Hey *Nanners* or any one taking Vit D.

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2010 9:00 AM (GMT -7)   
How long was it before you noticed a change in your energy levels? I've taken one 50000 unit capsule, and they
have to be taken weekly. So far no difference..
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/25/2010 9:10 AM (GMT -7)   
I've been taking the 50,000 IU pill a week for years. Added in 1000 IU 2 X a day over two years ago. I still haven't noticed a difference in my energy level. According to my blood work my D is still a bit low, so that could be the reason. Then again, I don't notice a difference when I get my B12 shots either and those levels are OK now. The only thing that has worked for me was B6 pills and those took about a month.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/25/2010 9:17 AM (GMT -7)   
Wow that sure is a lot of Vitamin D. Be cautious. I take much less and never noticed anything about energy. What I did find is that I stopped getting sick often. Sometimes I felt like I was coming down with something and it would go away in, oh 12 hours or a day..

I started at 400 iu and went to 800 iu then 1,600 iu and now 2,000 iu in the form of one 1,000 iu in the AM and another in the PM daily.

I have no current intention to increase any furthur.
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2010 9:25 AM (GMT -7)   
I was given the high dose as my levels were so low, plus he wanted to give the higher dosing in case I don't absorb
it well. His thinking is that I should get some. I have to say he told me I would feel so much better!! Mmmm not yet.
Zanne, I don't notice a change from my B12 shots either. Those levels are at 300, still on the low side of normal
(but acceptable). I will admit I give myself a shot weekly sometimes, if I feel the neuropathy like symptoms.
I was so excited about having more energy :(
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/25/2010 10:05 AM (GMT -7)   
It took me about a month or two, but....Vicky you need to realize I am in remission too. It hasn't made it to where I feel, WOW, I have so much energy, but I am not needing as many naps. Hope that helps. It helped the most with my Fibro, by the way.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/25/2010 10:12 AM (GMT -7)   
Funguy, ALL my Vit D is Rx'ed by my doctor. The only way you can get 50,000 IU is by prescription and after a few years my Vit D levels were still dropping so my doctor wanted me to increase my dose and take pills daily as well as the weekly. I am monitored with blood work. I know that too much can be dangerous and would never tell anyone to take it without a doctors OK. I think things just go through me so quickly that there is just not enough time for my body to absorb what I take in.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/25/2010 11:24 AM (GMT -7)   
Hmmm....I never heard of vitamin D being good for energy levels, but it's good for other things, like boosting your immune system while fighting inflammation.  
 
Energy levels seem to have more to do with B12 and iron.

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/25/2010 11:44 AM (GMT -7)   
HI, I recently started taking vit D3 5,0000ui once a day still needs to kick in i think Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/25/2010 12:14 PM (GMT -7)   
I take vitamin D3, the pharmacist recommended I take 2 1000 iu/day (2000 total) cuz of my crohn's and living in Canada where we have such long winters and therefore for many, not enough absorption through sun exposure...vitamin D is important for us CDers cuz it helps our bones, that's actually the main thing about vitamin D, lack of vitamin D causes rickets...vitamin D helps the immune system and with those that have immune diseases...here's a good link.
 
 
And (VERY IMPORTANT), here's a link about the dangers of taking too much vitamin D...
 
 
 
:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


kia c.
Regular Member


Date Joined Jun 2004
Total Posts : 111
   Posted 1/25/2010 12:26 PM (GMT -7)   
I took the mega-dose of Vitamin D back in September.  I was exhausted and my GP discovered my D level was low.  I haven't noticed any difference.  I'm still exhaused.  Personally, I wonder if you're NOT going to notice a difference until the Crohns gets under control. 
 
I hate Crohns ...
 
kia
 

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/25/2010 12:33 PM (GMT -7)   
Hey I am glad you folks getting the high levels of Vitamin D are being medically supervised as I was concerned when I ifrst read your posts.

As I said before the main thing I noticed from Vita-D is I am not getting sick, colds etc, anywhere near like I used to. Out of all the vitamin hype out there this one in particular really seems to work, to keep you healthy.

As far as energy, well I just have not felt this but I imagine what my energy level would be if I was down with the grip on top of everything else.
 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/25/2010 5:46 PM (GMT -7)   
I think 50,000 iu/day is the toxic level, but ask your doctor.  My doc had me start taking 2,000 iu/day because I was geting low.  I was feeling very old, had wierd muscle pain, and was exhausted.  It took about a month to start seeing a difference and three months for the symptoms to go away completely.  I still take 2,000 a day and consider it an important med for me.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 1/25/2010 6:12 PM (GMT -7)   
I take 2,000 units a day for my bones. I was low for a while and my doc gave me Calcitriol to bring it back up. Now I do the daily 2,000. I'm sure I'm healthier for it, but I can't say I feel differently.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/25/2010 6:18 PM (GMT -7)   
I have a basement office w/ very little sunlight.  In the northeast winter I go tanning once about every 5 days for just 7 minutes.  It is barely enough to brown my skin but I notice a considerable change in my health.  I am happier, less dandruff, less patchy itchy skin, less joint pain, less fatigue.  Could be the Vitamen D from the UV.
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Ouch101
Regular Member


Date Joined Dec 2009
Total Posts : 37
   Posted 1/25/2010 7:00 PM (GMT -7)   
I've never heard of energy levels being upped, but that would be nice!! but I agree w/ Funguy that I hardly EVER get sick!! (besides all the stomach crap, that is) .. I used to get about FOUR sinus infections a year!... I can't remember the last time I had one, plus I just started my kids on Vit D3 and they each caught some sniffle for one day and then it was GONE!
2,000 Vit D3 daily, 500 calcium... fibromyalgia, osteopenia, supra ventricular tachi cardia, low iron, low B12, gluten intolerant, .... colonoscopy scheduled for March


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2010 7:43 PM (GMT -7)   
FallColors, the Rx is for me anyway, 50000 units per week. The doctor told me my energy levels would increase by
taking this prescription. We shall see...

Thanks Gail LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/25/2010 8:46 PM (GMT -7)   
well 50 grand per week divided by 7 days is about 7,100 iu per day. According to Consumer Reports health the maximum safe level is "probably" around 10,000 per day IIRC. So you are in a safe zone. Vita-D seems to be a truly miraculous hormone so I am going to listen to you dunny and friends and if you start selling your shares in Charmin company I am going to double my dose pronto! Stick with it. Here is a link with enough information about it to make my eyes cross. Best Guy

http://en.wikipedia.org/wiki/Vitamin_D
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2010 9:16 PM (GMT -7)   
Yep Funguy, I was also blown away with all the scientific trials that is being put into the use of Vit D. It covers a multitude
of complaints from cancer to inflammation and so on. They are actually having great success too. I really had no idea...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/25/2010 9:52 PM (GMT -7)   
No, vitamin D hasn't helped my energy level; I was disappointed as well. I take 50000IU monthly and 2000IU per day.

Ashyla03
Regular Member


Date Joined Oct 2009
Total Posts : 41
   Posted 1/25/2010 10:28 PM (GMT -7)   
I too take the same amount of vit D & it has not caused me to have more energy.  Yet I have noticed that when it is time for me to take again my joints start hurting more.  Vit D is what helps your body with bone health and calcium absor.  I know people with low vit D usually have arthritis pains and bone pains.  I can tell when its time to take my vit D because my shin hurts so bad & my body aches worse than normal.  Hope this helps I am still looking for answers on the low energy fatigue thing myself

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/25/2010 11:33 PM (GMT -7)   
If you read from the first link I provided (7 pages long) the second page ("Evidence") discusses all the health benefits to vitamin D, not just for bones and cancer (even mentions crohn's) and the page after that talks about dosaging...further on is "safety"
 
 
 
:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Post Edited (pb4) : 1/25/2010 11:36:23 PM (GMT-7)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/26/2010 5:48 AM (GMT -7)   
BTW, I used to buy D over the counter -- whatever brand was the cheapest. I then happened to be talking to the pharmacist, and he said he could get it cheaper. $2.06 for 100 pills of 1,000 iu/pill. Better than the $8 -10 I was paying before! Anyone else get it cheaper (without a prescription)?
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/26/2010 8:12 AM (GMT -7)   
As posted above, I take Vit D for my bone health. I started breaking bones in my very early thirties, but had reactions to all of the medications that help build bones (Actonel, Fosamax...). My Endocrinologist put me on extra calcium and then birth control pills and Rx Vit D to help absorb all the extra calcium. My bone density tests have shown improvement or stability at each testing. I still have the occasional rib fracture, but not as often. Alas, no energy improvement.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/26/2010 8:51 AM (GMT -7)   
I actually started the Vitamin D3 after reading that it helped with chronic pain. I am now taking 3400 units a day and about a month or two later I noticed my fibro pain was immensley better which in turn improved my fatigue levels. Below is a link to some great articles I read about it. Hope it helps someone else, like it did me.

http://pain-topics.org/clinical_concepts/vitamind.php


Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/26/2010 8:57 AM (GMT -7)   
Pb, I read the same stuff you've been reading.. Again I found it has huge benefits for many things, but I was
looking for the energy quality, as told me by the doc, I can't find any. Maybe it's the feel good factor, by having
it raised. I don't know.... BUT like a good girl I'll wait!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, December 08, 2016 9:24 AM (GMT -7)
There are a total of 2,734,683 posts in 301,234 threads.
View Active Threads


Who's Online
This forum has 151349 registered members. Please welcome our newest member, bijoustrollette.
343 Guest(s), 10 Registered Member(s) are currently online.  Details
Bololidat, Chanymom, TOOTY, Milla, bijoustrollette, iho, YiyiBoo, bdavis, trumpet123, Myself 09


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer