Ileus----hmmmmm

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/25/2010 5:13 PM (GMT -7)   
Okay I've been living with Crohn's now for 5 years. I have accepted certain things but am questioning my doc lately. In Nov I was given an xray for severe left ab pain and no bowel sounds. They called me 2 days later and said you have ileus, lay off the pain meds. I was like you haven't prescribed pain meds for over 7 months...um hello?

and thats all they did. So in the last 3 weeks, still having that come and go pain, and now vomiting every other day at least one meal. Phenergan, which I hate because of the drowsiness,. is now my best friend again. Would you recommend me changing docs? I don't feel like they even cared about the constant constipation (impaction...UGH!), sometimes I have to use enemas, the pain, and the vomiting.

Psalms 9:18
But the needy will not always be forgotten, nor the hope of the afflicted ever perish.

 

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Currently on Humira every 2wks, Pentasa, Entocort, Phenergan, Lomotil, Zoloft, Ultram, Lortab, Ambien


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 1/25/2010 5:17 PM (GMT -7)   
Ileus can cause horrible things I speak from experience and yes pain meds as well as things like lomotil can cause it. mine was post op that it happened and it occured after 2 different Sx not just 1. I would suggest a second opinion but the anti D stuff can cause that and cause constipation
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/25/2010 5:23 PM (GMT -7)   
oh yeah I forgot to update my med list...haven't had to take Lomotil in forever..lol
Psalms 9:18
But the needy will not always be forgotten, nor the hope of the afflicted ever perish.

Finally awarded disability after 4 long years! Thank God for attorneys!

<FONT color=purple> Currently on Humira every 2wks, Pentasa, Entocort, Phenergan,Zantac, Ambien


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/26/2010 9:33 AM (GMT -7)   
I think it sounds like you could have some narrowing or a stricture. I think a second opinion with a GI is needed. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 1/29/2010 11:27 AM (GMT -7)   
Get a second opinion! They should be trying to figure out why this is going on, and treating you for it! You shouldn't be just dealing with it.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 1/29/2010 1:59 PM (GMT -7)   
I was told I had ileus years ago when I landed in the ER with colic pain like cramps and severe like vomiting. The doctors decided to give me a surgery for ileus. I had been vomiting for 10 hours when the vomiting stopped out of the blue, and the pain was gone. They decided to wait and see, and sent me home the day after, I am happy they didn't give me this emergency surgery, because the reason was Crohns (and not ileus) and I had an obstruction, which gives the same symptoms as ileus. So this was my first obstruction, and my first Crohns symptoms ever. This was back in the 80'.
I didn't get the next Crohns symptoms untill 15 years later. Diarrhea, pain, vomiting an obstructions. In 07' they managed to give me a diagnose. I have, as Nanners had a lot of obstructions, and I guess that you may have a narrowing in your intestines leading to vomiting and intense pain. To avoid getting this again, try to go on a liquid diet and don't eat anything else if you feel that something like that is building up. If you get severe pain and vomiting,...contact your doctor immediately. /Bee

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 1/29/2010 5:33 PM (GMT -7)   
Ileus is just another name for an obstruction...just FYI. It just covers all of them..partial or full obstructions.

By the dr saying you have an ileus, it doesn't explain why, which is the real question. Is it caused by inflammation, or have you had surgeries and could it be from scar tissue? If it's inflammation caused by crohn's, it might warrant prednisone to see if that will make it subside. My obstructions are caused mainly by scar tissue, but before they figured that out, they tried steroids for a week or so to see if it would make it go away quicker. In my case, they resolve themself most of the time, by eating low residue or liquid diet. Either way, they should be monitoring you to make sure things aren't getting worse to keep things from getting worse and turning into a perforation of the intestines.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin

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