liquid diet & Remicade question

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Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 1/24/2010 7:26 PM (GMT -7)   
I'm having major D and the last couple days when I have eaten solid foods, I get fevers. I started a liquid diet today. How long are you supposed to stay on liquids? And if you are on liquids, is it likely that it will help you to get in remission?

I don't have any particular formula (just doing broth and juice), so I don't know how long I can do this without being void of energy. If I can't go liquids for too long, if I puree my foods will that help things at all?

My Remicade infusion wore off really early. For those of you with experience on Remicade, when your symptoms came back, did they go away after you next infusion, or did it mean the the Remicade wasn't going to work for you anymore? I'm afraid that will be the case for me, but hopefully not. Going to see the GI tomorrow to see if I can get my next infusion sooner.

BirdusMom
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/24/2010 8:38 PM (GMT -7)   
Hey Octobergirl - I think if you are going to do liquids for very long, you should talk to your doc about special liquid food for Crohnies :-) You need to keep your calories up and your electrolytes and all that good stuff. . . just a thought :-)
mother of Crohns patient, diagnosed at age 8, current medications Entocort, Pentasa; supplements include multivitamin, fish oil, glutamine, and floristar
previous meds: remicade, methotrexate, azathioprine (all of which she had severe reactions to); bowel resection in March of 2009 (13 inches of small intestine, ilieum, and a bit of large bowel and appendix)


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 1/24/2010 9:11 PM (GMT -7)   
Anytime I've done liquid only it's been because nothing solid could fit through the inflammation without severe pain. I did it until I could eat solid again. I stuck with things like Ensure and Boost. I was dropping weight and my GI wanted me chugging things like milkshakes just to get major calories down but I was so sick that I couldn't tolerate much of anything. I forced down one Ensure or Boost a day and then just did chicken broth/water if I could tolerate it.

The Ensure/Boost will give you some energy and calories.

As far as Remicade, how often are you getting infusions? I started at 12, went to 8, and in the end were doing them 2-4 weeks apart. I think over time you can build resistence to it and need to bump it up. I hope your GI is willing to talk about it if you are doing them pretty far apart right now.

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 1/24/2010 10:02 PM (GMT -7)   
Your doctor will most likely tell you to drink Ensure or something like that, which I didn't want to do.  I find that if I eliminate dairy that helps - right now I am eating vegan/macrobiotic meals (which before anyone dismisses as too complicated, think about what you eat when you are really flaring = nothing :)  Not eating meat or dairy isn't a big deal.)
 
I tried to do an all-liquid diet last month when I had already had my Remicaide and started back on Prednisone and still wasn't better - I posted here but still didn't know what to drink for an all liquid diet.  I didn't want Ensure, etc, I don't want chicken broth (although I could drink vegetable broth but am trying to stay away from as much sodium as possible), juicing at this point seems scary and think I ended up drinking mainly water and gatorade (which was a bad idea because of all the sugar).
 
My dr is all for fasting - as long as I drink enough to stay hydrated the GI drs usually like that you don't eat because it gives the medicine a chance to work on more calmed insides.  My dr only is concerned when I have lost too much weight, which isn't the case now, I am kind of hovering around the same weight so am fine.  But since this is obviously no way to live, I am looking into a different diet.  It's scaring me that I am on Remicaide AND Prednisone and am still having symptoms!! 
 
I hope you are feeling a little better - when are you having your next Remicaide?
 
Also, I am going to send you a link to a website I found but don't think we can post other people's website on this page - do you have private messaging options unlocked?


32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 1/25/2010 12:03 AM (GMT -7)   
I have had to go liquid and when in the hospital I was given a drink called Breeze, its made by Boost. It is more of a fruit type drink, much better than the milky type ones. Taste really goods if they are ice cold. I have a big problem finding them in the stores so I went to their website and ordered them by the case. They are a little pricey but well worth it.

I did Remicade for almost 4 yrs total. It lost its punch with me. I had my infusions every 4 weeks. You may need to either try getting the infusions closer together or try something like Humira. And my gi says that Remicade does not stay in our systems very long, at first they said it did-not true.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 1/25/2010 7:28 AM (GMT -7)   
Yes, the full-liquid diet can get you into remission. But broths and juices aren't enough because the nutritional content is as important as the fact that it is liquid. You need to use a meal-replacement drink, whether Ensure or Boost or one of the more specialized ones that have been mentioned elsewhere on this board.

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 1/25/2010 9:18 AM (GMT -7)   
Thanks, guys. I'm going to talk to my GI today. I'm not sure what he'll say about it. I really don't want to go on Prednisone, since I didn't feel like it did anything for me last time I was on it, besides give me insomnia, moods swings and hunger.

I'm not too keen on drinking Ensure or Boost, because I'm trying to do SCD, and I feel like that will set me back too much. I don't know, maybe a liquid diet isn't necessary right now...I'm just hoping I can get my next infusion soon, and I hope that it works.

Anyone know how long you usually have to be on a liquid diet to induce remission?
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