Low Res/Low Fiber Diet

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MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 1/24/2010 6:27 PM (GMT -7)   
Has anyone, or is anyone else on this diet?  We just started following it for my 9 yr old daughter for about a week now and she is doing amazingly better. She has gained 2 or 3 lbs. in only a week, has no tummy pain, and has had more energy and better BMs.  I read that this is not a long term solution because it is so limiting, but I am so optimistic that at least we've figured out that fiber really does her no good.  It gives her such pain.  She is getting scoped for the second time this Weds, because of continued weight loss and pain, and because obviously, her meds are not working (pentasa, entecort). Doc will be recommending another med...6mp or Remicade. (ugh)  But what if...just what if she stuck with this diet and made up the difference with a good multi vit? She takes Forvia, calcium, probiotics, omegas, D3. Her fruits and veggies that she can tolerate are limited to cooked carrots and green beans, and bananas. If she is doing this well without the med. change, why do it?

  • ozonehole
    Veteran Member


    Date Joined Dec 2006
    Total Posts : 559
       Posted 1/24/2010 8:49 PM (GMT -7)   
    Hi MoobyDoo. I think you almost hit it on the head when you said "not a long term solution because it is so limiting." I also did a low-fiber diet when I was having a lot of obstructive pain, and yes it helped. The big problem wasn't that it was "so limiting," but that my obstruction continued to get worse, so eventually I had to go with surgery. Not saying that your daughter should immediately go out and get surgery, but it may be in her future. Is she taking any medication? You might want to supplement her diet with some vitamins if you're not doing so already. A probiotic could possibly be useful too.

    Anyway, don't argue with success. Continue the diet as long as it helps. Just remember that it's not a cure.

    best regards,
    Robert
    Crohn's since 1988
    3 resections


    nawlinscate
    Veteran Member


    Date Joined Jan 2007
    Total Posts : 656
       Posted 1/24/2010 10:41 PM (GMT -7)   
    When an upper GI series showed a 12" section of my intestine that was extremely narrow, my new gastro doc put me on 6-MP and a low fiber/low residue diet. The combination of the drug and the diet worked wonders for me: the stricture must have been inflamation and edema, rather than scar tissue, because it disappeared. I stayed on the diet for almost 3 years--way too long, according to nutritionists, but it really worked for me. If your daughter stays on the diet for a while, make sure that she takes a multivitamin--and especially Vitamin D3--and gets a monthly B-12 shot. It will help if she's not lactose intolerant, too; that way, she can at least have macaroni and cheese. A low fiber/low residue diet without any dairy is seriously boring.

    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14995
       Posted 1/25/2010 7:15 AM (GMT -7)   
    I am currently in remission and live on a low residue diet all the time. This diet works best for me to keep things quiet and keep "ME" in remission. I know its not supposedly to be long term, but my GI and I agree its what works best for "ME". I am modifying it a little now adding in a few things, but for the most part I stay pretty much on it. I also take extra Calcium, Vit D3, and a good probiotic along with the diet, and biweekly B12 shots. I have been in remission for a few years this way. Good luck!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    Zanne
    Veteran Member


    Date Joined Apr 2005
    Total Posts : 3763
       Posted 1/25/2010 9:05 AM (GMT -7)   
    I'm with Nanners. I stay pretty much on a low residue diet. There is a difference between low residue and low fiber, though they are subtle. Dairy is low fiber but not low residue for example. I have stayed on a low residue diet for years and have not had any nutrition issues. I do take my calcium, vit D, vit Bs, multi, iron, and Probiotics, but I seem to do best on low residue.
    Suzanne

    CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
    Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


    Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14995
       Posted 1/25/2010 1:12 PM (GMT -7)   
    Hi again MoobyDoo I reread your post again and did want to tell you to please keep your little one on some type of maintainence med along with the low res diet. I learned a very hard lesson after I decided I didn't want/need to take maintainence meds anymore. What happens is that the disease continues doing its damage sometimes when we don't even know it. I ended up developing so much scar tissue from the inflammation happening and healing when I didn't know it was even happening, that I fully obstructed. I don't want the samething to happen to your little one. If you go back and read some posts by others, you will see many learned the same lesson the same hard way, because of not taking meds. If things calm down with this diet as they have with me, then maybe just keep her on the Pentasa. It really is a mild med. Also, I didn't do as well on Pentasa, but am successfully maintained with the sister med Asacol. Maybe you can try switching to that?? Good luck!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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