my abdomen and when food passed or i moved just right, it would pull and it would feel like a twitch or better yet a hitch. why do you have to wait till march for a C scope?
randynoguts 



     http://www.geocities.com/randynogutsweb/


Ouch101
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Date Joined Dec 2009
Total Posts : 37
   Posted 1/23/2010 10:55 PM (GMT -7)   
"Adhesions"? ...what's that mean?? ... my new GI doc doesn't have anything open till March 4th. ....But I feel like he doesn't take me seriously, especially after I told him I went off of gluten and felt better--he didn't believe that would make a difference because my endoscopy didn't say I had celiacs. ... ANyway... I just feel so tight in my intestines...it's more uncomfortable than usual. And like I said, the pain is back in that area as well--like when I move, my intestines are moving around something that is hurting them....and distended. I'm just really worried today and feel like something is different--in an alarming sort of way.

Biebs77
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Date Joined Jan 2010
Total Posts : 20
   Posted 1/24/2010 1:14 AM (GMT -7)   
OMG! I know exactly what you are talking about. I get the same thing. If it is not crippling pains, it is the feeling of a muscle spasm you might get in your leg, but it's on the inside. If you are feeling alarmed in any way, you should visit your family doc or emerg right away. You are the only person who knows for sure when something is wrong with your body. I believe that when people are sick and living with a disease, they are more tuned into the workings of their bodies. We have to know what is "normal" for ourselves and are often ahead of the curve when we are becoming sick or experiencing something that indicates a problem. Please don't leave it too long if you are still feeling unwell. Good luck with the colonoscopy.
 


Ouch101
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Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 1:37 AM (GMT -7)   
thanks Biebs....

it's so weird too cuz I have felt so awesome the last three weeks I thought that perhaps I'm fine after all. But then it hit again... but this time not w/crippling pain--it's been about two months since I've had that....

Biebs, have you been diagnosed with CD as well?? I really hope this spasm thing doesn't become a 'normal' thing now. But yes, I have plans to talk to my GP on Monday----I still don't know about my GI doc.

Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 1:40 AM (GMT -7)   
..oh ya... does anyone know what calms it down?... or what's causing it to spasm--as in, is it just a normal muscle spasm? I'm just looking for the right terms, if there are any, to use when talking to the doctor, because I've never heard of this or read about it as a symptom of anything.

pb4
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Date Joined Feb 2004
Total Posts : 18188
   Posted 1/24/2010 1:49 AM (GMT -7)   
It's not necessarily anything to worry about, I know tons of people that don't have an IBD or any intestinal issues that often ask me about intestinal twitching, it's like any other body part that twitches, eye(s), face, arm, ect. People I know that don't have any intestinal issues constantly ask me about their intestinal twitches (usually worried that it's a sign of something bad to come, like an IBD or IBS) but it's typically nothing to worry about, it's just one of those thing...of course if you're really concerned about it, ask your doc.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


tsitodawg
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Date Joined Sep 2006
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   Posted 1/24/2010 2:09 AM (GMT -7)   
Similiar to what pb4 stated, it honestly sounds like you are having intestinal spasms. I would dare say that most if not all of us that have been diagnosed have them. It does not mean that you have Crohn's disease because it is also a very common symptom of IBS. I have had them for years and they are very annoying and can be painful at times. Talk to your G.I.or your G.P. about them and they can prescribe for you an anti spasmatic. I am currently on a couple of different ones but the most common ones are bentyl or levsin. You primary care should have no problem prescribing these as it is a pretty common practice for people who are having intense stomach flu or intestinal parasites as well as IBD or IBS. I have found that normally my spasms are triggered by something that I ate but sometimes come on their own also. The one down side that I can see in your situation is that that these medications may constipate you even more than you already are.

randynoguts
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Date Joined Jan 2003
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   Posted 1/24/2010 2:16 AM (GMT -7)   
adhesions are when the intestines become inflamed and become stuck to other loops of intestines or the abdominal wall or other organs..
randynoguts 



     http://www.geocities.com/randynogutsweb/


Biebs77
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Date Joined Jan 2010
Total Posts : 20
   Posted 1/24/2010 7:54 AM (GMT -7)   
Ouch, yes. I was diagnosed with CD in August 2009 so everything is still relatively new to me and it is really nice to hear that other people are experiencing some of the same things and to hear how they are dealing with it. I am hoping that my appointment with my surgeon in the middle of Feb is more productive than the past few I've had with him. He says he isn't sure why I am still feeling crappy and almost doesn't seem to believe me. I'm pretty much ready to just tell him that all is well and just learn to "deal with it". Good luck with this new development and let me know what the doc says about the spasms/twitching. Take care!
 


Nanners
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Date Joined Apr 2005
Total Posts : 14994
   Posted 1/24/2010 9:01 AM (GMT -7)   
I think you have gotten some great info already, so I will not add more to the twitching issue, but...I will add that maybe until you can get the scope and see whats really going on you watch your diet a little more closely. Try to stay away from things like "nachos" and processed and fried foods. If you do have Crohns, these foods will only irritate your system more. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/24/2010 9:02 AM (GMT -7)   
Oh and for the constipation I use stool softners nightly. They help to keep things softer and easier to pass. They are not laxatives, only pull the water to the stool. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 11:01 AM (GMT -7)   
Thank you to ALL! Ya... I don't eat fried food and am on a pretty easy diet--Gluten Free. I was Thinking that maybe it was the nachos--but they have never hurt me before. I didn't fall asleep until 5:30 this morning and slept for two hours because of all the discomfort. Now I'm back to razor blades this morning and I do have Bentyl for it BUT it induces my tachi cardia so I only used it when I'm to the doubled over phase. AND I actually take stool softeners too, but tonight Im going to try Mirilax AND Benadryl for sleep. I was taking a low dose of Trazodone to sleep this past week and it wasn't until yesterday that I finally remembered why I stopped it--it causes my migraines to come back, and they're the kind that don't respond all the way to any meds.

You guys are all so great, and I pray that I don't have Crohns. .... But if this is IBS....then I feel like IBS needs to be taken just as seriously and I know that it's not, especially by my GI. He acts as if being doubled over in pain, feeling like some alien spawn is trying to escape thru your abdomen with a couple of razor blades isn't really that bad and I can stop worrying about it.

Anyone know of a good GI doc in the Kirkland/Seattle WA area? let me know.

Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 11:04 AM (GMT -7)   
...oh and to be clear.. I am NOT saying that IBS is as bad as Crohns--by any means. I meant that I think that IBS shouldn't be there in the first place and that it shouldn't just be an easy diagnosis handed out w/out colonoscopies and endoscopies... IBS is still awful and not right, and I bet it's just a pre-curser to something worse like CD, UC..and all the other stuff. :D

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18188
   Posted 1/24/2010 1:51 PM (GMT -7)   
I have crohn's and IBS...I had crohn's for 11 yrs before I ended up with IBS as well....my GI explained that there are patients that have had CD for many yrs with minimal remission and severity of disease activity that makes them more of a candidate to also end up with IBS since IBD can really stress out the GI system (throw it out of whack) making room for IBS to then appear more so for severer IBD patients that don't get many (or any) remission periods that last very long before the next flare comes along.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 3:36 PM (GMT -7)   
see.... that's so confusing... Is IBS symptoms the same as Crohn's except w/out the intestinal disease (actual Crohn's present)... What's the difference?? Is the difference between symptoms only that Crohn's has obvious things that a GI can see w/colonoscopy and IBS isn't detected w/colonoscopy--it's just merely symptoms?

pbh4 --how can someone handle so much? isn't Crohn's bad enough?? It's too crazy... I don't know how you deal w/never really getting a remission. :(
2,000 Vit D3 daily, 500 calcium... fibromyalgia, osteopenia, supra ventricular tachi cardia, low iron, low B12, gluten intolerant, .... colonoscopy scheduled for March


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 192
   Posted 1/24/2010 4:03 PM (GMT -7)   
I feel for you. I wish you could have the colonoscopy sooner. The doc is in the dark until he can see if something is going on in your small intestine or the colon. Years ago, a radiologist showed me my spasms during a small bowel follow-thru x-ray. It pretty much looks like what you described. An alien trying to get out. Oh, the small bowel follow-thru is when you drink barium and the radiologist takes an x-ray periodically to follow it thru your intestines. The colonoscopy shows him/her the the condition of the tissues, so its a clear picture of what is going on, but there are good reasons for doing both. I agree with Nanners about the diet. It might help you if you keep a record of what you eat. Have you travelled outside the country? Even if you haven't, sometimes a doc can learn alot from a stool kit. I wish you the best of luck and hope this is a temporary upset of your digestion.
58 years old;
Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 4:36 PM (GMT -7)   
Ya.. I actually had a stool kit and an endoscopy done about three years ago--and either before the endoscopy or right after, I had the barium small blah blah follow thru--whatever the exact name is. They looked at it all but I wasn't having near as many issues and pain. I also read that the bowel follow thru doesn't pick up early to moderate Crohn's very well... but I'm sure that depends on a whole lot of factors. They didn't do the colonoscopy that was scheduled for the same time as the endo cuz I couldn't get the Fleet prep down--I was starting to throw it up and they said to stop it. So I'm super worried about this next one but heard that the Movi prep isn't as bad. But I keep reading that ppl used Miralax to prep for colonoscopy??
2,000 Vit D3 daily, 500 calcium... fibromyalgia, osteopenia, supra ventricular tachi cardia, low iron, low B12, gluten intolerant, .... colonoscopy scheduled for March


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18188
   Posted 1/24/2010 5:17 PM (GMT -7)   
Yes Ouch, LOL, the worst part was that when I was in to see my GI about 6 yrs ago and he added the IBS DX on top of my CD, he also tested me for lactose intolerance issues and sure enough I had severe lactose issues, crohn's and IBS going on all at the same time...same crap, different pile LOL was all I could think.

IBS symptoms are very similare to IBD (same with lactose intolernace, D, cramping, urges, frequency but like IBS no bleeding).  Differnce being, with IBD there tends to be inflammation, with lactose intolerance and IBS there is no inflammation.

I take it moment to moment, can't even take it day to day cuz some parts of my day are better than other parts of my day. I have no choice really in the matter, it is what it is, but I found that there are definitely things that help, IBD and IBS both respond very well to altering diet (see my sig below) and regular daily exersice and probiotics and fibre supplements (or fibreous diet) and with lactose intolerance I found that a good probiotic has kept mine at bay, first I was using lactaid products, pills and such then I discovered that some probiotics actually aid with lactose issues. So considering all the "piles" I have, I've managed to find ways to at least make things better and that's better than nothing.

:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 5:55 PM (GMT -7)   
lol!!! "same crap, different pile"--awesome! ya... I haven't really seen blood like I've been reading here. I only see it when it's all swollen at the exit site and feels like acid went thru--and it actually tears somewhere near there..but it's rare. The GI thinks i'm losing enough blood to keep my iron so low, however, my g-ma was very iron deficient so I think it's in the family. So perhaps the doc is right and I only have the curious case of IBS cuz of the no bleeding thing. I've only seen a lot of mucus once in one D/movement. So I'm definitely not experiencing even half the crap the everyone on this forum seems to be. Fiber really hurts--in fact, I'm thinking it may have been my little cave-in for a salad two weeks ago that started this. Although, since I went off of gluten i've been able to have some forms of fiber where as before is was no fiber. Last night I had Bush's baked beans to try to move things along, and that was bad news bears. The spasms kept happening, nothing moved, and even more bloated than before. So I'm skipping fiber today and eating soft foods diet for the first time.
2,000 Vit D3 daily, 500 calcium... fibromyalgia, osteopenia, supra ventricular tachi cardia, low iron, low B12, gluten intolerant, .... colonoscopy scheduled for March


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18188
   Posted 1/24/2010 7:24 PM (GMT -7)   
Sorry, I should have clarified, there isn't necessarily always bleeding with crohn's, but it's definitely more common to bleed with CD than it is with IBS cuz with IBS bleeding is not a symptoms *unless one has hemorrhoids that are causeing bleeding, either internally or externally*.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/24/2010 8:11 PM (GMT -7)   
One thing that hasn't been mentioned that may help you when you have these spasms. For myself when I cramp up in my legs I also get intestinal spasms for which I take Gatoraide. May be your problem also. Easy to figure out, buy a bottle and keep it on hand to try the next time.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/24/2010 10:16 PM (GMT -7)   
lol! Actually... I just got some Gatorade today. ..MOST Gatorade that I've found in the stores have modified food starch (gluten) and I just finally found some that doesn't have the gluten so I picked a few up today and have been trying really hard to drink a lot of it. That's a very, VERY good point tho about being dehydrated/or low potassium could be causing the spasms. Thank you all so much for all the wonderful info!! :D
2,000 Vit D3 daily, 500 calcium... fibromyalgia, osteopenia, supra ventricular tachi cardia, low iron, low B12, gluten intolerant, .... colonoscopy scheduled for March

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