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Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 366
   Posted 1/25/2010 10:56 AM (GMT -7)   
When I talked with my GI's nurse about being in a flare, she suggested I take Imodium to reduce the symptoms. I don't usually take anything and just deal, but this morning I just wanted to be able to go to work without running to the bathroom a million times, so I just took one. However, I did some research online, and it says NOT to take Imodium if you have Crohn's. This concerns me. What do you guys think, do you take Imodium ever?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/25/2010 11:03 AM (GMT -7)   
MANY of us use Immodium to help slow down the D, don't worry about it you will be fine. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/25/2010 11:05 AM (GMT -7)   
My doctor told me I could take up to 8 pills a day. I used to take it on a regular basis, but my meds were changed and things calmed down so now I only need it once in a while. But I don't think twice about taking it when I do need it.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 366
   Posted 1/25/2010 11:18 AM (GMT -7)   
Thanks ladies. I'm starting to freak out, because I'm reading all this stuff about toxic megacolon. But hopefully that's just worst case scenario. I always freak out and assume the worst, but I'm glad to hear you've tried it without any issues!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/25/2010 11:20 AM (GMT -7)   
If I may make a suggestion stop googling symptoms you will just freak yourself out with the side effects. Just read Tylenol's side effects and you would freak out too, so stay away from google. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mj1966
Regular Member


Date Joined Nov 2009
Total Posts : 42
   Posted 1/25/2010 11:33 AM (GMT -7)   
Good question. I too was worried about taking it, not for the symptoms but thought it would somehow hurt the Crohn's process...sounds stupid I know, but I wasn't sure. Glad to hear others take it and it's OK.

tez25
Regular Member


Date Joined Dec 2009
Total Posts : 50
   Posted 1/25/2010 11:39 AM (GMT -7)   
i try to limit the amount of immodium i take and so if i can manage without it, i will. but to be honest, there are times when i've just got to take it!!

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/25/2010 1:42 PM (GMT -7)   
The problem I noticed is that after using immodium the "payback" can be tough. It seems to me that maybe 24 hours (????) after taking it I get hit with worse urgency and frequency etc. So what I do is I do the minimum. Last week was the first time in a while I used it. I took a HALF an immodium before leaving for work and another half during the day when I starting to feel increased symptoms. That seems to be enough to dull the edge or perhaps gives me mental comfort. I still get payback but it isn't quite nuclear. :)
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/25/2010 1:48 PM (GMT -7)   
Yeah I do better taking 1/2 or only 1 Immodium myself. Two would block me up terribly. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/25/2010 2:12 PM (GMT -7)   
Same here Nanners i can not take more than 1 or am backed up n in pain...i hv taken this for yrs ....i agree to continually google sx / meds will drive ya batty and make you more worried causing self to get sicker..imho...lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


tez25
Regular Member


Date Joined Dec 2009
Total Posts : 50
   Posted 1/25/2010 2:24 PM (GMT -7)   
funguy and nanners, i totally agree with you!
i had no choice but to take some last night - i thought i was going to pass out i was going so much and as if that wasn't bad enough, but i started a new placement at uni today too!! i've been ok today, but i feel that the immodium is starting to wear off now and i'm a little worried about the pay back i'll no doubt be getting tonight!! to be honest though, i had no choice last night and i really don't think the pay back could be as bad as i was last night (i hope anyway, guess i'll find out soon enough!)

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 1/25/2010 6:08 PM (GMT -7)   
I know allot of people here say that they take imodium, but i have found that it makes my symptoms worse, so I don't take it more out of fear now then anything else. But the last time I took it I was still not dx'ed and not on any crohn's meds.
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/26/2010 1:45 AM (GMT -7)   
I just bought some today to try 1 more time. 1 or2 cause me trouble in the past going to try 1/2 as a few of you have said.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control.5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 1/26/2010 5:56 AM (GMT -7)   
I agree, stay away from reading side effects!
With your Dr.'s ok,take what they say is safe.
The mind is very powerful,and can work against you.
Immodium, plus maintainance drugs, works for me.
Hydrate,Hydrate,Hydrate...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 351
   Posted 1/26/2010 7:23 AM (GMT -7)   
I take Multi-Symptom Immodium (the kind you chew) whenever I have symptoms and am going out in public.  I can deal with it at home but it really helos me when I am out socially.  I think it's fine to take and has really helped me - I don't take it often because I am afraid it will stop working :) and also if I am really having that many symptoms I should be at home anyway.
 
The main reason I think anyone would tell you NOT to take it would be if you had something like c. diff or some sort or toxin that the body was trying to eliminate through the D. 
 
Otherwise, Immodium is great.  The Muliti-Symptom helps with gas and bloating, and that is what starts to make me run for the bathroom.  Drink lots of water with it too!!
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1053
   Posted 1/26/2010 8:22 AM (GMT -7)   

I may be wrong but I think another possible reason you're not supposed to take Immodium with Crohn's is because a lot of people with Crohn's have like narrowing or strictures and they don't want to cause a blockage.

That being said, I couldn't live without Immodium and I totally still take it all the time. You do what you have to, to get through the day.


28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 100mg Imuran, Psyllium Seed Powder, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention). 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/26/2010 10:04 AM (GMT -7)   
80's chick many who have narrowing or strictures generally suffer with more constipation than diarrhea so they really don't need the Immodium. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/26/2010 10:57 AM (GMT -7)   
Grandpa2 - Don't use it if you don't need it. I didn't re-read the thread but as I recall the theme is using the 1/2 immodium when you MUST. I don't think anyone said they use it daily just for maintenance. Just saying. Also what 80's chick says above sounds real to me. Luck
 


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/26/2010 11:35 AM (GMT -7)   
I'm with naners I have narrowing and I let cd do it thing, constipation worries. I've had 2 resections from 1 from collapse other from narrowing

artist guy


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 1/26/2010 4:45 PM (GMT -7)   
My GI prescribed me Immodium up to 16 pills a day.

Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

Keefie67
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/26/2010 6:43 PM (GMT -7)   
I've been told I can take up to 17 per day. I don't need that many but regularly use 6 per day (probably about every 3 days or so). I find it doesn't work if I take less, but the 6 will continue to work for a couple of days. If I'm staying home I don't take any, to give myself a rest. I think it's relatively safe but do worry occasionally that I am quite dependant on it psychologically. I often don't leave the house unless I've had some. I am 42, female, was diagnosed 4 years ago but have had symptoms for 20+ years. I had a resection in 2008. I didn't use Immodium before the op as I found it made the pain worse but have been using it ever since. The only other medication I have is B12 injections about every 3-6 months.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/27/2010 1:37 PM (GMT -7)   
hi another one that uses immodium but remember to drink lots of water with it that i was told by gi...lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


Timnlay
Regular Member


Date Joined Feb 2003
Total Posts : 228
   Posted 2/3/2010 11:26 AM (GMT -7)   
The Imodium boxes in Canada bear the Canadian Crohn's and Colitis Foundation logo and states that Imodium is a proud sponsor of. If this were a detrimental thing to take with CD I doubt they would be a sponsor of.... Just a thought

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 2/3/2010 10:31 PM (GMT -7)   
Fun Guy I need it almost every day lol. But I am going to try your dosing to see if it will help. My only alternative is opiods because lomotil for some reason doesn't work.


Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Post Edited (Grandpato2) : 2/3/2010 9:34:25 PM (GMT-7)


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 374
   Posted 2/4/2010 7:48 PM (GMT -7)   
Gosh....Immodium and I have become best friends over the past 10 years!!! :)
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