Should we go back to the bag? please help

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New Member

Date Joined Apr 2009
Total Posts : 11
   Posted 1/24/2010 9:58 AM (GMT -6)   
Rewood's wife here again.  He is in bad pain or just pain all the time for the last 2 1/2 years.  Started out with thinking he had UC then 7 surgeries later they say he MIGHT have crohns and sometimes say's he has crohns.  We are going to the Doctor soon to discuss removing or taking down his J pouch and going to the bag to see if it takes the pain away.  The Doctor can't promise if it will help or not.  Redwood doesn't want to go through another surgery if it doesn't help.  Has anyone been through this?  Have you had a  J pouch and went back to the bag?  Did it help?  he is depressed and me too cause I can't do anything.  It is so hard to watch him hurt all the time.  it has effected his eye sight, his muscles hurt, so tired, in the bathroom 12  to 20 times a day.  He diets well.  I don't know what to do.  Should he try going back to the bag?    We have tried all the meds.  Doctor say's they don't know what to try except the bag.  But no promises about taking the pain away.  Anyone out there like this?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/24/2010 10:05 AM (GMT -6)   
Aww I am so sorry to hear your hubby is suffering so. We have an ostomies forum, you might want to pop over there and ask their opinions on this. Good luck and I will definetly keep you both in my prayers.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 1/24/2010 2:07 PM (GMT -6)   
Hello Redwood,

Please tell your hisband we are praying for relief for him!

I am wondering if you have consulted with a different doctor? These decisions are so big that it is often helpful to get a second (or third) opinion. It may help clarify his options and make the decision easier.

Take care.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/24/2010 3:20 PM (GMT -6)   
Hi I am sending my prayers to you husband. Hope he gets relief soon.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.

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